Infected Blood Compensation Scheme

Nusrat Ghani Excerpts

Wednesday 23rd October 2024 Commons Chamber

[Several hon. Members rose—]

[Madam Deputy Speaker (Ms Nusrat Ghani)]

There are many valuable contributions still to be made during the course of this debate. I just want to remind Members to be mindful, during the debate on the infected blood compensation scheme, that the contaminated blood products group litigation is still before the courts. The resolution relating to matters that are sub judice does not apply when the House is discussing legislation, as we are doing today, but I would none the less invite Members to exercise caution and avoid any unnecessary comments on active legal proceedings.

I now invite the Liberal Democrat spokesperson to speak.

--- Later in debate ---

[Mr Mark Francois (Rayleigh and Wickford) (Con)]

I am conscious of your warning about the sub judice rules, Madam Deputy Speaker, as there is ongoing litigation on this issue, but I hope and believe that nothing I say in my brief contribution will in any way overshadow the prerogative of the courts.

This has gone on for far, far too many years. I have dealt with two constituents in particular, both of whom came to my constituency surgery to explain to me as their Member of Parliament what they had gone through and how it had affected them—and it clearly had, in both cases. I hope the House will forgive me if I judge that it is not right to go through their cases in detail, but they were both extremely polite and eminently reasonable in what they were asking for, and both were deeply frustrated by how long the process had taken. I will send them both a copy of the Government’s regulations and, because they are rather complicated, a copy of the explanatory notes, which I hope they will find to be of as much use as I have. As result of this afternoon’s proceedings, I hope not just that they will be able to achieve some financial redress, to which I am certain they are absolutely morally entitled, but that they will be able to achieve some peace of mind, because it is very clear to me that both those people’s lives have been materially affected by the issue. One of them said to me, “It’s not about the money. I just want to be able to bring this to a close.” I hope that the House will understand that sentiment. If hon. Members had heard it in the way I heard it face to face, I am sure they would have been as convinced as I was.

I want to say a few brief thank yous, because, as we all know, this has been a very long and complex journey—not just for those who were affected by the scandal, but for those who have had to deal with the consequences many years later. This was not the national health service’s finest hour, and it took a great deal of campaigning by many people to get the system to put its hand up and admit that something had gone wrong—in fact, dreadfully wrong. Had it not been for the persistence of some of those individuals, we would not be having this debate this afternoon.

However, someone had to deal with the consequences. I pay tribute to two brilliant public servants: Sir Brian Langstaff and Sir Robert Francis—there were others—who have both, in their own way, had to attempt to exercise what one might call the judgment of Solomon in dealing with this extremely detailed and complex issue. They have both done their country a service.

I also commend my right hon. Friend the Member for Salisbury (John Glen) and the former right honourable Member for Horsham, who is no longer a Member of the House. When they were in government, they both attempted to deal with this very complex issue. Having had some private conversations with the former right honourable Member for Horsham, with whom I served on the Defence Committee in the previous Parliament, I know that this matter preyed on his mind and that he really tried to do his best.

My last thank you goes to the current Paymaster General, who is clearly trying to achieve a resolution as speedily as possible and who has dealt with this issue in a very empathetic manner this afternoon. I speak for two constituents, but I am sure that we all have constituents who have been affected by the scandal, and many people across the country will be grateful for the way in which he is evidently attempting to handle it. I wish him godspeed in all his endeavours. This went on for too long and affected too many people but, hopefully, at last, we can collectively begin to put this right and give those people not just redress, but some sort of peace of mind.

[Madam Deputy Speaker]

I know that a few Members who were not here for the opening speeches have just turned up. If they can make their way to the Chair, I can have a conversation with them about contributing to the debate.

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[Clive Efford]

The right hon. Gentleman would be most welcome, and I will pass on that information. I was hoping to tease someone out by saying that! It is an honour and a challenge to follow on from the excellent leadership of my right hon. Friend and colleague, the Member for Kingston upon Hull North and Cottingham (Dame Diana Johnson). She will be an extremely tough act to follow. She was forced to stand down from the role because she was appointed to the Government.

I welcome the progress that the Government are making and I welcome today’s regulations. For many, however, the victories that were celebrated when Sir Brian Langstaff made his final report and Sir Robert Francis was appointed to lead the Infected Blood Compensation Authority, were, rather than the beginning of the end, mere milestones on a path with many miles still to go. The fear among many campaigners is that the Cabinet Office, which was responsible for delay and obfuscation over decades, is now back in charge of the compensation scheme.

I know that the Minister is earnest in his wish to see the victims of this scandal given the justice they deserve, and that he understands that we are where we are because the campaigners refused to be silenced. They took on the establishment and won, and my right hon. Friend the Member for Kingston upon Hull North and Cottingham and I cheered them on and promised to deliver for them without equivocation should we get into government.

There has been progress, and we welcome today’s regulations, but for too many the euphoria has been replaced by frustration, leading to anger and a growing fear of betrayal. That stems from the fact that the campaigners feel that they are excluded from the process they brought into being. Decisions that they insisted should not be made without them are being made without the openness and candour the Government are legislating for. The Government have an excellent opportunity, ahead of that legislation, to show what candour means in public office. That is particularly true of how the tariff has been arrived at.

For the campaigners, it is like they have won the war, only to see those they vanquished put in charge of delivering the peace. There is growing unease that this is leading to the same tactics as before: delays, lack of information about how decisions are arrived at and lack of communication from the Cabinet Office. That lack of communication is causing people to look to small charitable organisations for advice, as they struggle to understand the complex compensation process. Will Ministers commit to providing support to those organisations, so that they can continue that work, as was recommended by Sir Brian Langstaff?

I understand that the Infected Blood Compensation Authority is starting to engage with the Haemophilia Society and campaigning groups about the process and technical matters, but there is an urgent need for much more engagement than has happened thus far. We are told that the Infected Blood Compensation Authority intends to settle 20 cases by the end of the year. Why only 20? How will they be selected? The victims call these the Willy Wonka golden tickets. In the meantime, while these 20 cases are completed, another 14 people are likely to die—one victim dies on average every four days.

Justice delayed is justice denied. When Sir Brian Langstaff published his interim report in April 2023, he appealed to the Government to get on with the compensation scheme, because he was alarmed that so many people were dying without receiving the justice they deserved. That makes it imperative that people, whether infected or affected, receive the interim payments without delay. Regulations for those affected by the scandal will not be published until March 2025—yet another year on from Sir Brian’s final report. Yet again, justice is delayed; yet again, victims will die without receiving compensation.

These are people who have suffered unspeakable harm: bereaved parents who lost children; bereaved children who lost parents and suffered bullying; bereaved partners who could not have families or who were advised to abort babies for fear they may have HIV; siblings who were bullied; and siblings who, under the tariff, are currently ruled out because they were over 18. There is so much more.

It is not possible to deal with these cases without understanding each individual’s circumstances and the suffering they endured through so many years. What is needed is a bespoke system that meets individuals’ needs, but that requires far more engagement than is currently happening. The lack of engagement with victims is leading to a lack of understanding about how decisions are reached and how compensation is calculated, fuelling mistrust in the process. Many victims, whether affected or infected, have lost their faith that the full extent of their suffering will be recognised through the compensation scheme. Indeed, some campaigners have concluded that their suffering will not be recognised through the compensation scheme and that they must return to court to get the compensation they deserve.

Those suffering from hep C do not understand why their experiences mean they receive different treatment from those with HIV. That requires urgent explanation. Again, the scale of the suffering needs to be looked at case by case, and there needs to be greater engagement, so that both sides understand the concerns. Why are people with hep C being offered much lower rates of compensation unless they are near death?

Similarly, the additional payments for those experimented on, of £10,000 or £15,000, have been met with widespread derision. My constituent, Mr Lee Moorey, was a pupil at Treloar school. Having read his testimony to the inquiry, I share his sentiments. Will the Minister guarantee that that will be looked at?

We need to remind ourselves of the scale of the scandal and just how many people have died without justice. All along, people have had to fight to get justice, but they will only believe in justice if they have faith in the process. That requires the decisions to be made about them to be made with them. We have to restore their faith in the process. I understand that Sir Brian Langstaff has kept his inquiry open so that he can keep a watching brief. It would be a shame if the Chancellor, the Paymaster General or even the Prime Minister found themselves summoned before him.

Finally, my right hon. Friend promised that there will be a full debate in Government time on the scandal. When will that take place?

[Madam Deputy Speaker (Ms Nusrat Ghani)]

I call the spokesperson for the Scottish National party.

--- Later in debate ---

[Alison Bennett]

I do agree. My hon. Friend is right that ensuring that compensation comes forward is of the utmost importance. I am sure it will be coming forward, but the urgency with which it does so is the key point here.

I end by emphasising the anguish that Graham and countless other victims still hold and carry with them every day. It is deep-seated, and it will not go away until the matter is settled and the payments are concluded. Urgency is now required to right this 40-year wrong.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

I call Katie White to make her maiden speech.

[Katie White (Leeds North West) (Lab)]

It is an honour to make my maiden speech, particularly on this critically important debate on the infected blood scandal. I ask the House to allow me a temporary shift in tone, so that I can celebrate the community that sent me here.

Like many hon. Members’ constituencies, the constituency I have the privilege to represent, Leeds North West, is a new seat with a long history. I am sure most Members know where Leeds is, but I describe it as being right at the heart of the UK. I am deeply grateful to the thousands of voters who have put their trust in me, and as I said on election night, regardless of how they voted, I am determined to represent and serve our community in this place.

I begin by paying tribute to my immediate predecessors, both of whom are still Members of this House. I thank the right hon. Member for Daventry (Stuart Andrew) for being gracious and friendly and for his commitment to our community, especially Guiseley, and I thank my hon. Friend the Member for Leeds Central and Headingley (Alex Sobel) and his fantastic team for their commitment to our community and to tackling climate change. I also pay tribute to those who came before: Greg Mulholland, Paul Truswell and the late Harold Best, who all have a continued presence in the constituency. Those esteemed gentlemen have all fought for our communities, and I am honoured to stand on their shoulders, but I say “gentlemen” for good reason: I am proud to be the first woman ever to represent Leeds North West, the place where I was born and raised, as were my parents before me. Seeing more women elected to Parliament than ever before matters. It matters to the women and girls across our communities—to Alice in Otley, Navdeeb in Adel and Chloe in Horsforth. We have not had enough female MPs in my home city, but we are making up for lost time. Leeds now boasts the first female Chancellor ever, so there is progress, friends, progress.

Leeds North West has an incredible history. The stunning Norman church in Adel dates back to the 12th century; it is where my parents were married, where I was christened, and where my grandfather lies at rest. Further west is Otley Chevin. Members may not yet have had the chance to visit Otley Chevin, but we would not be here without it. The stone from the Chevin provided the foundations for this very Parliament when it was rebuilt in the 1840s. It should not be a surprise that it is Yorkshire that keeps this House grounded.

In Leeds North West, our feet are always planted firmly on that bedrock, but our eyes remain on the horizon, ready to embrace the future. Our constituency is a vibrant hub of entrepreneurship and creativity, a legacy that continues to thrive today. Abraham Moon in Guiseley, a fabric company established in 1837, still supplies international fashion houses today, while EMIS—which began in the 1980s in Horsforth—now flourishes in beautiful Rawdon as the leading provider of data support to the NHS. We are home to West Yorkshire’s only airport, Leeds Bradford, and I was pleased to meet with Jet2’s chief executive officer Steve just this week to discuss how the aviation sector can innovate to decarbonise. Should Members wish to stop for a bite to eat, they should look no further than the thriving bars and restaurants of vibrant Horsforth. It is a constituency bursting with joyful community fairs and fetes, from Guiseley festival to Yeadon carnival and from Rawdon summer gala to the Arthington and Bramhope shows —that last one comes complete with a human fruit machine.

There is no stronger pride than Yorkshire pride, and our community spirit is a great source of strength. However, as in many places, people are feeling overwhelmed and concerned about their future and that of their children and grandchildren. Many of the people I have met on the doorstep also feel let down—let down by politicians and by the institutions they have put their trust in over decades. The infected blood scandal is the most extreme and harrowing example of such systematic failure: people placed their trust in doctors and the Government to protect them, and that trust was betrayed. I am proud that this Government and this Prime Minister will introduce a duty of candour law to prevent future cover-ups like the infected blood and Post Office scandals.

I also share deep concerns about the other great challenges facing our community. Mental health figures are horrifying. The Global Mind Project has revealed that the UK has the highest rate of mental distress in the world and ranks second worst in overall mental health. People are working harder, yet getting unhealthier and unhappier, and of course, the climate and nature crisis looms.

We need things to change; the country voted for change, and it is change that propelled me into politics. My journey began with the climate crisis. We know that if we get it wrong, we face disaster—particularly for the most vulnerable among us—but if we get it right, we unlock enormous opportunities for our society. In 2003, I joined the local Leeds branch of Friends of the Earth and launched a campaign for the UK’s first climate change Bill. Everyone told me that it was impossible; that it was too ambitious and too radical. There was no way that the Treasury would ever allow a carbon budget—but, friends, they did. We turned that campaign into the fourth most supported campaign in Parliament’s history, with cross-party backing from Members across the House. The last Labour Government turned that Bill into an Act in 2008, under my right hon. Friend the Member for Doncaster North (Ed Miliband), whom I am honoured to be working with again. Under this Act, Britain decarbonised faster than any other rich country. This Act has now become a global benchmark adopted by other nations—and that, I say to my hon. Friends, is what global leadership looks like.

Why am I sharing this? It is because politics must be about real change or it is about nothing. I want to serve our community, and improve our schools, healthcare and public services. When I think about change, I think about my grandmother, Marjorie Simms. She challenged the status quo. She lived in Horsforth in the1950s. There were not that many women driving then, but Marjorie did. There were not that many women wearing trousers, but Marjorie did. Majorie developed breast cancer, and most parents in the 1950s avoided talking to their children, but Marjorie showed them her mastectomy so they could understand. She died at 43, the age I entered Parliament. Majorie did things differently and her spirit lives on in me. We have seen too much promise and too little delivery in recent years—endless debates about challenges, but a lack of energy for real solutions. Politics should be about action, not just words.

The seeds of change can be seen within our communities. As a Government, our role is to water them and create the conditions for them to flourish. Leeds North West is willing to play its role in full. We have the leaders, we have the ideas and we have the “get stuff done” attitude that personifies Yorkshire—like the students I met recently at Ralph Thoresby and Green Meadows or the cadets in my constituency, who are ambitious about the difference we can make; like the Horsforth shed set up a couple of years ago by ex-teachers based on the national men’s shed model and supporting male mental health, but expanded to include many other vulnerable members of the community; like those from Otley 2030 who decided they wanted to be a beacon of hope and created a living laboratory in the town to create climate friendly and sustainable solutions where people and nature thrive; and like Brian who, after a death in Morrisons car park in Guiseley, set up defibrillators all over the community so that lifesaving equipment is on hand and there is a network of community activists servicing them. Let us not forget the gold medal Olympians in our community—the Brownlee brothers and the cyclist Tom Pidcock—who inspire us all with their dedication and achievements. We are indeed a hotbed of world-class talent.

People in Leeds North West do not wait for change to come to them; they make it happen. They are the doers and the problem solvers, and I will play my role in that same way. I will champion the green agenda by focusing on practical solutions that carve a British path towards a successful green transition. We will leverage our strengths, whether it is world-leading research, supporting our best business minds, or unlocking the public and private investment needed to turbocharge a green economy. I will support the health of our community—mental health, physical health, community health—and I want to support our entrepreneurs and creativity to grow our region. I promise to be a ferocious champion for my community, my beloved Yorkshire and our country, and I will do it with joy. It may recently have become more fashionable across the pond, but I have been measuring with joy for years, and there is always space for a little more joy.

Finally, I promise to listen, learn and reflect. No one has all the answers, but all of us have some of them. I commit to working constructively and collectively. I will endeavour to arrive with curiosity and non-judgment, because if we want to change the way we do things, we must start in this moment, in this place and with these actions.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

Having been a student at Leeds, I look forward to an invitation.