Contaminated Blood

Richard Fuller Excerpts

Thursday 15th January 2015 Commons Chamber

[Sir Edward Leigh (Gainsborough) (Con)]

I echo the right hon. Member for Knowsley (Mr Howarth) in describing this as a debt of honour. That, I think, sums up what the debate is all about. We caused this. We did not cause it personally, of course, but it was caused by the state and the national health service, so we are responsible.

I congratulate all Members who have spoken—particularly, of course, my right hon. Friend the Member for North East Bedfordshire (Alistair Burt), who has campaigned so effectively. I also pay tribute to my late friend Jim Dobbin. As has already been mentioned, his memorial service took place yesterday, and, in paying tribute to him, the Bishop of Southwark described him as an MP of causes. I know the House of Commons and politicians are often criticised, perhaps quite rightly, but I think this debate shows the House of Commons at its best. There are many MPs, like Jim, who do not necessarily see their political life as one of holding high office but who realise we are here to try to promote causes, particularly as, because of our constituency system, when we speak here we often do so because our constituents have approached us. In other political systems Members of national Parliaments are perhaps more remote.

One national politician who is not remote is the shadow Secretary of State, the right hon. Member for Leigh (Andy Burnham). We are all very grateful that he is here today given his other responsibilities, and I am working with him on another issue where people’s lives have been ruined through no fault of their own. We value his presence here today.

I have said that many of us are here today because of constituents, and I am here because of my constituent Gary Jones from Scotter, who has raised this issue with me several times. I want to share some of his thoughts with the House. First, however, may I make an apology: I am on the Panel of Chairs and quite soon I will have to go and chair a private Bill, so I may miss the winding-up speeches.

As I have said, I want to talk about the issues Gary Jones has raised and, in particular the Irish compensation scheme. Before doing so, however, I want to echo and emphasise what my hon. Friend the Member for Aldershot (Sir Gerald Howarth) said in an intervention as it makes the point very clearly. I have already said this once and I will say it again, and it will be said several times during this debate: let right be done.

We caused this, and we have to put it right. The state—or the establishment—is responsible. I do not know who is really responsible—probably no particular individual; no doubt everybody was trying their best—but there has been gross negligence over several decades, since perhaps as early as the 1940s when the viral risks associated with the blood products in question were known and patients were not informed. One of the greatest scandals in all this is that so many patients have been kept in the dark.

[Richard Fuller (Bedford) (Con)]

My hon. Friend said that this was an example of gross negligence by the state. In addition to what the Penrose inquiry will show that is specific to the contaminated blood issue, does he agree this is also an opportunity for us to set some guidelines and rules for those occasions when there are failures by the state health service on how it will deal with compensation so that we avoid a patchwork of problems similar to those that affected our constituents?

[Sir Edward Leigh]

I entirely agree, and I do not think this is just a question of money. If we attack the Government just in terms of money, we might not succeed in this campaign. It is also a question of learning lessons, and what the victims want above all is some sense of involvement in future schemes. We must learn lessons, and I am sure we are doing so.

The screening of blood donors was totally inadequate, allowing those with a history of jaundice to donate. Even in response to the rise of AIDS the Government failed to implement the best technology available at the time to render blood products safe. The results of this neglect have been appalling: the infection of over 5,000 haemophiliacs with hepatitis B and C, over 1,000 of whom were also infected with HIV from NHS blood products, resulting in 2,500 deaths. Although there has been compensation in many cases, it has been inadequate—indeed, they would claim it has been miserly. For instance, although there is a one-off payment available for hepatitis stage 1, there is no ongoing payment. All this is plainly unacceptable; I think everybody who has spoken agrees with that. It is also obvious that there must be a suitable scheme for compensation to the victims—not that any monetary amount can repair the damage that has been done.

The Irish scheme has perhaps not received as much attention as it should have done in this debate so far, and again I am quoting here from the arguments given to me by my constituent. It is not, as I am afraid some of my hon. and right hon. Friends on the Front Bench have suggested, that we want to link the UK compensation payment scheme to that which exists in Ireland. It is worth repeating that campaigners have never expressed a wish to place the Government’s funding of any compensation scheme in Irish hands. For myself, I do not suggest that the compensation should be exactly the same, but the Irish scheme is worth looking at in terms of compassion: it puts compassion first; it accepts liability; and it is substantial enough for the victims to gain closure. So I encourage Ministers to look further into the compensation scheme the Republic of Ireland has established and to see what lessons might be applicable to us here in the UK.

--- Later in debate ---

[Mike Kane (Wythenshawe and Sale East) (Lab)]

I stand in this House in the footsteps of giants. My predecessor Paul Goggins was a tireless campaigner on this issue, and his predecessor, Lord Morris of Manchester and former Member for Wythenshawe, was also a tireless campaigner on it, so I am humbled to stand before the House as their successor.

I pay tribute to the right hon. Member for North East Bedfordshire (Alistair Burt) for securing the debate and congratulate him on his work. There are days in this Chamber, particularly as we approach a general election with the cut and thrust of politics, when I do not know what we do here. Today is not one of those days. The hon. Member for Gainsborough (Sir Edward Leigh) summed it up correctly: this debate shows the House of Commons at its best.

I want to relate the tale of a few constituents of mine: Fred and Eleanor Bates and Peter Mossman. I have been working with them over the few months that I have been a Member of Parliament and we have had the full support of my right hon. Friend the Member for Leigh (Andy Burnham), for which we are grateful. Eleanor is now 60 years old. She has been married to Fred for 38 years. Fred is a haemophiliac who used to have a 5% clotting factor but now has a 0.0001% clotting factor. It is believed that this reduction is a result of the contamination. Before 1982-83, he received plasma and cryoprecipitate on demand when he had a bleed. After that, he was switched to factor VIII. In 1991, he was visited by another constituent of mine, Peter Mossman of the north-west group of the Haemophilia Society, who brought Fred a leaflet about hepatitis C. Fred visited the hospital to check this out and discovered that he did indeed have the condition. In fact, the hospital had known about his condition for almost a decade. Frightened and worried, Fred and Eleanor researched the main symptoms of hepatitis C: fatigue, sclerosis of the liver, liver cancer and ultimately death. They believe that the disease is now having an impact on Fred’s short-term memory function.

Fred worked as a weigher at C. H. Johnson on Bradnor road on the Sharston industrial estate in my constituency. In 1980, he was given a choice by his consultant: he could carry on working and face possible death within a year or retire and live longer. Fred was 31 years of age when he faced that choice. The choice was made more complicated by the fact that he and Eleanor were raising two small children. His income went from a respectable £145 a week to £45 in state benefit.

With hardly any clotting agent left, Fred now receives prophylactic treatment every other day, in the form of 1,500 units of factor VIII. It is not just the victims of this injustice that suffer; it is often their carers as well. Eleanor was unable to return to work after the kids fled the nest, because hepatitis C is an unpredictable disease. Fred can be fine at 8 am but have a bleed half an hour later and have to go back to bed. Eleanor has to dress his wounds, as well as doing the cooking and cleaning. She has felt unemployable for a numbers of years because of her home care duties.

Fred and Eleanor now have to deal with the Caxton Foundation. May I make this promise to the House? If I am ever fortunate enough to stand at either of those Dispatch Boxes, I will never hide behind the fact that we have set up a third-party organisation to pass the buck to. We should accept responsibility here in this House; this is where the buck should stop. Eleanor has described the Caxton Foundation to me as a sheer and utter waste of time; she feels as though she is begging when claiming. The system does not allow a retrospective claim. She put in for a respite holiday, but it did not come through, so she missed her holiday slot. Other issues have been identified. There are no separate forms for carers to apply for their own grants, and winter fuel payments are counted as income. The stress has ruined the lives of many carers of those who suffer from this condition.

I want to talk about some of the organisers. I mentioned Peter Mossman earlier. He is 71 years old, and he has a 5% clotting factor. He was a woodcutter, a machinist and a professional driver with Goodwin’s coaches in Manchester. Like Fred, he too faced the choice between giving up work and carrying on. He gave up work when he was 42. He has searched high and low for answers on the disease. His kids have only ever known him fighting. Working with Alf Morris, he set up the Manor House support group, and I pay tribute to him and Alf for that. He lost his sister, Margaret, recently. She was an affected carrier, and she died at the age of 63, her liver ravaged.

These campaigners believe that there should be no differentiation between stages 1 and 2 when it comes to payments. As has been mentioned, we are one of the few countries not to have adequately compensated the victims. There should be a decent one-off payment with subsequent annual payments.

[Richard Fuller]

A constituent of mine has also raised this point. Does the hon. Gentleman not find it odd that, as a result of this failure by the Government, the victims have to apply for a discretionary payment and that there is no substantial up-front payment? There seems to be a complete imbalance between right and wrong.

[Mike Kane]

I agree with the hon. Gentleman.

Many of the victims have lost the will to fight. There should be greater anger there, but they cannot deal with that anger and fight at the same time. Fred, Eleanor and Peter tell me that they will fight until they die. They have seen their stock of affected friends die horribly, and they feel that that is all they have to look forward to. They believe that it is time to admit that we made a mistake, and to allow those people to get on with their lives. Hope is real. There is no such thing as false hope. There might be false science, and there might have been false starts, but hope is real for those people. We in this Chamber today should help them to reignite that hope.

--- Later in debate ---

[Richard Fuller (Bedford) (Con)]

I shall try to restrict my speech to two minutes, because I know that we want to hear the speeches from the two Front Benchers and, of course, from my neighbour, my right hon. Friend the Member for North East Bedfordshire (Alistair Burt), who so nobly started this constructive debate, which will be a great comfort to my constituent, whose family life was devastated when she lost her husband at a young age with a very young family.

The debate has been constructive and we have heard of a number of measures that have been taken over a number of years. We also have the constructive recommendations from the all-party parliamentary group, which have featured heavily. I do not wish to sound a discordant note in this constructive debate, but I believe that despite all that there remains a suspicion to which I want to give voice. The suspicion is that all the responses from the Department of Health over the years have had to be drawn out of it and have not been freely given. The measures are often seen as a contrivance to ensure that a full answer has never been given, and people do not know why. The compensation provided is a construction of a response, but there is a belief that beneath this lies a darkness—a darkness that breeds suspicion about the root causes of all we have talked about today and about who was responsible, and about the feeling that those people remain faceless and nameless, fearing exposure for actions that may have led to what might have been a mighty, mighty wrong, and having an absence of courage to repent of those actions.

We all have to remember that it is our NHS. It does not belong to a political party or to the Department’s officials—it belongs to the people. My request to the two Front Benchers is: will they, to the extent of their powers, shine a light on this darkness and, beyond any financial consideration, provide that comfort to the hearts and memories of the victims?