Asked by: Lennon, Monica (Scottish Labour - Central Scotland)
Question
To ask the Scottish Government whether it has any concerns regarding the reported reduction in the number of specialist palliative care beds at hospices, in light of the situation at Kilbryde Hospice.
Answered by Minto, Jenni - Minister for Public Health and Women's Health
The Scottish Government is aware of the temporary reduction in beds at Kilbryde Hospice.
South Lanarkshire Health and Social Care Partnership (HSCP) has been clear that the temporary reduction of beds is due to clinical and operational reasons associated with current staffing challenges and are undertaking work to address this.
It is the responsibility of Integration Joint Boards to plan and commission adult palliative and end of life care services for their areas using the integrated budgets under their control, including workforce planning and allocating resources for staffing.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that integrated care boards have clear accountability over their funding decisions for (a) hospices and (b) palliative and end of life care services.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of locally available, National Health Service funded palliative and end of life care, including hospice care. ICBs are responsible for ensuring that the services they commission meet the needs of their local population.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
In July 2022, NHS England published statutory guidance and service specifications for commissioners on palliative and end of life care, setting out the considerations for ICBs to meet their legal duties, and making clear reference to the importance of access to services.
The Department and NHS England, alongside key partners, will continue to proactively engage with our stakeholders, including the voluntary sector and independent hospices, on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England, including its National Clinical Director, about the oversight and accountability of National Health Service palliative and end of life care commissioning.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population.
NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities. Additionally, the National Institute for Health and Care Research has established a new Policy Research Unit to build an evidence base on palliative and end of life care, with a specific focus on inequalities.
Mentions:
1: Sally-Ann Hart (Con - Hastings and Rye) areas.As a member of all-party parliamentary group for hospice and end of life care, I am very happy - Speech Link
2: Sally-Ann Hart (Con - Hastings and Rye) and end of life care. - Speech Link
3: Martin Vickers (Con - Cleethorpes) and end of life care. - Speech Link
4: Helen Whately (Con - Faversham and Mid Kent) and end of life care. - Speech Link
5: Helen Whately (Con - Faversham and Mid Kent) and end of life care. - Speech Link
6: Colleen Fletcher (Lab - Coventry North East) and end of life care. - Speech Link
7: Sally-Ann Hart (Con - Hastings and Rye) and end of life care. - Speech Link
8: Chris Loder (Con - West Dorset) and end of life care. - Speech Link
9: Sally-Ann Hart (Con - Hastings and Rye) and end of life care. - Speech Link
10: Peter Aldous (Con - Waveney) and end of life care. - Speech Link
11: Peter Gibson (Con - Darlington) and end of life care. - Speech Link
12: Edward Timpson (Con - Eddisbury) and end of life care. - Speech Link
13: Helen Whately (Con - Faversham and Mid Kent) and end of life care. - Speech Link
14: Rachael Maskell (LAB - York Central) and end of life care. - Speech Link
15: Bambos Charalambous (Lab - Enfield, Southgate) and end of life care. - Speech Link
16: Richard Drax (Con - South Dorset) and end of life care. - Speech Link
17: Patrick Grady (SNP - Glasgow North) and end of life care. - Speech Link
Asked by: Daisy Cooper (Liberal Democrat - St Albans)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how she plans to distribute funding through the Children's Hospice Grant in the 2024-25 financial year.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England currently supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. Last year, NHS England confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
The distribution of the 2024/25 funding to children’s hospices will be via integrated care boards (ICBs), in line with the wider move to a devolved National Health Service, in which ICBs are best placed to meet the health and care needs of their local population.
The Department and NHS England hope to be able to provide the greater clarity that the sector is seeking on this important funding stream to children’s hospices, in the coming weeks.
Asked by: Lord Hunt of Kings Heath (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what monitoring arrangements are in place to evaluate the effectiveness or otherwise of integrated care boards in discharging their responsibility for determining the level of locally NHS-funded palliative and end of life care, including hospice care.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
The Department is in ongoing discussions with NHS England about oversight and accountability of palliative and end of life care commissioning in the National Health Service. NHS England has agreed to include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. The regional quality and performance meetings will provide an additional mechanism for supporting integrated care boards (ICBs) to continue to improve palliative and end of life care for their local population.
Whilst the detail of the key points for palliative and end of life care are still being discussed, this is likely to include: improved access to care through increased identification of patients likely to be in the last year of life, using the GP Palliative Care Register; improved quality of care, including progression towards around-the-clock access to specialist palliative care advice for staff; and improved experience of care through an improved percentage of patients being offered a personalised care and support plan and advance care plan for those identified. These national meetings will provide an additional mechanism for supporting ICBs to continue to improve palliative and end of life care for their local population.
Asked by: Marsha De Cordova (Labour - Battersea)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether she is taking steps to support hospices with rising costs.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service-funded palliative and end of life care, including hospice care, locally, and they are responsible for ensuring that the services they commission meet the needs of their local population. As part of the Health and Care Act 2022, the Government added palliative care services to the list of services an ICB must commission, which will ensure a more consistent national approach, and support commissioners in prioritising palliative and end of life care.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
The Department, alongside key partners, and NHS England will continue to engage with stakeholders, including the voluntary sector and independent hospices on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England about oversight and accountability of National Health Service palliative and end of life care commissioning.
The Government recognises the difficult economic context that organisations such as hospices face, which is why we made the decision to provide additional funding to help deliver non-consolidated pay awards to eligible staff employed by non-NHS organisations, including some hospices. Funding has been made available for over 27,000 staff in non-NHS organisations to receive the two non-consolidated awards agreed as part of the Agenda for Change pay deal. Eligible organisations will receive their funding as soon as practically possible, following the receipt of their invoice.
Asked by: Rachael Maskell (Labour (Co-op) - York Central)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help ensure that people receive a good standard of hospice care if they reside in an area covered by an integrated care board that provides less than the national average level of funding for hospices.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Whilst the majority of palliative and end of life care is provided by National Health Service staff and services, we recognise the vital part that voluntary sector organisations, including hospices, also play in providing support to people, and their families, at end of life. Most hospices are charitable, independent organisations who receive some statutory funding for providing NHS services. Charitable hospices are autonomous organisations that provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
In July 2022, NHS England published statutory guidance for commissioners on palliative and end of life care, setting out the considerations required for integrated care boards (ICBs), in order to meet their legal duties. This can be found at the following link:
NHS England has also published service specifications, for both adults and children and young people, which provide guidance on undertaking assessments to enable high-quality commissioning of services that meet both the population need and preferences. These can be found at the following link:
The Department is in ongoing discussions with NHS England about the oversight and accountability of NHS palliative and end of life care commissioning. We remain committed to improving patient access to, and quality of, palliative and end of life care, and are working with NHS England to reduce disparities in the standard of palliative and end of life care across the country.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. These national meetings will provide an additional mechanism for supporting ICBs in continuing to improve palliative and end of life care for their local population. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of those in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Fleur Anderson (Labour - Putney)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what recent steps her Department has taken to improve (a) services for children who require end of life care, (b) services for children with life threatening conditions and (c) services for children with life limiting conditions.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service funded palliative and end of life care for children locally, and they are responsible for ensuring that the services they commission meet the needs of their local population.
At a national level, in line with the NHS Long Term Plan, NHS England has provided approximately £12 million of match-funding to participating ICBs, and formerly CCGs, between 2020/21 and 2023/24. This was committed to invest in children and young people’s palliative and end of life care, giving a total investment of £24 million. In addition, NHS England supports palliative and end of life care for children and young people through the Children and Young People’s Hospice Grant. NHS England has confirmed that it will be renewing the funding for 2024/25, once again allocating £25 million of funding for children’s hospices using the same prevalence-based allocation approach as in 2022/23 and 2023/24. This prevalence-based approach ensures funding matches local need.
The Department is in ongoing discussions with NHS England to explore improving oversight and accountability of all-age NHS palliative and end of life care commissioning. Additionally, The Department, through the National Institute for Health and Care Research, is investing £3 million in a new Palliative and End of Life Care Policy Research Unit. This will help build the evidence base on all-age palliative and end of life care to inform policy making in this vital area.
NHS England’s palliative and end of life care team has recently engaged with 24 ICBs to understand how to better support commissioners, and has also reviewed all 42 ICB Joint Forward Plans for their inclusion of palliative and end of life care.
From April 2024, NHS England will include palliative and end of life care in the list of topics for regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together all relevant data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of their local population, including children, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
Asked by: Marsha De Cordova (Labour - Battersea)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the potential merits of amending the funding model for hospices.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
Integrated care boards (ICBs) are responsible for determining the level of National Health Service-funded palliative and end of life care, including hospice care, locally, and they are responsible for ensuring that the services they commission meet the needs of their local population. As part of the Health and Care Act 2022, the Government added palliative care services to the list of services an ICB must commission, which will ensure a more consistent national approach, and support commissioners in prioritising palliative and end of life care.
The majority of palliative and end of life care is provided by NHS staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide. Consequently, the funding arrangements reflect this.
The Department, alongside key partners, and NHS England will continue to engage with stakeholders, including the voluntary sector and independent hospices on an ongoing basis, in order to understand the issues they face, including that of future funding pressures. The Department is in ongoing discussions with NHS England about oversight and accountability of National Health Service palliative and end of life care commissioning.
The Government recognises the difficult economic context that organisations such as hospices face, which is why we made the decision to provide additional funding to help deliver non-consolidated pay awards to eligible staff employed by non-NHS organisations, including some hospices. Funding has been made available for over 27,000 staff in non-NHS organisations to receive the two non-consolidated awards agreed as part of the Agenda for Change pay deal. Eligible organisations will receive their funding as soon as practically possible, following the receipt of their invoice.