Raises awareness of all types of muscular dystrophy and neuromuscular conditions and promotes links between parliament, individuals and families affected by these muscle-wasting conditions, charities, scientists, health professionals and decision-makers.
APPGs can register with Parallel Parliament and submit files and articles to be placed here.
Parallel Parliament offers the facility for APPGs to submit written content and files, which are made available through this page.
Submitters can draft and edit publications, and either release them on demand, or schedule release for a future date.
Both text content and attached files submitted through this facility is indexed by our website, and made available through both the search function and relevant e-mail alerts. Any of our users registered for an alert which matches your content, will receive a link making them aware of its publication.
If you wish to register as an authorised representative of the Muscular Dystrophy APPG and use this facility, click below
Registered Contact:
Mary Glindon MP,
Email: No email supplied
Public Enquiry Point:
Robert Burley, Muscular Dystrophy UK, 32 Ufford Street, London SE1 8QD
Email: r.burley@musculardystrophyuk.org
Secretariat:
Muscular Dystrophy UK acts as the group's secretariat. http://www.musculardystrophyuk.org/
No direct financial benefits are on record for the Muscular Dystrophy APPG