Independent Living Fund Recipients

Mary Glindon Excerpts

Wednesday 18th June 2014 Westminster Hall

[Nic Dakin]

I absolutely agree.

Let me move on to my second constituent, Jon Clayton, who illustrates what my hon. Friend said. He also receives ILF. Like Ashley, he employs carers who understand his disability. His sister writes:

“My brother Jon is quadriplegic, having been involved in an accident which was not his fault at the age of 18. He is now 54.

He is one of life’s truly inspirational people; an accomplished mouth artist—a gift he only knew he had after his life changing accident—living independently in his own home. He freely gives his time mentoring other disabled persons, helping them come to terms with another life. A life without limbs. A life without walking.

He has always sought to live as normal a life as possible. Having gone through marriage, divorce, being a step father, losing a partner.

He is both ordinary and extraordinary.

He relies heavily on his full time carers. Carers who he personally has ensured are trained to an appropriate and exceptional level to look after a person with specific and defined needs. One false move and he could (and has) spent 18 months bed bound with a pressure sore at the expense of some ill trained nurse.

His carers are trusted to ensure and give a high level of care, entrusted with the most personal of tasks from catheter changing, toileting, dressing…This has been part of Jon’s life since his accident. Something he has taken on with humour and dignity.

If the ILF is removed Jon will be unable to live independently. Being able to engage in what you and I would consider a normal life. He will be unable to travel, have holidays, visit family, visit friends.

The ILF has enabled independence. Given life, where life seemed over.

I would therefore urge you to do all you can to prevent this life enabling function—the ILF—from being eroded.”

[Mrs Mary Glindon (North Tyneside) (Lab)]

Does my hon. Friend think it is a disgrace that, last month, when people such as his constituent turned up at Tothill street, the doors of the Department for Work and Pensions were locked against them? Those people simply wanted to hand a letter in to the Minister’s office, but no one was available, and I had to take the letter in by the back door.

[Nic Dakin]

I am sure all those who turned up to present the letter will want to thank my hon. Friend for carrying out that duty on their behalf. Obviously, it would have been much better had they been able to access the Department themselves, and I am sure the Minister and his colleagues will reflect on that. Sometimes these things happen, sadly, but the Minister has heard my hon. Friend’s concern, and I am sure he will want to address it.

A fundamental concern for Jon, Ashley and others is whether they will be able to employ their specialist staff in future. The question was raised with North Lincolnshire council, which responded on 9 June 2014 with these words, which are rather bureaucratic:

“We appreciate this situation may cause you concern as an existing Independent Living Fund customer and would wish to reduce any worry or anxiety you may have.

Allocation of future monies will be based on your updated assessment and support plan and on future Local Authority funding so at this stage we cannot give any specific guidance on the amount of monies that you may receive from us or cannot give guarantees on the future employment status of any Personal Assistants you may currently employ.”

As hon. Members can imagine, such “reassurances” serve only to heighten anxiety and build mistrust.

I return to my central question: will the Government guarantee that Ashley, Jon and all those currently receiving ILF will not lose their independence as a result of the Government’s decision to close the fund? I believe that that decision is aimed at saving money, but it might end up costing far more in other budget areas, such as health.

A better way forward would be for the Government to engage with ILF recipients—they clearly had an opportunity to do so recently when my hon. Friend the Member for North Tyneside (Mrs Glindon) went with recipients to the DWP—to learn from their experience and to find ways of shaping future services that are cost-effective, but that continue to deliver true independence.

--- Later in debate ---

[Mike Penning]

Bear with me: I am very short of time and I did a deal with the hon. Gentleman before we started that I would take less time so that other hon. Members could intervene. If the hon. Gentleman intervenes on me now, it will make it difficult. I am more than happy to write to him on any issue if he wants me to.

I understand fully people’s concerns about the change in practice; those concerns arise with any change affecting any benefit, but there really should not be concern. The people who now deliver the care to people in the community are exactly the same as those who will deliver the version of the ILF that is provided in the future. All that I can try to do is ensure that we monitor what happens as carefully as possible, to see that people’s rights and needs are met as the scheme is transferred out. It is important that none of us underestimates the skill and dedication of the people who go out to do the reviews. I have a team in London. Obviously a certain salami-slicing goes on; we want to try to get that money down and into the system, so there are the same people doing assessments. Will some of those assessments have to be tweaked, over a period of time? Absolutely, they will be, and we will help. We will give as much assistance as we can with that.

I want to touch on what the hon. Member for North Tyneside (Mrs Glindon) said about the delegation to the Department for Work and Pensions. I am sure that it was peaceful, well-mannered and nice, but that is not always the case. If the hon. Lady looks at the side of the building she will see that paint has been thrown over it, and there have been nasty incidents outside. If she wants to come to see me privately I shall talk about that. That is why the security people were there: we do not know what will happen until people turn up. If I had been there, I would have met the hon. Lady. She knows my door is always open. I have seen her, and if she wants me in future to meet a group of the people who were with her, I shall be more than happy to do that, but there have been nasty incidents and the security situation is understandable. The hon. Lady frowns at me, but those things have happened—she just needs to take a look at the side of the building.

[Mrs Glindon]

It is just that I cannot hear the Minister.

[Mike Penning]

Okay, I will shout; but there was certainly no slight intended to the hon. Lady or the people with her. Security make the decision, and like all Ministers I must bear with them on that. I would obviously meet at any time and place.

The subject is enormously emotive and important, but we must not make assumptions about what will happen. My reason for thinking that we can have some confidence is that the scheme has been closed since 2010, so people with exactly the same needs as the people we have heard about in the debate have had them met by the new system. They have been helped by it. It is vital not to have a two-tier system, as we do at the moment. People who have needed a version of the ILF since 2010 have had that from the local authorities, but people such as those I met last night, who are on the scheme, are having their assessments, and the change is taking place. Did families say to me yesterday that some of the questions seemed bizarre, given the disabilities of the person concerned? Yes—and I am taking that issue up. Colleagues may want to liaise with me and work with me; I think that is the key to this.

I will be honest and frank: the scheme is closed to new entries and the money will go out to local authorities. We will monitor what happens very carefully. Will there be teething problems? Yes. Will there be issues to do with the forms? Yes. However, I think we desperately need to get away from the process and from thinking that my Department, or a part of it, is the best place from which to bring a benefit right into the communities and to the individuals who need it. That is not the case. I came new to this.