Oral Answers to Questions Debate
Full Debate: Read Full DebateSeema Kennedy
Main Page: Seema Kennedy (Conservative - South Ribble)Department Debates - View all Seema Kennedy's debates with the Department of Health and Social Care
(5 years, 4 months ago)
Commons ChamberWe want patients living with cystic fibrosis to get the best care possible. Progress in specialised treatment for patients with CF means that people are living healthier and longer lives, but I recognise that it is frustrating for everyone, in particular patients and their families, that a deal on Orkambi has not been reached. It is for Vertex and NHS England to enter negotiations. I urge Vertex to consider the latest offer from NHSE.
I have heard from people in Dudley and across the country about the difference that those new treatments make, but patients have been waiting for three and a half years now. Some families are having to take extreme measures to secure access to the drugs. Will the Minister and the Secretary of State meet me, people with cystic fibrosis or their parents, and the Cystic Fibrosis Trust so that we can get the whole thing sorted out and the wait for the drugs is not drawn out any longer with another summer or year of impasse?
I recognise and share the frustration of patients and their families. The situation has been going on for far too long. I again urge Vertex to accept the offer. The hon. Gentleman has been in touch about a meeting, and I understand that we have responded to say that we will give him a firm date shortly.
Sufferers of CF, as we have heard, are well used to the new hope of changes in the Government, but it soon becomes yet another false dawn: they are left drowning in their disease without access to Orkambi. The Minister has to lean in on the business end of the job that she has to do. Will the Government use their leverage, support the buyers’ club—the drastic action that CF sufferers are having to take—and supplement access to the equivalent of Orkambi? That might finally get Vertex to the table to do a deal on this important issue.
As I said to the hon. Gentleman and other hon. Members in the Westminster Hall debate on the drug, a deal is the preferred option. However, the attitude taken by Vertex, which has been called an outlier in this situation, means that my right hon. Friend the Health Secretary has instructed NHS England to look at other options.
Over the past three years, all of us in this House have heard the numerous calls for Orkambi to be made available to cystic fibrosis patients. The Minister could go down in history if she takes the all-important step this week, while still in her job—I hope she will still be in the job tomorrow—of announcing an alternative route to access cystic fibrosis drugs, such as a Crown use licence or clinical trials. Today, before we break for recess, will she commit to that so that families can have Orkambi now?
The National Institute for Health and Care Excellence process is important, because it is an independent expert review and the way in which we allocate resources sensibly. The Crown use licence is not a quick or easy solution, and it is open to legal challenge, which might delay things even more. Vertex has been offered the biggest settlement in NHS history, and I urge the company to accept it. However—I have said this on numerous occasions from this Dispatch Box and in Westminster Hall—the Secretary of State has urged and asked NHS England to look at other options, such as the ones to which the shadow Minister has referred.
Missed appointments are a waste of NHS resources, and we believe that encouraging patients to use the NHS sensibly and responsibly is the right approach. We are encouraging a range of local schemes to help to reduce missed appointments, with clinical commissioning groups and practices embracing technology and adopting a variety of approaches, such as text reminders, patient-recorded bookings and the increased use of online systems that make it quick and easy for patients to change and cancel appointments.
A GP surgery in my constituency has reported that in one month this year, 78 people failed to keep their appointment and failed to cancel it. Those failures led to the surgery losing 11 hours’ working time. The surgery has announced that it will consider removing patients from its register if they miss three consecutive appointments. Does my hon. Friend support that proposal, and does she think that the policy should be rolled out across other surgeries?
Local NHS organisations know their populations best, and that is why the Government support locally led initiatives to reduce missed appointments. The evidence shows us that people are less likely to miss an appointment if they have a convenient option. Swale CCG has a “Did Not Attend” campaign, which will run across the region this summer and support his constituents in making sure that they use their appointments responsibly.
Is the Minister aware of any research that has been done, not just on missed appointments, but on repeat offenders who periodically miss their appointments, and the effect that has? What can be done to ensure that that is not repeated beyond today?
There is no overall estimate of the number of people who miss their appointments. We want to encourage people to be responsible, but we also want to make booking appointments as easy as possible by having things such as online and text booking. NHS England will shortly conduct an access review, which will look at ways of developing a coherent offer to patients in terms of how they access their practice appointments. We will therefore make things easier, and hopefully bring down the number of people who miss an appointment.
When drugs have been approved by NICE, there is an obligation to prescribe them. If the hon. Lady will write to me, I shall be able to look into this matter more closely.
I welcome the consultation on NHS pensions that was announced this week, and while I do not think that 50:50 is the ultimate solution, I welcome the invitation to present other proposals. However, given that this is causing an issue now, how quickly does the Department think that it will be able to turn the outcome of the consultation into action?