Mentions:
1: Philip Davies (Con - Shipley) Two groups of patients who struggle with that are motor neurone disease sufferers and cancer patients - Speech Link
2: Jo Churchill (Con - Bury St Edmunds) Its work is incredibly important—its motor neurone disease campaign has been mentioned—but we must also - Speech Link
Mentions:
1: Janet Daby (Lab - Lewisham East) What steps she is taking to improve healthcare outcomes for patients with sickle cell disease. - Speech Link
2: Andrew Stephenson (Con - Pendle) We are working hard to provide the best possible care to those living with sickle cell disease. - Speech Link
3: Andrew Lewer (Con - Northampton South) cause of ongoing problems affecting access to riluzole, the only licensed drug for the treatment of motor - Speech Link
4: Derek Twigg (Lab - Halton) The rate of premature deaths from cardiovascular disease has now increased in England for three years - Speech Link
Jan. 17 2024
Source Page: Freedom of Information responses from the MHRA - week commencing 28 November 2022Found: Ballismus 2 0 Clumsiness 26 0 Dyskinesia 58 0 Extrapyramidal disorder 6 0 Fine motor
Jan. 17 2024
Source Page: Freedom of Information responses from the MHRA - week commencing 28 November 2022Found: progression 1 0 Disease recurrence 2 0 Energy increased 1 0 General physical health
Jan. 04 2024
Source Page: Bridging payment and free school meals: FOI releaseFound: MND Scotland is the leading charity in Scotland providing care and support to people affected by Motor
Dec. 29 2023
Source Page: Scots recognised in King's New Year Honours ListFound: captain Rob Wainwright is also honoured [OBE] for his extraordinary work raising money for research into motor
Dec. 29 2023
Source Page: New Year Honours List 2024Found: Neurone Disease Awareness Pontefract West Yorkshire Order of the British Empire Commanders of the Order
Dec. 29 2023
Source Page: New Year Honours List 2024Found: For services to Social Care (Norwich, Norfolk) Robert Geoffrey BURROW MBE For services to Motor Neurone
Asked by: Alex Norris (Labour (Co-op) - Nottingham North)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment she has made of the adequacy of the provision of Riluzole for patients with motor neurone disease.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
We are aware that one of the suppliers of riluzole 50 milligram tablets is experiencing a supply issue. However, alternative suppliers have stock available. We are working closely with all the manufacturers and others operating in the supply chain to help ensure supplies remain available for patients in the United Kingdom.
We have well-established processes for managing and mitigating medicine supply issues, which involve working with the pharmaceutical industry, the Medicines and Healthcare products Regulatory Agency, NHS England, the devolved governments, and others operating in the supply chain to help ensure patients have access to the treatments they need.
Asked by: Alex Norris (Labour (Co-op) - Nottingham North)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to improve access to Riluzole for patients with motor neurone disease.
Answered by Andrew Stephenson - Minister of State (Department of Health and Social Care)
We are aware that one of the suppliers of riluzole 50 milligram tablets is experiencing a supply issue. However, alternative suppliers have stock available. We are working closely with all the manufacturers and others operating in the supply chain to help ensure supplies remain available for patients in the United Kingdom.
We have well-established processes for managing and mitigating medicine supply issues, which involve working with the pharmaceutical industry, the Medicines and Healthcare products Regulatory Agency, NHS England, the devolved governments, and others operating in the supply chain to help ensure patients have access to the treatments they need.