Data (Use and Access) Bill [Lords]

Peter Prinsley Excerpts

2nd reading
Wednesday 12th February 2025 Commons Chamber

[Peter Prinsley (Bury St Edmunds and Stowmarket) (Lab)]

It is a pleasure to follow my medical colleague, the hon. Member for Sleaford and North Hykeham (Dr Johnson), in this debate. This is a wide-ranging Bill, but I would like to talk this afternoon about the role of data access in healthcare, and what I think is a transformative proposal for the patient passport.

NHS IT and case records are chaotic. I know about this chaos from my own clinics, where I spend—or waste—too much time looking at PDF readers; we also have dictaphones, and we even still have fax machines. Half the consultation can easily be spent opening up websites and computer programs for all sorts of different things.

The standard of information kept by different hospitals varies quite widely and IT interoperability is often very poor, so that if I transfer a patient from one hospital where I work to another hospital where I work, the other people in the hospital cannot easily work out what is going on with the patient. Sometimes we are unable to treat the patient because we are unable to access their medical record. Imagine an elderly lady lying on a trolley in a hospital corridor at 3 o’clock in the morning, unable to give a full account of her medical history. If we cannot access her file, how will we best treat her?

That is not an imaginary situation; it is an actual situation that is probably happening in our hospitals today. I therefore welcome the measures in the Bill that will standardise information and improve the flow of data between hospitals. Actually, I am pleased that West Suffolk hospital, in my constituency, has very good IT standards, and I hope the Bill will allow more hospitals around the country to follow its example.

However, I urge the Government to look further when considering reform to medical data. Here is what I think may be a transformative proposal: we should give ownership of the medical record directly to the patient. Let us make the clinicians ask the patient to see the record, and not the other way around. Nine out of 10 Britons want better access to their medical records, and we should simply listen to them. Let us create a patient passport that has all the patient’s medical data on it. It would be transformative.

People organise their lives on their phones, so let us put the passport there. We could just expand the NHS app to become a digital front door for the health service. People are happy to bank on their phones, send emails on their phones and book flights on their phones—

[Chris Bryant]

My mother-in-law is not.

[Peter Prinsley]

Well, the Minister’s mother-in-law might not be.

I do not think it is such a leap of the imagination to let everybody access their medical information in this way. As we heard from the hon. Member for North Norfolk (Steff Aquarone), who has gone for a cup of tea, other countries such as Estonia do this.

I urge us to think carefully. One record, one patient—it would simplify so much of our healthcare, and this Bill is the opportunity to do it. I was heartened to hear that my right hon. Friend the Health Secretary supports such a proposal. It will be the future of healthcare, so let us simply make it happen.