Parkinson’s Disease

Tom Hayes Excerpts

Monday 17th November 2025 Westminster Hall

[Alison Bennett]

I am happy to agree. My hon. Friend makes an excellent point, and it also applies to the loved ones of people receiving a Parkinson’s diagnosis.

We need better social care for all people when they are faced with a disability. We need there to be more respite breaks, paid carer’s leave and a system that recognises the specific needs of people with neurological conditions.

On work—here I am thinking in particular of my friend Rob, whom many of my hon. Friends will also know—we must ensure that people who have Parkinson’s and are of working age can live and work and participate in work with independence and dignity wherever possible. That is why my Liberal Democrat colleagues and I are fighting for a new right to flexible working, and the right to work from home for every disabled person unless there is a significant business reason otherwise.

The Liberal Democrats also want to adopt a new accessibility standard for public spaces and embed in UK law the UN convention on the rights of persons with disabilities. We want to ensure that support moves with the person and does not just stay with the original employer. That is why we are calling for adjustment passports—records of the modifications, equipment and adjustments that a disabled person uses—so that when they change jobs, their support goes with them. That seems to be plain common sense.

On medicines and their availability, we must speed up access to new treatments. It is simply unacceptable that the Medicines and Healthcare products Regulatory Agency has seen its workforce cut.

[Tom Hayes (Bournemouth East) (Lab)]

I want to commend the Poole and District Branch of Parkinson’s UK but also, on that particular point, tell the story of Carla, whose husband was affected by a lack of access to time-critical medication. Does the hon. Member agree that it is critical that the Government do everything they can to speed up access?

[Alison Bennett]

I agree wholeheartedly.

The MHRA workforce has been cut by 40%, and that has slowed down the arrival of new therapies for people who desperately need them. We should be halving the time it takes for new treatments to reach patients, not lengthening it.

None of this is impossible. It requires us to listen to people living with Parkinson’s—really listen to their fears, needs, hopes and experiences. The Parky charter sets out a clear and achievable path. It demands dignity and fairness, and that the Government finally deliver the timely, specialist, compassionate care that every person with Parkinson’s—like Sophie’s mum, Janet—should be able to count on. Today, let us send a message to everyone living with Parkinson’s: we see you; we hear you; and we stand with you. I want to send an equally clear message to the Government and the Minister, whom I thank for being here today: the time for half measures and for excuses is over. The time to act—seriously, decisively and with compassion—is now.