Contaminated Blood

Mims Davies Excerpts

Tuesday 11th July 2017 Commons Chamber

[Mims Davies (Eastleigh) (Con)]

I congratulate the hon. Member for Kingston upon Hull North (Diana Johnson) on securing this important debate. I was in the Chamber when the former Member for Leigh raised these very concerning issues, which need to be looked at in the inquiry. That struck a chord with me, so I am delighted to be back in the Chamber to see this debate.

Like many Members on both sides of the House, I have been contacted by constituents who have told me about their experiences and about how contaminated blood has affected them, their family life and their friends. Every so often as a constituency MP, we meet the saddest constituents who tell us the most heartbreaking stories. We sit there week in, week out, and those stories resonate with us, but they are not stories for the victims—they are daily life. These are wrecked lives, but the people have done nothing wrong of their own accord—it is pure injustice.

It is clear that the contaminated blood products that were used decades ago have continued daily to affect people’s lives in a devastating and destructive way. When I have heard the stories of how people have been affected, they have lived with me, and I can understand the campaigning that has been done by Members on both sides of the House. I am therefore delighted to talk about my constituents’ experiences.

Today, we finally recognise what has happened, and the Government are ready to tackle this injustice. I am delighted that that is being done in the name of the victims and their families, who did nothing to bring this on themselves.

After I became the MP for Eastleigh in May 2015, I met one of my constituents from Bishopstoke, Gary Webster, who has been left coping with HIV, hepatitis C and possibly variant Creutzfeldt-Jakob disease as a result of the NHS blood products that were used during a routine procedure in the 1980s to treat his haemophilia.

[Dr Whitford]

It will be important that the inquiry goes far enough back. The decision to heat-treat albumin for hepatitis B was made in the mid-60s, but we did not treat concentrates. We need to make sure that all these conditions are included.

[Mims Davies]

I thank the hon. Lady for that input. It is absolutely right that she, like all our constituents, brings her experience to this. We need to make sure that we do go back far enough.

Last year, Gary attended a debate we had here once again to discuss this heartbreaking issue. He attended a specialist school in Alton, where he was one of many haemophiliacs. He told me that he kept in contact with around 100 other students, all of whom had been affected by contaminated blood, although only around 20 were still alive. These students all contracted illnesses through blood products they had received because of their haemophilia. Tragically, Gary’s story is similar to that of thousands of others across the country.

Other constituents, some of whom wish not to be named, have had grave financial burdens placed on them and their families as a result of the diseases they contracted from contaminated blood, which have affected their lives. It is only right that we support those whose lives have been significantly affected by these contaminated products. I am therefore pleased to hear about the additional support that the Government will provide to those who have been roundly affected. I am particularly pleased that the annual payments for those with hepatitis stage 2 will increase to £15,500, and then to £18,500 in 2018-19. Payments to those co-infected with HIV and hepatitis stage 2 will also go up, to £36,500 by 2018-19. I am pleased to see that these payments will be linked to CPI.

That will help to support all our constituents we know have been affected. I know from speaking to Gary and others about the real hardship and challenges these conditions have brought to their lives, and about the difficulty they face in working, and in bringing up and supporting their families in the way they would have liked had they not been affected.

Almost £400 million has been paid out to those affected by five different organisations, which have been funded by the Department of Health. I am delighted to hear about the £125 million the Government have committed as additional funding for the reformed scheme, which will double the Department’s annual spend on the scheme over the next five years. That money must go to the people who really need it—that should absolutely be noted—because the daily-life decisions they have made have been really difficult because of their financial impact.

[Kelvin Hopkins (Luton North) (Lab)]

The hon. Lady talks about a reformed scheme, and some people have fallen outside the existing scheme. My constituent Sharon Moore, who suffered a transfusion of contaminated blood, has been told that she is outside the criteria. Would the hon. Lady urge the Government to look at cases again under the new scheme to make sure that people are not missed and not excluded unnecessarily?

[Mims Davies]

I thank the hon. Gentleman for bringing that point forward. There is nothing more frustrating for an MP than hearing that people have just fallen outside the bracket. That is the worst place to be, and the scope of the inquiry will perhaps give us the chance to look at that.

This Government have done significantly more than other Governments to protect those who have been affected. There is a commitment to ensure that we pull the five fairly complex schemes together and transfer them into a new scheme in 2017. These people have complicated and difficult lives anyway, and it is only right that we make it easier for victims to get the support they need.

I am so pleased that the Prime Minister made her announcement this morning and that there will be a full and wide-ranging inquiry into the tragedy. I am pleased that the inquiry will be drawn together by the victims, to support and suit the victims. I am pleased that they will finally have a voice—the strongest voice possible—so that they can get the most and the fullest answers they can, which is what they deserve. It is only right that this consultation will be held with those affected by this terrible injustice, so that their families also have a voice.

I hope that the inquiry will provide answers for those who are looking for them. In particular, there are concerns about criminality—when I heard that issue raised in this House, it was extremely concerning. We now have a vehicle to get people’s voices heard, and if there is anything that should be going through the courts, we can do something about that.

With this inquiry, we have an opportunity to make sure that no voice is lost, and that the victims and their families get the right inquiry, the fullest compensation and the answers they rightly deserve.

[Several hon. Members rose—]

Adult Social Care Funding

Mims Davies Excerpts

Thursday 6th July 2017 Commons Chamber

[Steve Brine]

The Secretary of State has been absolutely clear, including at oral questions earlier this week, that we see the migrant workforce as critical to the NHS, by which we mean in-patient care as well as the social care system—we want to see those protected.

[Mims Davies (Eastleigh) (Con)]

Adult social care funding has been raised with me across Eastleigh. Delayed discharge is also being prioritised by the clinical commissioning group, but Eastleigh’s Lib Dems on Hampshire County Council chose back in February not to support a further £27 million for the county’s social care budget. Will the Minister highlight the fact that some parties talk about action but simply fail to make a difference locally?

[Steve Brine]

My hon. Friend is a doughty champion for her Eastleigh constituency, and I also represent part of the borough. What she says surprises me, but I am sure she will raise it in the national debate in the months leading up to next May’s borough council elections.

Health and Social Care Budgets

Mims Davies Excerpts

Tuesday 14th March 2017 Westminster Hall

[Peter Heaton-Jones (North Devon) (Con)]

It is a pleasure to serve under your chairmanship, Mr Bailey. I congratulate the hon. Member for Hackney South and Shoreditch (Meg Hillier) on securing this important debate. It will not surprise colleagues to hear that I am unashamedly here to speak up for Devon, and North Devon in particular. We are part of the south-west, and it is significant, looking around the Chamber, to see so many Members from the south-west from all sides. It is because we are concerned that rural areas in the south-west are not getting our fair share in the distribution of available funds.

I join my hon. Friend the Member for Totnes (Dr Wollaston) in unequivocally welcoming the extra money that the Government have put into health and social care. The £10 billion extra for the NHS over this Parliament and the £2 billion for social care announced in the Budget are extremely welcome, as are the extra revenue-raising powers that have been given to local authorities for social care, and I thank the Minister and his team for those.

However, we need our fair share in areas such as Devon and the south-west. As has been mentioned by the right hon. Member for Exeter (Mr Bradshaw), we face a sustainability and transformation plan that is causing huge concern among my residents in North Devon and among those of other colleagues here from Devon constituencies. There are particular concerns about the future of some acute services at North Devon district hospital. I have said before and I will say again that any cuts to services at that hospital would be absolutely unacceptable. That is because of what I describe as the three Ds: distances, demographics and deprivation. I will not rehearse the arguments here; the Minister knows them well. He has been kind enough to hear me out on many occasions, as have the Secretary of State and many others. Those three factors in Devon and in North Devon in particular mean that we have to look at a fairer way of funding our health service so that we get the services we need. I repeat that any cuts to services at North Devon District Hospital would be absolutely unacceptable.

The holy grail of social care is the integration of the health and social care systems, which many colleagues have mentioned. I want to pay tribute to the Northern Devon Healthcare NHS Trust, which does better than most in working with its social care partners to ensure that packages of care are in place when people are able to move out of hospital. I welcome the hard work of all the people who work in the North Devon services to achieve that.

[Mims Davies (Eastleigh) (Con)]

Will my hon. Friend give way?

[Peter Heaton-Jones]

I will not. The Chair was clear about the time limits; I apologise to my hon. Friend.

I will end by saying we must remember the three Ds. Let us work together across parties to find a long-term solution for the fairer funding of health and social care.

Mental Health and NHS Performance

Mims Davies Excerpts

Monday 9th January 2017 Commons Chamber

[Mr Hunt]

First, of course what happened in that situation is totally unacceptable, but the hon. Lady makes a mistake to continually bring this back to funding, as it is also about demand pressures and models of care. Let me reassure her about the extra funding that has gone into ambulance services. We have about 200 more ambulances and about 2,000 more paramedics, and every day the ambulance service is doing about 3,400 more blue-light calls than it was six years ago. Significant investment has been made, but clearly more needs to happen.

[Mims Davies (Eastleigh) (Con)]

The number of mental health patients in police cells is, rightly, down by 80%. People have bravely come to my surgery to talk about when they and their families have been struggling with mental health provision for those between the ages of 18 and 24. I pay tribute to Solent Mind and Southern Health, which are doing their level best to deal with this issue. One issue directly affecting that age group is the tier system, and people not being “sick enough” and not being sure where they should be going. Will the Secretary of State please confirm that he will focus on recruiting specialists in this area, because it is not about funding in my local clinical commissioning group—it is about finding the people to help those in need?

Coeliac Disease and Prescriptions

Mims Davies Excerpts

Tuesday 1st November 2016 Westminster Hall

[Mr Jones]

The right hon. Gentleman raises a serious point about the life-changing effects that coeliac disease can have. I was only diagnosed by accident, in my 30s; my mother was not diagnosed until she was over 70. Early diagnosis is important, but it is not uncommon for people to live a long time without one being made.

The Health and Social Care Act 2012 included a duty on CCGs to have regard for National Institute for Health and Care Excellence quality standards, but NICE guidance on prescribing gluten-free food for the management of coeliac disease has only recently been published. It says:

“Gluten-free products are more expensive and are usually only available from larger retailers, making access more difficult for people on low incomes or with limited mobility. As coeliac disease can affect more than one member of a family it can also be an additional burden on the family budget”—

as the hon. Member for Aldershot (Sir Gerald Howarth) said.

“To address this, healthcare professionals should help people who may need support to find suitable gluten-free food products on prescription to enable them to maintain a gluten-free diet.”

[Mims Davies (Eastleigh) (Con)]

I declare an interest, having been diagnosed in my late 20s. My cousin and all my second cousins are exactly the same. In fact, at university I was diagnosed with ME because I was so unwell and unable to work at various points.

This debate is an opportunity also to talk about the low incomes and limited mobility that can affect people’s access to these basic items. We must also make a plea through Coeliac UK to supermarkets to ensure that what they provide, which is very expensive, is of better nutritional quality, with lower levels of salt and fat. Although these foods are gluten-free, they might be full of some awful stuff as well.

[Mr Jones]

The hon. Lady raises an interesting point, but I assure her that the products available today are completely different from when I was first diagnosed. The bread then was like cardboard, and today it is very much different.

There is a general duty for GPs to prescribe treatments for health conditions via the FP10 prescribing system where treatment is available, and in the case of coeliac disease that is a gluten-free diet. There is also a duty in legislation for CCGs to reduce inequalities with respect to patient access to services and outcomes, but because of the lack of explicit recommendations on prescribing from NICE, CCGs are being given a fairly free hand to make decisions that run contrary to reducing health inequalities.

Hormone Pregnancy Tests

Mims Davies Excerpts

Thursday 13th October 2016 Commons Chamber

[Emma Reynolds (Wolverhampton North East) (Lab)]

I pay tribute to my hon. Friend the Member for Bolton South East (Yasmin Qureshi) for securing this debate, and for championing in Parliament the concerns of families who have been affected by hormone pregnancy tests. I also pay tribute to all those families who have for years been involved in the Association for Children Damaged by Hormone Pregnancy Tests.

One such family lives in my constituency. Stephen Fensome is a constituent of mine. His mother went to the GP early on in her pregnancy to see if she was pregnant, as any woman would. She was given Primodos. Like any of us, she trusted her doctor, and her doctor, in turn, trusted the advice he had been given. It was only months later when Stephen was born, in 1967, that his parents discovered that he was severely brain-damaged, would suffer a severe form of epilepsy all his life, which would get worse with age, and that he would suffer from daily seizures, often in the middle of the night.

I have met Stephen. He came to my surgery with his parents. He requires 24-hour care. His parents, now in their mid and late 70s, have cared for him all his life, and they love him, just as they love their two healthy daughters, but they struggle to find respite because of the severity of his seizures. It was years before the family discovered that the medication that Pat had been given was equivalent to taking 40 contraceptive pills in one dosage. One does not have to be a medical professional for that to ring alarm bells.

It also became apparent that, as early as the 1960s, and into the 1970s, research carried out warned of the toxic and, in some cases, lethal impact of the drug. Indeed, in 1975, GPs were sent advice not to prescribe it any more, but it was several more years before the drug was withdrawn from the market. Research suggests that it is likely that many women who took the medication suffered miscarriage or stillbirth. Babies who survived this toxic medication were severely affected by abnormalities or disabilities.

I was pleased to learn, as was the Fensome family, that the Minister’s predecessor, the hon. Member for Mid Norfolk (George Freeman), agreed to the establishment of an inquiry. However, as the Minister has heard from all the speakers in this debate, the families have serious, deep and genuine concerns, and I understand that they do not have confidence in this inquiry.

[Mims Davies (Eastleigh) (Con)]

I would like to put on record my thanks to Stephen’s family, including Charlotte, who lives in West End in my constituency. She came to see me to thank the all-party parliamentary group on oral hormone pregnancy tests for its work on the issue, and to explain how her care for Stephen carries on, as her parents age.

[Emma Reynolds]

I thank the hon. Lady for that intervention. Charlotte has been a tireless campaigner for the truth of what happened in the 1960s and 1970s.

I hope that when the Minister winds up, he will answer a number of questions about the inquiry. As my hon. Friend the Member for Garston and Halewood (Maria Eagle) said, we want him to get a grip on the inquiry. Will he guarantee that all the relevant evidence will be put before the inquiry? As the hon. Member for Livingston (Hannah Bardell) suggested, there is great concern that evidence is being cherry-picked. Will he guarantee that the inquiry is independent, full and transparent, and will he give a commitment today, to the House and the families present, that he will do everything in his power to ensure that the inquiry gets to the bottom of what happened, including: why evidence in the 1960s of the harmful—indeed devastating—impact of the drug was ignored for so long; why it continued to be prescribed; why there seemed to be a medical cover-up; why it took so long to be banned; and what was behind the continuous regulatory failure?

The family whom I represent would, although they might not admit it, of course like more help caring for Stephen, as any family would, but they are not driven by a desire for compensation. They are driven by a long and anguished search for truth and justice. They do not want a whitewash. They want to have confidence in the inquiry, but regrettably they do not have it. I urge the Minister to ensure that they get the truth, and justice. Surely they deserve nothing less.

NHS Sustainability and Transformation Plans

Mims Davies Excerpts

Wednesday 14th September 2016 Commons Chamber

[Maria Caulfield (Lewes) (Con)]

Before I start, I wish to declare an interest as a registered nurse. I welcome this debate this afternoon as STPs are a really important issue and, as many Members have said, they have a huge potential to transform care at a local level, bringing in social care and third sector organisations. They represent a huge opportunity, and not one that we want to get wrong.

However, because many of these 44 STPs have not shared or consulted on their plans, there is a suspicion, rightly or wrongly, that they are an excuse to bring in cuts or to bridge financial deficits. I would welcome the Minister’s thoughts on this, and a signal that consultation will happen. That consultation is not happening at the moment, which is part of the problem. It enables those who want to perpetrate this myth and this fear that this is all about cuts to have some breathing space.

My area, which falls into the Sussex and East Surrey STP, has not published its STP. Although it makes great claims to be working with hospitals, clinical commissioning groups, local councils, GPs and HealthWatch, no one I know, and certainly no local MPs, has been involved in discussions about the process. I am very disappointed that some of our key community groups in Lewes and Seaford, such as our senior forums, Families for Autism and many other groups have not been consulted. It is right that STPs should submit their plans to NHS England to ensure that there is a co-ordinated approach across the country, but it is vital that there is time for consultation. I am worried that there is only a short period after October for that to happen.

However, what I say to the doom-mongers who are trying to instil fear into my constituents is that if current investment is anything to go on, I am optimistic about what our STP will look like. My constituency does not have a hospital. We depend on either the Royal Sussex county hospital in Brighton or Eastbourne district general hospital. We are seeing huge investment by this Government: £480 million on a new redevelopment of the Royal Sussex county hospital; £58 million promised for Eastbourne district general hospital; and a new multi-million pound radiotherapy suite at Eastbourne. Only last year, a new dialysis unit was opened in Polegate, which means that patients do not have to travel to Brighton three times a week for dialysis. Working with my hon. Friend the Member for Eastbourne (Caroline Ansell), we have been involved in developing a new state-of-the-art GP practice surgery in Eastbourne. There is a new Macmillan cancer centre in Sussex, and I could go on. There has been huge investment and new services that provide local treatment for local patients.

With all this investment, why are local people so worried about cuts? Despite an increase of £10 billion a year in funding, the NHS has to deliver £22 billion of savings. My constituents know that there is a 6% a year increase in demand for services, that more treatments are available that are costly and that there are more conditions that can be treated. There are concerns that we have not tackled wastage in the NHS, such as in the case of the chief executive of the troubled Southern mental health trust who was offered £240,000 for a new job instead of being investigated for the many hundreds of deaths that happened while she was in her previous role.

[Mims Davies (Eastleigh) (Con)]

To be efficient and effective, the NHS must stop these non-jobs. The creation of highly paid advisory roles is not helpful in letting patients be heard in this process, yet executives are heard, in terms of being given new offices and new pay cheques.

[Maria Caulfield]

Absolutely, and £240,000—

Carers

Mims Davies Excerpts

Thursday 9th June 2016 Commons Chamber

[Mims Davies (Eastleigh) (Con)]

I beg to move,

That this House has considered carers.

Imagine a day when 6.5 million people did not turn up to work as expected. They had a duvet day. They went to the beach. They subscribed to Netflix. They did some beauty therapy and some shopping therapy. They went drinking and they had fun—they might have taken a trip to the beach, or had a day at a theme park. What if those 6.5 million people made no arrangements for the care of their loved ones? What if those massive numbers of people simply took a holiday and did not arrange any cover? How many vulnerable people would go unbathed and unfed? How many would be unable to get out of bed to go to the loo? There would be no pills, no jabs, no dressings administered and no GP appointments attended. There would be nobody caring for the people who cannot do it for themselves. How frightening, gravely concerning and inhumane would that be? How many people would die? How many people’s conditions would deteriorate? How would our emergency services cope? Who would pick up the slack if those 6 million carers did not turn up for work one day?

In this country, 1.3 million provide more than 50 hours of unpaid care a week. The care they provide is worth £132 billion a year, which is what the NHS costs us. There are 150,000 doctors in the NHS and 87,000 soldiers in our Army. In Eastleigh, there are more than 10,000 carers, and the same number in Chippenham and Sedgefield. There are more than 8,000 in Stirling and more than 12,000 in North Antrim. An army of carers turns up every day—day in, day out.

[Mary Robinson (Cheadle) (Con)]

I congratulate my hon. Friend on securing this debate. She is right to highlight the financial value of carers. Does she agree that the personal value should also be considered? According to Carers UK, three out of four carers feel that their role is not understood in their community. Does she agree that community support is vital in helping to build carer-friendly communities?

[Mims Davies]

I absolutely agree with my hon. Friend, and I am delighted to have secured this debate today to highlight these issues. I know that she works tirelessly in her community to support carers and the people who need them. I agree that there is a human cost and an economic cost to caring.

I thank the Backbench Business Committee for being so supportive in ensuring that this important topic gets time in the Chamber. I hope that this will be a wide-ranging debate. I am also grateful to the Government and to the Minister for Community and Social Care, who has been very supportive of my application to hold the debate this week, which is carers week.

We know the value of carers, but do we really understand what is involved? How do you become a carer? A loved one might get older or become disabled. A child might be born with challenges. Someone might experience an unexpected change in their health. There might be a car accident or an incident at work. An operation could go wrong. A mental health challenge could arise, resulting in the need for care. All of a sudden, you become someone who needs to be a carer. How do you manage it?

As my hon. Friend the Member for Cheadle (Mary Robinson) has suggested, long-term caring can have a financial and emotional effect on families. It can have an impact on relationships. You lose friends. You lose leisure time. You also lose your freedom. Relationships between husbands and wives change. You become a carer rather than a lover or a friend. The impact of the need for mum or dad or a child to come first means a big change for families. You can develop a fear of the phone. You could be at work, out shopping, doing the chores or walking the dog when you get a phone call to say that something has happened on your caring watch. It is worrying for you as a carer when the phone rings. You are mindful of what damage could be done while you are not there.

Carers week represents an important collaboration by Carers UK, Age UK, the Carers Trust, Independent Age, Macmillan Cancer Support, the Motor Neurone Disease Association and the MS Society. The focus this year is on building carer-friendly communities, and that is why I have tried in my opening remarks to remind people that someone in their lives is taking on the extra responsibility of being a carer. How many hidden carers do Members have in their constituency? Who do we know who is taking on that role? This debate gives us a chance to highlight the need to ensure that all our communities are aware of the work that unpaid carers do. Local GPs should understand the restraints a carer might face—I am aware that GPs themselves face many pressures—and employers should be spearheading flexible working and educating their own organisations to support carers.

[Jeremy Lefroy (Stafford) (Con)]

I congratulate my hon. Friend on securing this vital debate. Does she agree that some of the hidden carers are young people aged 12, 13 or 14? I have met some of them from Staffordshire and they do the most amazing work. They need our support.

[Mims Davies]

I absolutely agree with my hon. Friend. I shall go on to discuss the importance of young carers in a moment. More than 700,000 of the 6 million carers in this country are young carers who are taking on at a tender age all the burdens that I have described. This has an impact on their education and their opportunities. Our schools should show understanding and foster an environment in which young people can be carers. They should forge an appreciation of caring in our ageing society. Three in every four carers do not feel that their caring role is understood or valued by their community. It is incredible that we have so much more progress to make before we can live in a truly carer-friendly Britain. I believe that we are now at the start.

As I have said, more than 6 million people in England provide unpaid care, with 1.3 million providing more than 50 hours a week. In my constituency, there are more than 10,000 unpaid carers. We have an army of carers quietly working away looking after their loved ones across this country, and they do it for humane reasons. We do not do enough to support and recognise them. Locally, the loss of respite has been a great cause for concern. Respite offers carers freedom and time to regroup, and a lack of it can be a great concern. Alternatively, the wrong type of respite might be offered or it might be poorly managed. I have heard about such experiences in my constituency surgery feedback.

I thank the volunteers in my constituency who support our carers. The One Community brings together many groups to support each other, including the Age Concern centre, Dementia Friends, the Alzheimer’s group and all the people who help carers by driving their loved ones to hospital or to the GP.

I also want to say thank you to everyone in my constituency who runs a lunch club or a social club, all of which provide important opportunities for social contact.

A recent Carers UK report highlighted the fact that many carers are struggling. Most of us will have to care for someone at some point in our lives, and we want to be able to do that. Three in every five people become a carer at some point. Members of this House and of the other place, and our staff, are carers too.

In leading this debate, I should declare an interest. I was a carer, although I did not realise it. I was a hidden carer. We are nothing if we do not bring our own experiences to bear in our work in the House. I was a “sandwich carer”—that is, someone with small children and older, ill parents. We became so friendly with the local ambulance service that we were on first name terms, and I thank them all for the kindness they showed me and my family. My dad was affected by an incident at work and was cared for by my mother for more than 25 years. That had a massive financial impact on me as I grew up and on our family. And when dad was gone, guess what, mum needed looking after too, because when you are looking after someone you often forget to look after yourself. People can go downhill quite quickly in those circumstances.

I found myself muddling along looking after small children, going to GP surgeries and getting mum up to London, where we struggled on the escalators and on the tube to get to vital hospital appointments. I did not realise that that was an ongoing role for me. I gave up my job and threw myself into it. I remember the phone calls. One came when I was about to go on air at a radio station just before 6 o’clock in the morning. Dad was unresponsive. There had been a problem with his insulin. Luckily, mum was awake because she was going to care for my children, covering for me while I was at work. She was caring for me, I was caring for her, and we were all caring for dad. When the phone rang, I had to drop everything and get there. For me, that was a snapshot of what people are doing day in, day out, and year in, year out. There is no break. If someone is lucky to get one, that is great, but it is still your watch even when they are not with you—are they in the right place?

A particular story that comes to mind was when my dad developed glaucoma as a result of the diabetes that was brought on by the head injury. He was given respite, but at that point he had not told people that he was losing his sight. He was in a respite centre and got lost going to the loo in the middle of the night. He got in the wrong lift and was wandering around a strange place. He was over 70, frightened and concerned though he was meant to be in a safe place. That story meant that no further respite was taken, meaning no further breaks.

I want to move on from my experiences, but please remember that all of us will be doing this. There are people in the House who do it already. I hope that we can recognise and understand the issue.

[Sir Peter Bottomley (Worthing West) (Con)]

Will my hon. Friend allow me to add that each of our offices has caseworkers to whom we should pay tribute for their dedication in trying to help carers and others? That is only one part of carers week, but it is one that should always be remembered. We are grateful to them.

[Mims Davies]

I absolutely agree with my hon. Friend. My caseworkers have been into the community, meeting constituents who are unable to come to surgeries or drop-ins. They have been to refuges to see women with difficult disability issues. They are prepared for anything and we would be nowhere without them.

Today’s debate will allow us to realise that caring will only increase in importance. With an ageing population and advances in medical science, we are seeing a steady increase in those who need care and those who are willing and able to provide it. Since 2001, the carer population has grown by a staggering 16.5%. There is a strong economic case for doing more for our carers. The economic value of the contribution made by 6 million carers is £132 billion a year, which is nearly equal to the UK’s total health spend.

As the number of young carers grows to over 700,000, perhaps we need a national day to recognise them and to highlight and support what they do. They look after family members who are physically ill, mentally ill, disabled or perhaps even misusing substances. These young children miss out on many normal childhood experiences that they should be taking part in. Young carers can sometimes be isolated and bullied owing to the pressures they face at home.

[Mark Tami (Alyn and Deeside) (Lab)]

Does the hon. Lady agree that many such carers are hidden and scared of coming forward to seek help? They are worried that they might end up in care themselves because their parents, or their parent, are unable to look after them.

[Mims Davies]

I thank the hon. Gentleman for that point. I absolutely agree. Pointing out that there are difficulties at home can be a frightening experience, and young carers may wonder what it will mean for them. It may feel better to say nothing, but that is a frightening place in which to be.

Young carers often miss school days. When they become young adults, they are more likely to drop out of college or be unable to head to university. That is not good enough after all they have put into their families and given the impact on their lives. They need support when helping their loved ones. They display real human decency at such a young age and suffer as a result. We should be nurturing, supporting and applauding our young carers.

The vast majority of carers are of working age. Many of them want to work, and 3 million people juggle full or part-time work with their caring duties. At the House of Commons carers event this week, I spoke to carers who are juggling their desire to do it all and who are not dropping the ball even though their health is often suffering. They are sometimes aware that they are able to care for their loved ones only for a limited time: they need to stay in the workplace for financial reasons. It is often not a choice; it is forced.

It is bad for companies if they lose our carers because the carers feel they have no choice but to walk out the door, which is what I did. If I was not in this place, I would now be without any caring responsibilities—apart from the two small children who do not seem to have been adopted yet, so I have to remember to look after them! I would be looking for a job and would have been out of the workplace for some time.

[Michelle Donelan (Chippenham) (Con)]

I commend my hon. Friend for securing this debate today. Does she agree that carers contribute a great wealth of experience and other skill sets to employers that non-carers perhaps cannot?

[Mims Davies]

Absolutely. Carers have a can-do attitude that they bring to the workplace. If I was rewriting my CV, I would hope to put that on there.

It is bad for carers to fall out of the workplace. When asked about their experiences, the results were astonishing. Over a third of carers felt that their employer simply did not understand their caring role, and a third said that their employer did not have policies in place to support them. Flexible working is a key support mechanism to help carers to do their valuable work. Some progress has been made in supporting flexible or agile working. A limited right to request flexible working was introduced in 2002, and I am pleased that the Children and Families Act 2014 extended that to all employees after 26 weeks. However, given the pressures that carers face, that is not long term enough. The Government need to look to do more. The new legal right also paves the way for a possible culture shift in flexible working, and I want employers to take up the mantle.

It is deeply worrying that there seems to be a strong gender bias, with caring falling mainly on women in their 40s, 50s and 60s. Let us make it acceptable for all to take the time to care. One in four women aged 50 to 64 has caring responsibilities for older or disabled loved ones compared with one in six men, but I have met men in my constituency who have given up their jobs to care. I would like to see that as a real possibility. If someone wants to be there and can be there, it does not matter who they are.

This debate is an excellent opportunity to pay tribute here in the House to the crucial work of carers. Some 20% of carers currently receive no support with their caring work, because they simply have not put their head above the parapet. They do not realise that they are carers, and I know how that feels. Half of carers expect their quality of life to get worse in the next year, which people made clear at the carers event in the House earlier this week. People are concerned that they are not looking after themselves and simply do not know how to facilitate that. The national carers strategy is currently being written, and I am delighted that the Minister has written to me as part of the process and that I am involved. He is allowing time to focus on the matter to ensure that we get it right. I hope that the debate will give hon. Members the chance to set out clearly to the Government and to the country that we are not doing enough for our carers and that they are struggling.

--- Later in debate ---

[Michelle Donelan (Chippenham) (Con)]

Many people think of carers as a small but dedicated group, yet as we have heard today, as many as three in five people will be carers at some point in their life. There are an estimated 50,000 carers in Wiltshire alone—roughly 10% of our county’s population—and 3,000 of those are under the age of 24. Mr Deputy Speaker, you or I could be a carer one day, but chances are that we would not realise our role. We would just think that we were caring for our loved ones. Some 70% of carers in Wiltshire continue to remain hidden, and it is believed that many of those people do not understand or recognise their caring status.

That is why this week and this debate are so important, and I applaud my hon. Friend the Member for Eastleigh (Mims Davies) for securing the debate. I also thank the Backbench Business Committee for granting it. We need to work together to raise the profile of these silent heroes, these astonishing individuals who give and give, time and again. Carers enable hundreds of my constituents to continue to live in their own home. Let us face it: without carers, our NHS would not cope, our care homes would be flooded, and the independence of thousands would be compromised. The care provided, unpaid, by the nation’s carers is worth an estimated £119 billion a year, but their role in our community and economy is invaluable.

I was delighted that the Government made an additional £400 million available to the NHS between 2011 and 2015 to provide carers with the breaks that they need from their caring responsibilities, and that we are developing a new national carers strategy to look at what more can be done for existing and future carers. That highlights an understanding and, importantly, appreciation of the role. Fundamentally, it shows the importance of caring for carers.

The charity sector plays a crucial role in enabling carers. An excellent example is the Independent Living Centre in Semington in my constituency, a charity that offers first-class impartial advice, and solutions for easier living. A support network is equally essential for carers. It can be an isolating role, and one about which non-carers often know little and have little understanding. In a study of more than 6,000 carers, half had let a health problem go untreated, or seen their mental health get worse, as a direct result of the time and effort that they had put into caring for their loved ones.

Fun4All is an impressive local charity in Chippenham. One of its aims is to improve the health and wellbeing of carers by providing social events and breaks, and crucially, it forges a network between carers. I attended one of its fish-and-chip lunches with entertainment, and I can assure the House that it is certainly fun for all.

Also based in my constituency is Carer Support Wiltshire, with whom I have volunteered. I saw at first hand its extremely high level of work and dedication, and its enormous impact on the lives of so many local people. Its role as a charity locally cannot be overstated. It helps carers to access support, services, education and training, as well as breaks from their caring role. This Sunday, it is organising an awareness and fundraising event called “Walk a mile in my shoes” in Chippenham. Last year it proved very successful. I look forward to participating once again, and wish it success.

A key hurdle for carers, as we have heard, is juggling their caring role with employment. Last year we made a massive leap forward when we extended to carers the right to request flexible working arrangements to help them balance work and care; but many problems remain, and it is still a huge challenge to balance the two. It is often about having the ability to cope, but also a level of understanding from the employer.

Carer Support Wiltshire has devised a scheme intended to raise awareness and understanding among employers. It has a strategic arm dedicated to that. I have worked with it on this, and although the strategy is in its early stages, it is a blueprint that could be replicated throughout the country. Employers need to understand the benefits that carers offer and not see them only as a strain on their business. It is important to stress that the issue of supporting carers needs to be targeted nationally and locally, and within the voluntary sector.

Nationally, the Care Act 2014 gave carers fundamental legal rights, and I hope that the national strategy will directly challenge the problems that carers face. Specifically, I hope that we will look at supporting more training opportunities locally to ensure that those in a caring capacity always have the confidence, abilities and skills to perform their role.

Wiltshire Council is finalising its local strategy on carers, which will bring many organisations together to support carers. A variety of services are already in action in my constituency, such as complementary therapies, outings, trips, counselling, befriending services, talk and support services, carers’ cafés—the list is endless, but still much more work is needed.

Fundamentally, there is a complete and utter lack of understanding of the role of carers and the support available. I have seen that time and again in my constituency surgeries. Very many constituents have come to me, complaining that they are struggling, stressed, worried. They do not know what benefits they are entitled to. If I had £1 for every time someone has come to me who is entitled to the carer’s allowance but does not realise it, I would have sent out a lot more leaflets by now. We need to address this head-on. We need to go even further, and I am confident that the national strategy will encompass strenuous efforts to address the awareness and entitlement issues.

Many of the constituents who come to me are pensioners, and they do not realise that if their state pension falls below the amount of the carer’s allowance, they are in effect entitled to a top-up. Alternatively, if they are not in that bracket, they have what is defined as an “underlying entitlement to carer’s allowance”, which means that when they are means-tested, that is reviewed. I mention these entitlements today because I am convinced that it is important to stress them, and to get the message out to any elderly carers who are watching.

[Mims Davies]

My hon. Friend hit the nail on the head when she talked about the importance of better communication—of communicating to carers who feel isolated and vulnerable about the support that is available and the opportunities to make things better. As a result of today’s debate and through the Minister, we could look at communicating better with that group of people.

[Michelle Donelan]

I thank my hon. Friend. I could not agree more with her comments today. Another thing that concerns me deeply is that it is very easy to stereotype a carer, yet the reality is very different from the stereotype. The 2011 census identified 166,363 young carers under the age of 18 caring for a family member or friend; more than 110,073 were under 16. The real figure, allowing for hidden carers, is very much greater. Yes, the Children and Families Act 2014 extended the right to an assessment of support needs to all young carers under the age of 18; and since 2010 the Government have created specific training guides for teachers and teaching staff, to enable them to identify and support young carers.

However, there is still a big problem, which we need to face up to. Around one in 20 young carers regularly miss school because of their caring role. Young carers often get lower grades; a recent survey showed their most common grade at GCSE to be D. Young carers are twice as likely as their peers not to be in education, employment or training. They are therefore more entitled than other groups to the support that we can offer. That is why it would be completely wrong for me not to stress that I completely and utterly support the campaign to allow the pupil premium to show its understanding of the stresses, strains and pressures on young people who are carers. Does not a young carer, like any other young person, deserve the best shot at life, the best chances, the best opportunities? It is extremely hard to be a carer at any age. Imagine combining that with struggling to cope with schoolwork, GCSEs or A-levels, while growing up. Imagine the impact of that—the emotional pressure it would create. In this country we have a pupil premium, which is designed to develop a level playing field. Surely it is time that young carers were allowed on the pitch too.

National Carers Week is all about highlighting the silent heroes, of all ages, in our community, whose dedicated love keeps people safe, secure and often living in their own home. Without them, the economy and the community that we all love in our constituencies would collapse. Today, I hope that we help raise awareness and understanding, show our support, and highlight the different ways that we can improve and develop our national strategy.

I would like to finish by thanking each and every carer in my constituency and in the country for all their hard work.

--- Later in debate ---

[Mims Davies]

Thank you for allowing me a few more moments to speak at the end of this important debate, Mr Deputy Speaker. I want to thank all Members for their thoughtful and helpful contributions today. I also want to thank the Minister for his characteristically compassionate and understanding comments on the carers strategy and for taking on board the comments that have been made across the Chamber. I am grateful for the wide-ranging comments from those on the Opposition Benches, who have also been most helpful.

Carer signposting is vital. Recognition by the Independent Parliamentary Standards Authority is also vital—a point that came up yesterday with the staff in my own office. I have also had women who were born in the 1950s coming to see me in my constituency about their roles as carers resulting in financial hardship. I also spoke about my own personal experiences of caring, which resulted in some challenging financial times and a drop in the quality of life. I therefore never underestimate the financial challenges that face carers and their tenacity in making ends meet. That is always astonishing.

I am grateful to my hon. Friend the Member for Chippenham (Michelle Donelan) for talking about the brilliant work being done in her constituency and for championing the “Walk a mile in my shoes” event. That is absolutely the right way to manage these things. The hon. Member for Ayr, Carrick and Cumnock (Corri Wilson) said that “carer” was just too small a word to describe such a big role. She also mentioned the variations in the different work that people do. The hon. Member for Paisley and Renfrewshire North (Gavin Newlands) talked about carers week being more than just a congratulatory event, and said that it was about identifying needs and opportunities for change. My hon. Friend the Member for Bexhill and Battle (Huw Merriman) highlighted the need to look after carers and to allow them to have breaks. His own family provided a fine example of that. The hon. Member for South Antrim (Danny Kinahan) spoke powerfully about the wonderful success of carers week in Northern Ireland and about the measures that should be adopted. I have scrawled something here about joined-up thinking. It is easy to say those three words. If only we could achieve it sometimes!

The hon. Member for Strangford (Jim Shannon) characteristically picked up on many of the points made by other Members around the Chamber, particularly those relating to hidden carers. I have been contacted by people on Twitter and Facebook who have been listening to or watching the debate today—some people have also been messaging me—to say that they now realise that they are hidden carers. Perhaps they are looking after someone with vascular dementia, for example, and this is having an impact on their lives, day in, day out. Others have spoken about the effect of looking after children and other family members.

I welcome this opportunity for Members to talk about end-of-life care, which is a really important time for carers. It can involve financial pressures, costs, poverty, stress, borrowing, and perhaps re-mortgaging or losing a cherished home as the impact of the situation bites. We have also talked about the issues affecting student carers and young carers, and I am reminded particularly of the issues that come in weekly to our caseworkers, who deal with them so well.

In my summing up, I was also feeling slightly philosophical, like the Minister. Theodore Roosevelt said that people do not care how much you know until they know how much you care. I thought of one of the last conversations I had with my dad before he died. I was in the hospital, helping him to bathe and go to the toilet, and he said to me, “Did you ever think that you would be looking after your old dad like this?” and I said to him, “I wouldn’t have it any other way.” Caring may be the most challenging, boring, difficult, monotonous or heart-breaking role, particularly at that end-of-life stage, but carers will never regret being there and doing it. Caring is a challenge, but carers look back and relish the fact that they made those last few moments and times better. Carers, we recognise and salute you today. You are special and a true carers army.

Question put and agreed to.

Resolved,

That this House has considered carers.

Southern Health NHS Foundation Trust

Mims Davies Excerpts

Wednesday 8th June 2016 Westminster Hall

[Suella Fernandes]

From speaking to families, relatives and patients, it is clear that they are struggling to have confidence in the services provided by Southern Health. The very reason that the debate it happening is so that we can air those concerns and, hopefully, find a pathway to restoring public trust. That is clearly the challenge facing the organisation.

[Mims Davies (Eastleigh) (Con)]

I thank my hon. Friend for securing this important debate. I also thank the Minister for the help that he is giving us across Hampshire and in the Southern Health area, and for taking the issue seriously.

Families feel concerned about their vulnerable loved ones. Despite changes in care plans and promises when things have gone wrong, families are not seeing changes. In fact, they feel that, in very vulnerable situations, it is sometimes better to be at home than in the so-called care of Southern Health. That has come up in constituency surgeries. I, like other hon. Members, feel that this debate and other investigations into Southern Health should get to the bottom of that.

[Suella Fernandes]

I thank my hon. Friend for highlighting the problems communicated to her by families, which echo and reflect the precise concerns about which the families sitting in the Public Gallery feel strongly. They emphasise that this is not an isolated issue. This is something that we all need to take seriously.

The Mazars report is the next chapter in this story. At the request of Connor’s family, NHS England commissioned an independent report into the deaths of people with learning disabilities or mental health problems while under Southern Health’s care. The report reviewed the deaths of people in receipt of care from mental health and learning disability services in the trust between April 2011 and March 2015. The report sought to establish the extent of unexpected deaths in those services and to identify issues that needed further investigation.

The report was published in December 2015, and its main findings included, first, that many investigations into deaths were of “poor quality” and took too long to complete. Secondly:

“There was a lack of leadership, focus and sufficient time spent in the Trust on carefully reporting and investigating…deaths”.

Thirdly, there was a lack of family involvement in investigations after a death and, fourthly, opportunities for the trust to learn and improve were missed.

Of the 1,454 deaths recorded at the trust during the period under investigation, 722 were categorised by the trust as unexpected. Of those, the review looked at 540 and found that only 272 unexpected deaths received a significant investigation. The report did not specify how many investigations there should have been, but it drew attention to the limited number of deaths that were investigated in different categories. The trust has questioned the use of some of those figures, but the picture painted overall was one of inconsistent standards for investigations, raising the worrying prospect that an unspecified number of deaths may not have been investigated properly. The question of whether there may have been other preventable deaths like that of Connor Sparrowhawk could not be definitively answered, which has led to a great deal of concern among the trust’s patients and something of a breakdown in confidence. Understandably, people want to know that they or their loved ones will be safe in the care of Southern Health. Those whose relatives have died while under the trust’s care need reassurance that the investigations were properly conducted and that the deaths were not also the result of avoidable errors.

My constituent Richard West is one of those relatives. His son, David, died in 2013, and he has been seeking answers from the trust ever since. At times, the handling of his case has been very poor indeed. Mr West, a former detective and policeman, says that he was ignored and was even told by a representative of the trust that the deaths of patients in its care were “like an airline losing baggage.” I know from speaking to other families that others have experienced similarly insensitive treatment.

The Mazars report contained serious and specific criticisms of the trust and its management. In particular, it levelled criticism at the board itself for the failures. It found that

“there has been a lack of leadership, focus and sufficient time spent on reporting and investigating unexpected deaths of Mental Health and Learning Disability service users at all levels of the Trust including at the Trust Board.”

--- Later in debate ---

[Suella Fernandes]

I agree that there is a real risk, as my hon. Friend says so eloquently, of this issue falling into a bureaucratic abyss. It is absolutely vital that we have clear processes and that the identities of the responsible people and professionals are clear, so that there is a clear line of accountability for users and indeed for MPs.

Following the resignation of Mike Petter as chairman of Southern Health, NHS Improvement exercised its power to intervene to appoint his replacement, Tim Smart, who is now acting as interim chairman. The notice directing the trust to appoint him stated:

“These matters demonstrate that the Licensee”—

that is, Southern Health—

“does not have in place sufficient or effective board management and clinical leadership capacity and capability, as well as appropriate governance systems and processes as required by additional licence conditions. Monitor is therefore satisfied that the Licensee is breaching the additional licence condition.”

Time and again, in report after report, Southern Health has been criticised for its failures of management and leadership, and the effects that those failures have had on the care that it provides. That is why I called for this debate that focuses on the governance of the trust. We all accept that, sadly, tragic failures in care will inevitably occur from time to time, and those at the top of an organisation cannot be held responsible for every incident on the frontline.

Equally, we must pay tribute to the dedicated staff of Southern Health for the excellent care that they give day in, day out for the majority of the time. We cannot and should not tar all of them with the same brush because of the failures of others. However, when clear and systematic problems have been identified, we are entitled to ask that lessons be learned. For me, the most shocking part of the sequence of events that I have just recounted is that right up until this year—indeed, even in the last couple of months—inspectors have stated that necessary changes that have been flagged up as needing action have not been implemented.

When NHS Improvement said in its enforcement notices that the trust was failing in its obligations under its licence and did not have effective border capacity and capability, it used the present tense. That was in April. Since then, Tim Smart has been installed as chairman, and I repeat my thanks to him for meeting my parliamentary colleagues and me yesterday in Westminster. He has been conducting an initial review of governance, and I was pleased to hear that he expects to make some announcements on his findings and proposals within the next month. I am sure I speak for many when I say that we will be looking for some far-reaching changes to recognise the gravity of the situation.

That brings me on to the issue of personnel. I have been asked repeatedly whether I am calling for the resignation of Southern’s executives, and in particular that of Katrina Percy, the chief executive. I have resisted doing so because, as the Minister has said in the House, politicians and Ministers demanding that heads must roll can often cause more problems than they solve. I repeat my thanks to Ms Percy and her team for coming to meet my colleagues and me on a number of occasions to answer our questions. However, I will now say publicly what I told her at our last meeting: I find it difficult to have confidence that she has properly acknowledged the scale of the problems under her leadership or how difficult it will be for patients and families to have their faith in the organisation restored without a visible sign of a fresh start.

Resignations are a matter for individuals, and Katrina Percy has said that she believes her responsibility is to provide stability by remaining in post. I understand that position, but the sheer weight of criticism of the trust’s leadership over a prolonged period while she has been chief executive would lead many to a different conclusion. The fact that NHS Improvement has now taken the power to direct changes at board level if it considers them necessary sends its own message.

[Mims Davies]

It has been my perception that there has been a sort of bunker mentality. Perhaps people are just burying their heads, going through the process and hoping it will go away. Does my hon. Friend agree that there is perhaps a little sense of that pervading Southern Health from the top?

[Suella Fernandes]

My hon. Friend is insightful in her observation, although I do not think it takes a genius to point it out. The catalogue of criticisms and failings is not new to anyone. I can understand the frustration and anger of families and patients when they feel that no substantive and material action is being taken.

A mechanism is now in place, and I hope the new chairman and the regulators from NHS Improvement will listen to what I and others say today and consider how they can best act to restore confidence in the trust. I thank my parliamentary colleagues for showing an interest, for speaking up for their constituents and for taking the time to voice their legitimate concerns, both directly to the professionals involved and in this debate.

Before I conclude, I again pay tribute to the families and campaigners who have pursued the issue and shared their experiences with us. In particular, the courage and resilience of Sara Ryan, Connor Sparrowhawk’s mother, has been an inspiration as she has continued to demand answers and ensure that the lessons of her son’s death are learned. Since the issue first began to attract significant coverage, more people have come forward with their own stories and added to the demands for action to be taken. They want to know that their concerns are being heard and that the Government and the NHS are serious about resolving the problems. I have heard them, and so has the Minister. I hope that he will be able to give them some of the reassurance they seek in his reply. I look forward to hearing from colleagues from all parts of the House.

--- Later in debate ---

[Dr Julian Lewis (New Forest East) (Con)]

My hon. Friend the Member for Fareham (Suella Fernandes) has done the House a service by bringing this debate to the Floor. The measure of cross-party support that she has achieved is evidenced by the powerful speech of the right hon. Member for Oxford East (Mr Smith).

I hesitated to contribute to this debate because I have not been involved in the cause of the current crisis, which is about the deaths of patients being insufficiently explained. However, I have a history with Southern Health. I explained in the course of an urgent question, which the present Minister responded to on 6 May, that back in 2011 and 2012 my dealings with the trust were, in 19 years in Parliament, the only constituency issue that caused me genuinely to suffer sleepless nights. It was a question not about the way in which people were treated as inpatients in Southern Health establishments, but about a determination by the trust, in concert with a number of other trusts in other parts of the country using similarly questionable techniques, to follow what appeared to be a trend, if not a fashion, to close a significant proportion—35%—of the existing inpatient acute mental health beds.

My hon. Friend the Member for Eastleigh (Mims Davies) said in her intervention that she detected something of a “bunker mentality”. She is absolutely right. The mentality that I detected at that time was a culture of stubbornness and denial about whatever it was that Southern Health wanted to do, irrespective of what other people might wish it to do. The issue at the time hinged upon something that ought to have been straightforward: namely, what was the necessary number of acute inpatient beds to retain. I raised that subject in two debates. Although I have not yet had the chance to meet Tim Smart, the new chairman of the trust, of whom I hear good reports, I hope he will take the opportunity to look up the two debates. One was on 10 November 2011 and, most importantly, the second one was on 18 April 2012. I had information from within the trust that the bed occupancy rates were high. In fact, the bed occupancy rates on average were between 91.9% and 96.7% when I was surveying the data. So it made it rather hard to argue that one could safely close two out of the six acute inpatient units, thus reducing the number of available acute inpatient beds from a total of 165 to only 107.

Part of the reason for the reduction was given quite frankly as a cost saving. It was proposed to save £4.4 million; £2.9 million out of that total would be absolute savings and the remaining £1.5 million would be invested in something called “hospital at home”. The group that we set up in the New Forest, which continues to meet regularly—usually three or four times a year—is called Support our Mental Health Services. It has found no evidence whatever that there has been any significant increase in the amount of support or the quality or quantity of support that people get at home.

Given that, at the time, with 165 beds 53% of patients were detained and just under half the total were people who opted to go into an acute bed if they suffered some dreadful breakdown, I predicted that the figure for those detained would rise proportionately to about 82%. When I made these remarks in public, Katrina Percy took objection to them and sent a letter to Ministers, councillors and Hampshire MPs denouncing my comments as “unfounded”, “scaremongering” and with “no place in the 21st century” because I had pointed out that if someone suffered a severe breakdown, perhaps their best chance of getting a bed if they needed one under the Southern Health regime would be to cause as much mayhem as possible. But it remains a fact that today, as I understand it from sources within the trust, some 80% of the remaining beds are occupied by people who have been sectioned or detained, and that means that the opportunity for getting a bed if you need one, other than if you are sectioned, is correspondingly reduced.

The difficulty that I had at the time in trying to save the beds was that the trust’s clinical director, Dr Lesley Stevens, was determined to go on repeating figures over and over again that there were between 20 and 30 beds vacant at any one time. There were not. Exceptionally, in a short period—if I remember correctly around Christmas time—there was a figure of that sort, but even by the time she was continuing to put that bogus figure forward, that temporary departure from the norm of high bed occupancy had already been left behind and we were back to business as usual with pressure on bed numbers. Eventually, even a proposal that instead of closing both units at once the trust should close just one of the two units scheduled for closure, and see how that panned out, was rejected.

As you can imagine, Mr Hanson, the relationship between me and the trust was pretty much at rock bottom after all the controversy, but both sides decided we had better try to make the best of what was now a fait accompli. Katrina Percy, for her part, promised—and I believe she kept the promise—that no patient whom the trust judged to be really in need of a bed would be denied one, even if one had to be bought in from the private sector. In return I volunteered never to criticise the trust if it bought in such beds; and I never have, because it is most important that it should give beds to those who need them, and that it should not be deterred because of a politician saying “I told you so; look, you are now having to buy in private beds.”

To bring the story up to date, and conclude: there was a double tragedy. The individual tragedy was the death of a young man called James Barton. He was taken on by the trust and became the director of mental health and learning disabilities. That was in about 2014, and in my opinion James was a total breath of fresh air. He reached out to us, and said, “I know we have had all these troubles in the past; I want to build a new relationship”—and he did. In the course of a number of times when James came to liaise with and participate in our group he confided to me that he believed that the bed cutting had gone too far, and he was experimenting with different configurations, in the hope that bringing perhaps about 15 or 18 beds back into the system—approaching approximately half of what had been lost—might get things back into balance. Tragically, in February 2015 James was suddenly found dead at the age of 36, from an unexplained medical condition. That was a huge personal loss to people such as myself, who knew him only slightly. I can only imagine the catastrophic loss it was to his nearest and dearest.

It was also a tragedy from the point of view of people who need acute beds, in my opinion. Although James’s successor, Mark Morgan, has maintained the contact and is a very pleasant person to deal with, the message that I am getting back from Southern Health now is exactly what it was: “Well, we were having to buy in these beds, but we are not having to do it now, and we seem to be back in balance. We don’t need any extra beds.” Incidentally, one of the two units that were closed was at Woodhaven hospital and was only eight years old. I had performed the opening ceremony. The Winsor ward in Woodhaven hospital remains empty to this day.

[Mims Davies]

I have had families coming to see me—particularly the families of people aged 19 or in their early 20s—for whom beds and in-patient availability are the biggest issue. The treatment at home is working, but they need more sustained treatment, and the closure of bed spaces is having a profound effect on the development of those young people.

[Dr Lewis]

Furthermore, the beds at Woodhaven were state of the art, with en suite facilities—which is terribly important if someone has to be an in-patient in such circumstances. Many of the remaining beds do not have those facilities. That ward has been standing empty for several years now. I believe a change of culture is needed in the trust. Certainly there is no difference of opinion between us on the point that it is desirable if possible for people to avoid going into a mental health unit as an in-patient. However, to have the confidence to be treated in the community they must know that there will be in-patient beds for the occasions when they need extra support. I hope that that lesson from the past will be borne in mind in future restructuring of the trust. I called the trust’s culture one of stubborness and denial. That may lie in the minds of individuals, rather than in its structure, but that is a matter for people other than me to decide.

--- Later in debate ---

[Alistair Burt]

I will address that a little later, if I may, but I will come to it.

I should also answer the right hon. Member for Oxford East (Mr Smith) on the chain of accountability for NHS Improvement, and on who makes the decisions there. The decisions are made by Jim Mackey, who leads NHS Improvement. He is a direct appointment of the Secretary of State, so the Secretary of State invests his confidence in Mr Mackey, who makes the decisions on the work of NHS Improvement.

I will now turn to some of the issues raised by my hon. Friend the Member for Fareham and others. First, on the position of Katrina Percy, I need to be clear: Ministers have no authority to intervene in such matters, and nor would it be right for them to do so. I have been assured by Jim Mackey, the chief executive of NHS Improvement, that agreed processes are in place to review the performance of the senior leadership team and to make any changes that are in the best interests of patients. A Minister has to leave that there, and is not able to express any further view. That there is confidence in decisions taken is clearly of huge importance to Members in the Chamber, as they have expressed, and to others. A process is in place to decide that, and it will be decided by the chair.

I share my hon. Friend’s concern that inspectors have pointed to repeated failure by the trust to close out necessary improvement actions until the beginning of the year. NHS Improvement has asked the improvement director to ensure that the trust does not treat actions as complete until sufficient robust evidence supports that claim. The repeated failure to complete actions is one of the things that I will come on to in answer to my hon. Friend’s questions. When people are told what to do by a serious regulator, why do they not just do it? Why do they not do it in Southern Health, but do it in other places? What is the point of accountability and what is the process whereby in other parts of public service something is demanded by a regulator—say, in the acute part of the NHS—and something therefore happens, but something does not happen if dealing with those with mental health or learning disability issues?

[Mims Davies]

Yesterday, Mr Smart told me that his initial view on exactly this point was that the senior executive team had a focus on dealing with Southern Health’s public relations issues, and not really on the care and quality in what was being delivered. That, simply, was why there was no change.

Junior Doctors Contract

Mims Davies Excerpts

Thursday 19th May 2016 Commons Chamber

[Mr Hunt]

That would have been a constructive contribution to this morning’s discussion if the hon. Gentleman had not descended into totally false slurs about this Government’s commitment to our NHS. I would just say to him that if people support and are passionate about the NHS, as this Government are, then they put in the money—we are putting in £5.5 billion more than his party promised at the last election—and make the difficult reforms necessary to ensure that NHS care is as good as or better than anything that can be provided in the private sector. That is what this Government are doing: we believe in our NHS, and we are backing it to provide the best care available anywhere in the world.

[Mims Davies (Eastleigh) (Con)]

I strongly welcome this important statement and the Secretary of State’s leadership, and I congratulate all those involved in the discussions. On Tuesday, I spoke at my advice surgery in Eastleigh to a constituent, a new mum who is a junior doctor and is married to a senior nurse. She is unable to fast-track into working as a GP, and part of her concerns about the negotiations involve the future childcare arrangements for her four-month-old baby. Such concerns weigh heavily on her family, particularly in relation to on-call working. May I ask that agile working and family first issues are truly taken into account for nurses and doctors who are trying to bring up families together?

[Mr Hunt]

My hon. Friend gives one example, but there are thousands of such examples. Such people are totally committed to the NHS, have a bright future in it and can make a huge contribution to its success by doing a good job in looking after patients, but they also have home responsibilities that are difficult to fulfil when there are very inflexible rostering systems. One of the big wins from yesterday’s agreement is that we will be able to look at the way the rostering system works to try to bring in such flexibility. If we do not do so, more and more doctors will want to be locums or to work for an agency and we will lose the continuity of care for patients, which is one of the best things about our GP system. That is why there is an urgent need—from the perspective of patients, as well as from that of doctors—to address that issue.