Mentions:
1: Mark Tami (LAB - Alyn and Deeside) cell transplantation and advanced cellular therapies.Many Members will be aware that a stem cell transplant - Speech Link
2: Mark Tami (LAB - Alyn and Deeside) cell transplantation on patients and families. - Speech Link
3: Neil O'Brien (CON - Harborough) As chair of the all-party parliamentary group on stem cell transplantation and advanced cellular therapies - Speech Link
Dec. 10 2008
Source Page: Gene Therapy Advisory Committee: 14th Annual Report. 84 p.Found: Dr Stephen Minger, Director, Stem Cell Biology Laboratory, Wolfson Centre for Age-Related Disease,
Dec. 13 2023
Source Page: National Advisory Committee for Neurological Conditions minutes: August 2023Found: Summary 2023-24 Quarter One'.The current system in place for Multiple Sclerosis (MS) Haematopoietic Stem
Apr. 12 2024
Source Page: Non-technical summaries granted in 2024Found: from a patient and turning this back to a stem cell.
Asked by: Lord Mendelsohn (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to support stem cell transplant and CAR-T therapy patients in pursuing a safe return to work while maintaining protections for their health.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
There are no plans to assess the potential benefits and costs of establishing a patient travel fund for stem cell transplant and CAR-T recipients. NHS England does not provide any specific cost of living support for patients receiving stem cell transplantation, however, trusts can exercise discretion to provide accommodation and/or other support depending on local and individual patient circumstances. The Non-Emergency Patient Transport Services (NEPTS) provide funded transport where it is considered essential to ensuring an individual’s safety, safe mobilisation, condition management or recovery.
Depending on a patient’s financial circumstances, they may be eligible for financial support with costs via the NHS Low Income Scheme and Healthcare Travel Costs Scheme. Those who do not qualify for NEPTS and need financial help with travel can access the Healthcare Travel Costs Scheme. This is aimed specifically at those with a low income and allows patients to claim for all or part their travel costs should they meet the eligibility criteria.
We recognise the pressures people are facing with the rising cost of living. Our extensive arrangements to help people afford NHS prescription charges, means that almost 89% of prescription items dispensed in community pharmacies in England are already provided free of charge. For those not exempt from charges, pre-payment certificates can be used to cap costs at just over £2 a week for regular prescriptions.
People with long-term health conditions or disabilities, including those requiring stem cell transplants, may be entitled to financial support to contribute towards their extra costs such as Personal Independence Payment (PIP). Entitlement to PIP is assessed on the basis of the needs arising from a health condition or disability, rather than the health condition or disability itself.
The Government does not any specific support to stem cell transplant and CAR-T therapy patients pursuing a safe return to work. However, the Government has a range of initiatives to support disabled people and people with health conditions, including stem cell transplant and CAR-T therapy patients, to start, stay and succeed in work. These include increasing Work Coach and Disability Employment Advisers’ support in Jobcentres, the Work and Health Programme, Intensive Personalised Employment Support, Access to Work grants, Disability Confident, the Information and Advice Service and support in partnership between Department for Work and Pensions and the health system, including Employment Advice in NHS Talking Therapies.
Asked by: Lord Mendelsohn (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government what steps they are taking to mitigate the impact of the increased cost of living on stem cell transplant and CAR-T therapy recipients.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
There are no plans to assess the potential benefits and costs of establishing a patient travel fund for stem cell transplant and CAR-T recipients. NHS England does not provide any specific cost of living support for patients receiving stem cell transplantation, however, trusts can exercise discretion to provide accommodation and/or other support depending on local and individual patient circumstances. The Non-Emergency Patient Transport Services (NEPTS) provide funded transport where it is considered essential to ensuring an individual’s safety, safe mobilisation, condition management or recovery.
Depending on a patient’s financial circumstances, they may be eligible for financial support with costs via the NHS Low Income Scheme and Healthcare Travel Costs Scheme. Those who do not qualify for NEPTS and need financial help with travel can access the Healthcare Travel Costs Scheme. This is aimed specifically at those with a low income and allows patients to claim for all or part their travel costs should they meet the eligibility criteria.
We recognise the pressures people are facing with the rising cost of living. Our extensive arrangements to help people afford NHS prescription charges, means that almost 89% of prescription items dispensed in community pharmacies in England are already provided free of charge. For those not exempt from charges, pre-payment certificates can be used to cap costs at just over £2 a week for regular prescriptions.
People with long-term health conditions or disabilities, including those requiring stem cell transplants, may be entitled to financial support to contribute towards their extra costs such as Personal Independence Payment (PIP). Entitlement to PIP is assessed on the basis of the needs arising from a health condition or disability, rather than the health condition or disability itself.
The Government does not any specific support to stem cell transplant and CAR-T therapy patients pursuing a safe return to work. However, the Government has a range of initiatives to support disabled people and people with health conditions, including stem cell transplant and CAR-T therapy patients, to start, stay and succeed in work. These include increasing Work Coach and Disability Employment Advisers’ support in Jobcentres, the Work and Health Programme, Intensive Personalised Employment Support, Access to Work grants, Disability Confident, the Information and Advice Service and support in partnership between Department for Work and Pensions and the health system, including Employment Advice in NHS Talking Therapies.
Asked by: Lord Mendelsohn (Labour - Life peer)
Question to the Department of Health and Social Care:
To ask His Majesty's Government whether they intend to assess (1) the potential benefit of establishing a patient travel fund for stem cell transplant and CAR-T therapy recipients, and (2) the potential cost to the Treasury.
Answered by Lord Markham - Parliamentary Under-Secretary (Department of Health and Social Care)
There are no plans to assess the potential benefits and costs of establishing a patient travel fund for stem cell transplant and CAR-T recipients. NHS England does not provide any specific cost of living support for patients receiving stem cell transplantation, however, trusts can exercise discretion to provide accommodation and/or other support depending on local and individual patient circumstances. The Non-Emergency Patient Transport Services (NEPTS) provide funded transport where it is considered essential to ensuring an individual’s safety, safe mobilisation, condition management or recovery.
Depending on a patient’s financial circumstances, they may be eligible for financial support with costs via the NHS Low Income Scheme and Healthcare Travel Costs Scheme. Those who do not qualify for NEPTS and need financial help with travel can access the Healthcare Travel Costs Scheme. This is aimed specifically at those with a low income and allows patients to claim for all or part their travel costs should they meet the eligibility criteria.
We recognise the pressures people are facing with the rising cost of living. Our extensive arrangements to help people afford NHS prescription charges, means that almost 89% of prescription items dispensed in community pharmacies in England are already provided free of charge. For those not exempt from charges, pre-payment certificates can be used to cap costs at just over £2 a week for regular prescriptions.
People with long-term health conditions or disabilities, including those requiring stem cell transplants, may be entitled to financial support to contribute towards their extra costs such as Personal Independence Payment (PIP). Entitlement to PIP is assessed on the basis of the needs arising from a health condition or disability, rather than the health condition or disability itself.
The Government does not any specific support to stem cell transplant and CAR-T therapy patients pursuing a safe return to work. However, the Government has a range of initiatives to support disabled people and people with health conditions, including stem cell transplant and CAR-T therapy patients, to start, stay and succeed in work. These include increasing Work Coach and Disability Employment Advisers’ support in Jobcentres, the Work and Health Programme, Intensive Personalised Employment Support, Access to Work grants, Disability Confident, the Information and Advice Service and support in partnership between Department for Work and Pensions and the health system, including Employment Advice in NHS Talking Therapies.
Asked by: Henry Smith (Conservative - Crawley)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether his Department has made an assessment of the potential support for UK leadership in the adoption of cell and gene therapies of the recommendations of the Cell and Gene Therapy Catapult’s National Cell and Gene Therapy Vision for the UK, published in March 2022.
Answered by Will Quince
The Department recognises that advanced cell and gene therapies will be an important part of the future of healthcare and the life sciences industry. We have been considering the recommendations of the Cell and Gene Therapy Catapult’s ‘National Cell and Gene Therapy Vision for the UK’, a report published by the Cell and Gene Therapy Catapult in March 2022 and the UK Strategic Stem Cell Forum’s latest report ‘A 10-year vision for stem cell transplantation and cellular therapies’ published in July 2022.
As part of this, we have been conducting stakeholder engagement to further understand the challenges raised and whether there is a role for the Department in coordinating activity in this area.
Mar. 14 2024
Source Page: Freedom of Information responses from the MHRA - week commencing 29 May 2023Found: haematoma, Brain stem haemorrhage, Brain stem infarction, Brain stem ischaemia, Brain stem microhaemorrhage
Asked by: Andrew Gwynne (Labour - Denton and Reddish)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, whether he is taking steps to support patients receiving a stem cell transplant with the cost of living.
Answered by Neil O'Brien
NHS England does not provide any specific cost of living support for patients receiving stem cell transplantation, however, trusts can exercise discretion to provide accommodation and/or other support depending on local and individual patient circumstances. Depending on a patient’s financial circumstances, they may be eligible for financial support with travel costs via the NHS Low Income Scheme and Healthcare Travel Costs Scheme.
With regards to the Healthcare Travel Scheme, the regulations provide that the amount payable should be calculated by reference to the cost of travelling by the cheapest means of transport which is reasonable having regard to the person’s age, medical condition or any other relevant circumstance.
People with long-term health conditions or disabilities, including those requiring stem cell transplants, may be entitled to financial support to contribute towards their extra costs such as Personal Independence Payment (PIP). Entitlement to PIP is assessed on the basis of the needs arising from a health condition or disability, rather than the health condition or disability itself. Recipients of extra costs disability benefits, such as PIP, will receive a £150 Disability Cost of Living Payment in the summer. They may also be entitled to up to £900 of Cost of Living Payments if they are a member of a household receiving a means tested benefit.