Muscular Dystrophy APPG

First Registered: 30/07/2015 • Last updated on: 30/05/2024

Note: This APPG was last registered on 30th May 2024. The APPG was not registered in the latest release of the 18th June 2025 and may be defunct.

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Raises awareness of all types of muscular dystrophy and neuromuscular conditions and promotes links between parliament, individuals and families affected by these muscle-wasting conditions, charities, scientists, health professionals and decision-makers.

Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
View Official Register Entry
Former Officers - Contact Details - Benefits in Kind - Financial Benefits
Reticulating Splines
Former APPG Officers
Mary Glindon Portrait
Mary Glindon
Chair & Registered Contact
Labour - Newcastle upon Tyne East and Wallsend
Joined: 30th July 2015
Departed: 30th May 2024
6 APPG Officer Positions
British Offshore Energy Industry , Fire Safety and Rescue , Grid Networks , Hadrian's Wall , Obesity , Responsible Vaping

No other APPG Memberships

Liz Twist Portrait
Liz Twist
Vice Chair
Labour - Blaydon and Consett
Joined: 10th October 2018
Departed: 30th May 2024
2 APPG Officer Positions
Respiratory Health , Suicide and Self-Harm Prevention

No other APPG Memberships

Steve Brine Portrait
Steve Brine
Vice Chair
Conservative - Former Member for Winchester
Joined: 14th July 2021
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Baroness Thomas of Winchester Portrait
Baroness Thomas of Winchester
Vice Chair
Liberal Democrat - Life peer
Joined: 30th July 2015
Departed: 30th May 2024
No other APPG Officer Positions

No other APPG Memberships

Jim Shannon Portrait
Jim Shannon
Vice Chair
Democratic Unionist Party - Strangford
Joined: 21st July 2016
Departed: 6th March 2024
5 APPG Officer Positions
Healthy Homes and Buildings , International Freedom of Religion or Belief , Respiratory Health , UK Food Security , Vascular and Venous Disease

No other APPG Memberships

Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 31st January 2018
Departed: 10th March 2021
No other APPG Officer Positions

No other APPG Memberships

Cheryl Gillan Portrait
Cheryl Gillan
Vice Chair
Conservative - Former Member for Chesham and Amersham
Joined: 30th July 2015
Departed: 20th December 2017
No other APPG Officer Positions

No other APPG Memberships

Paul Maynard Portrait
Paul Maynard
Vice Chair
Conservative - Former Member for Blackpool North and Cleveleys
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Officer Positions

No other APPG Memberships

Paul Monaghan Portrait
Paul Monaghan
Vice Chair
Scottish National Party - Former Member for Caithness, Sutherland and Easter Ross
Joined: 30th July 2015
Departed: 2nd May 2017
No other APPG Officer Positions

No other APPG Memberships

David Anderson Portrait
David Anderson
Chair & Registered Contact
Labour - Former Member for Blaydon
Joined: 30th July 2015
Departed: 12th October 2016
No other APPG Officer Positions

No other APPG Memberships

Lord Walton of Detchant Portrait
Lord Walton of Detchant
Secretary
Crossbench - Life peer
Joined: 30th July 2015
Departed: 16th March 2016
No other APPG Officer Positions

No other APPG Memberships

Contact Details

Registered Contact:

Mary Glindon MP,

Email: No email supplied

Public Enquiry Point:

Robert Burley, Muscular Dystrophy UK, 32 Ufford Street, London SE1 8QD

Email: r.burley@musculardystrophyuk.org

Secretariat:

Muscular Dystrophy UK acts as the group's secretariat. http://www.musculardystrophyuk.org/

Benefits in Kind
Date
12 Feb 2022
Source
Muscular Dystrophy UK
Description
Secretariat   From : 12/02/2022 To : 11/02/2023
Value
£3,001
Date
12 Feb 2021
Source
Muscular Dystrophy UK
Description
Secretariat   From : 12/02/2021 To : 11/02/2022
Value
£3,001
Date
12 Feb 2020
Source
Muscular Dystrophy UK
Description
Secretariat   From : 12/02/2020 To : 11/02/2021
Value
£3,001
Date
18 Jul 2019
Source
Muscular Dystrophy UK
Description
Secretariat   From : 18/07/2019 To : 17/07/2020
Value
£3,001
Date
18 Jul 2018
Source
Muscular Dystrophy UK
Description
Secretariat   From : 18/07/2018 To : 17/07/2019
Value
£3,001
Date
1 Jan 2018
Source
Muscular Dystrophy UK
Description
Secretariat   From : 01/01/2018 To : 31/12/2018
Value
£3,001
Date
1 Jan 2017
Source
Muscular Dystrophy UK
Description
Secretariat   From : 01/01/2017 To : 31/12/2017
Value
£3,001
Date
1 Jan 2016
Source
Muscular Dystrophy UK
Description
Secretariat   From : 01/01/2016 To : 31/12/2016
Value
£3,001
Date
1 Jan 2015
Source
Muscular Dystrophy UK
Description
Secretariat   From : 01/01/2015 To : 31/12/2015
Value
£3,001

No direct financial benefits are on record for the Muscular Dystrophy APPG