Carer’s Allowance

Marion Fellows Excerpts

Monday 22nd April 2024 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a real pleasure to serve under your chairship, Mrs Cummins. I congratulate the hon. Member for Neath (Christina Rees) on the way she introduced this important petitions debate, in which I am grateful to be able to speak as the SNP spokesperson for disabilities and the SNP carers champion.

I have had the pleasure of engaging with disabled people, their carers and carers organisations over the last number of years, and it really has been a privilege. My engagement with them stunned me at first, as I concentrated on the disabilities aspect of my role. I then went to a drop-in in Parliament and spent an hour and a half listening to carers, and became more involved on that side of things. Carers play such an invaluable role, and the impact they have on the lives of those they care for is almost unquantifiable. They show the best of humanity and are truly altruistic people who devote much or all of their time to others, but they are not properly recompensed by this Government.

Before I get into the cold numbers and economic arguments for increasing carer’s allowance, on a human level I want to pay tribute to carers right across the UK and thank them for all they do. Carers ought to finally get the recognition they deserve, as for too long they have been unsupported, exploited and taken for granted. The work of unpaid carers is what holds society together. According to Carers UK, there are an estimated 5.7 million people in the UK who provide unpaid care, accounting for 9% of the population. I want to say a special thanks to North Lanarkshire Carers Together, Lanarkshire Carers and NL Young Carers for all the help and support they give unpaid carers in Motherwell and Wishaw, and to all the other local organisations across the UK.

Each and every one of us can, and potentially will, become a carer or be cared for by someone at some point in our lives. None of us can predict the future. Circumstances change: before we know it, we may be caring for or receiving care from a loved one. Each year, around 4.3 million people become unpaid carers. That is 12,000 people a day. Unpaid carers’ support is worth a staggering £162 billion a year in the UK. Let me repeat that: £162 billion a year. According to the Carers Trust, the value of unpaid care is £12.8 billion per year in Scotland alone. The figures are huge, and the importance of unpaid carers in our economy is enormous, yet carers feel unsupported. Three in five are worried about living costs, 600 have to give up work every single day, and a quarter of carers have either “bad” or “very bad” mental health.

The enormous contribution of unpaid carers to the economy makes it all the more shocking that carers are under-supported in the UK. That was reflected in evidence given to the Work and Pensions Committee in March in a session on carer’s allowance. Representatives from Carers UK, Carers Scotland and the Centre for Social Justice all agreed that carer’s allowance is inadequate and each of the organisations took issue with the earnings limit. It was noted unanimously by those organisations that the UK lags behind comparable jurisdictions, most of which link the earnings limit to hours worked and not how much a person earns, thereby not confining people to low-wage work.

Ahead of today’s debate, a number of organisations were in touch with me to highlight the dire situation in which carers find themselves in much of the United Kingdom. The MND Association said that 90% of those who care for people with MND feel that the welfare benefits they receive do not meet their needs as carers. Meanwhile, in 2022, the MS Society, which is part of the Carer Poverty Coalition—this week is MS Awareness Week—conducted a report on the friends and family of those with MS and found that only 17% of respondents were in receipt of carer’s allowance.

The restrictive access to carer’s allowance, including the 21-hour study rule south of the border, is arbitrary and means that those who need support are missing out. The UK Government should follow Scotland’s lead by removing the 21-hour study rule and enacting measures like the Scottish young carer grant.

It is nonsensical that those who care for more than one person often miss out on carer’s allowance because the eligibility rules do not allow for caring hours to be combined cumulatively. Many carers who spend the equivalent of a full-time job caring cannot access carer’s allowance, which shows how broken the system is. The MS Society has outlined the horrendously low rate of carer’s allowance and the financial impact that that has on carers. Spread over 35 hours per week, the value of carer’s allowance equates to just £2.34 per hour, a whole £9 below the national minimum wage. That is horrendous. The current rate of carer’s allowance is totally exploitative.

The UK Government take advantage of the love that carers have for those they care for; they exploit their altruism and offer totally inadequate compensation in return. There is absolutely no recognition of how integral carers are to the functioning of society and the UK economy. It is essential that the UK Government increase the level of carer’s allowance to at least the minimum wage so that it better reflects the financial impact of caring responsibilities. I therefore support this important petition.

Coupled with the Carer’s Leave Act 2023, which I supported and recently came into force, a move to increase carer’s allowance to the minimum wage would demonstrate that the invaluable work of carers is finally receiving some of the recognition it deserves from the UK Government, but more should be done. The Government must increase the earnings limit to ensure that carers can work and earn if they are able to and wish to. The rhetoric from this Government always focuses on getting people back into work and reducing economic inactivity, but they do not follow up their hollow talk by putting support mechanisms in place. Whether it is for disabled people or, as in this case, carers, there is workforce potential that is not being tapped into because of the lack of adequate support.

With the current levels of support, unpaid carers are particularly vulnerable to falling into poverty, not just because of the devastatingly inadequate rate of carer’s allowance but because of carers’ limited ability to earn an income and the additional costs they face, which they cannot cut back on without affecting the safety of the person they care for. Those include the costs of taking the person they care for to hospital, keeping their home at a safe minimum temperature, charging essential medical equipment for their loved one and doing extra laundry.

A perfect storm of lack of recognition, lack of proper financial support and risk of poverty while caring for a loved one leads to high levels of stress and can have a significant impact on the mental and physical health of the carer, seriously impinging on their own quality of life. In turn, that increases the carer’s own need for treatment, support and services in order to help them cope.

The SNP Scottish Government took action to mitigate the substandard level of carer’s allowance by introducing the carer’s allowance supplement in 2018. It is paid half-yearly and is £288.60 in 2024. Some might think that is a trifling amount, but for some carers it makes a huge difference. There is also a young carers package offering discounts and opportunities for all young carers aged 11 to 18. The Scottish Government fund Carers Trust Scotland to run the Scottish young carers festival to allow young carers to take a break.

Since launching the carer’s allowance supplement, the Scottish Government have made 920,000 payments, totalling around £255 million. In Scotland we would like to do more, but we are limited by the strict confines of budgetary constraints following cuts to the block grant. In an independent Scotland, more could be done to improve the lives of carers.

Despite that, the Scottish Government continue to recognise the huge contributions that carers make to society. In November 2023, we launched the carer support payment, the main Scottish social security benefit, which will replace carer’s allowance in Scotland. Scottish social security treats all claimants with dignity, fairness and respect. The carer support payment has been developed to deliver an improved service, designed with carer and support organisations to meet the needs of those who use it, and to provide links to wider services to help carers access the support to which they are entitled.

Working within a fixed “pocket money” budget, the Scottish Government have continuously tried to mitigate cruel Westminster policies in order to treat carers with the respect they deserve. The Scottish Government are totally committed to carers. They are investing £88.4 million a year in local carer support through local authority funding under the Carers (Scotland) Act 2016, and have provided £8 million a year for voluntary sector short breaks since 2022-23, enabling more people, including young carers, to take a break from caring.

Carer Positive, which works with employers in Scotland, was founded 10 years ago, and I am one of its members. I believe that MPs and MSPs should do all we can to promote that excellent scheme, which helps employers to do their bit for the carers they employ and gives good advice. It is time that the UK Government followed suit with some of these initiatives and showed carers the recognition they deserve, as well as giving them the financial support they need.

We have heard this afternoon of carers being harassed and penalised for overpayments made by DWP, adding insult to injury. Will the Minister look at that? Will she also commit to responding positively to the Work and Pensions Committee reports in a timely manner, and to stopping the cliff-edge situation that carers face with benefits?

Disability Benefits

Marion Fellows Excerpts

Tuesday 26th March 2024 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship for the first time, Mrs Latham. I thank the hon. Member for Slough (Mr Dhesi) for bringing forward this important debate.

The rationale for PIP and other disability benefits is to create parity between disabled people and their non-disabled counterparts, but we all know that that is not the case. Sense has called on the UK Government to increase PIP so that it truly reflects the extra costs that disabled people feel and face, and to increase universal credit and the employment and support allowance so that disabled people can reach a minimum living standard.

The hon. Member for Leeds East (Richard Burgon) referenced the social tariff on energy and I hope he will support my private Member’s Bill to that end, because I am not giving up on that either. The UK Government continue to short change the disabled community. I think he was reading my speech because I was going to use the same quotes from the UN rapporteur, but I will not for the sake of brevity. It is shaming for the UK that the rapporteur thinks that is how disabled people are treated by the Government.

In my casework and my engagement with disabled people and organisations, I hear all the time that disabled people feel disrespected, devalued and demonised by the Government and the UK media, which is utterly shameful. One in five people in the UK have a disability and we could all be disabled tomorrow—a point worth remembering. It is time that disabled people had the recognition and support they deserve. We do not even have a disabilities Minister, as has been raised many times; I mean no disrespect to the Minister, but we need a disabilities Minister to focus on this part of the portfolio.

With good reason, there is little trust between the disabled community and the DWP. According to Z2K, since the introduction of PIP in 2013, 76% of claimants have ended up with a better outcome following an appeal, either via lapse or in an independent tribunal. That compares with just 28% at mandatory reconsideration, where the DWP marks its own homework.

This lack of trust in the DWP is why there is so much worry about the health and disability White Paper proposals. The abolition of the work capability assessment is welcome, but it comes with grave risks; it means that there are much higher stakes for people. Half a million people who are not well enough to work but are not receiving PIP are at risk of losing out altogether. It is imperative that the White Paper proposals are halted until PIP can be trusted to deliver reliably the correct decisions. Since 2018, more than 200,000 people have been awarded no PIP at the initial decision, only to be awarded some at the mandatory reconsideration or tribunal. In more than 70,000 of those cases, the individual subsequently received at least one higher or enhanced element. The system does not work.

This is indicative of a system that is not fit for purpose—it forces disabled people to endure gruelling assessments that have huge mental health impacts. It is about time the Government started treating those with disabilities better. I had a constituent who was diagnosed with terminal cancer and who put herself through gruelling trials. When she was reassessed for PIP, they more or less said to her, “Oh, you are still alive. You are supposed to have died.” The mental health impact on all disabled people undergoing this cannot be underestimated.

The hon. Member for—I am so sorry.

[Justin Tomlinson]

North Swindon.

[Marion Fellows]

The hon. Member for North Swindon (Justin Tomlinson) referred to the Scottish Government. This is why they started a system different from the one in Westminster—a system that is based on fairness, dignity and respect. They collect the information from doctors and others about the case of the individual who is claiming the adult disability payment. Is that not a better way of doing things? They have VoiceAbility, which helps people to fill in the forms correctly so that, more often than not, they get the right decision at the first point of contact. It really defies belief. I have said this and I keep repeating it: look at what is happening in Scotland. People who have worked for Social Security Scotland that came from the DWP say the difference in how they have to treat clients, how they have to treat people, and how the system works, is like night and day.

The Scottish Government have made a difference with interventions such as the adult disability payment, the child disability payment and the carer support payment. They ensure that both disabled people and carers get all the financial support they are entitled to, which allows them to live with dignity.

I hold quarterly poverty action network meetings. I held the last one on Friday, at which there was a representative from the Scottish social security system. They come every quarter and they are there to help local organisations who work in Motherwell and Wishaw to improve people’s lives—

[Mrs Pauline Latham (in the Chair)]

Order. You are only supposed to speak for five minutes.

[Marion Fellows]

Will the Minister please look at what is happening in Scotland and reform this outdated and unworkable system?

Women’s State Pension Age

Marion Fellows Excerpts

Monday 25th March 2024 Commons Chamber

[Mel Stride]

I think my statement is the message. We recognise that these are complicated issues. We have collaborated fully with the inquiry, to the satisfaction of the chief executive officer of the ombudsman. We will study the report’s findings very carefully, and engage with Parliament constructively, as we have done with the ombudsman.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

The Royal Society for the Relief of Indigent Gentlewomen of Scotland sounds entirely otherworldly and quite funny, but that was not the case for the WASPI woman who came to my surgery in 2016. She retired expecting to get her state pension at 60, and had to apply to the society for relief. She had to sell her home because she could not afford her retirement, as she did not receive her pension. What remedies for compensation do the Government consider suitable for that constituent, and others of mine, and when will they receive them? The DWP has known about the issue for years and years.

[Mel Stride]

The example that the hon. Lady gives once again underlines in my mind the importance of proceeding with great diligence and looking at the findings of the report in great detail. As we all know, we received that report on Thursday; it is now Monday. Given its length, and the complexity of the issues under consideration, it is not unreasonable for us to take the time to look closely at its conclusions.

Disability Action Plan

Marion Fellows Excerpts

Monday 5th February 2024 Commons Chamber

[Mr Deputy Speaker (Sir Roger Gale)]

I call the SNP spokesperson.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

I thank the Minister for prior sight of her statement. This disability action plan is not a plan; it is a mishmash of short-term policies. Some of the proposals are welcome and should have been sorted out long ago. Others are unclear and simply do not address the most pressing concerns of disabled people.

In my submission to the DAP consultation, I listed key areas that had been overlooked. Cost of living and welfare support are still missing, even though these areas were consistently raised by disability organisations and individuals. The Minister says that the Government will improve understanding of the cost of living for disabled people. What better understanding do they need? For the past two years, disabled people have been crying out for more targeted financial support to assist with their additional cost of living needs.

The Minister said that the Government will promote better understanding of the United Nations convention on the rights of persons with disabilities across Government. What does that actually mean? In 2016, the UK Government were found to have systematically failed disabled people. That is still happening. The work capability assessment reforms will subject more disabled people to the cruel, punitive, and ineffective sanctions regime. Why? If the Government are serious about improving the lives of those with disabilities, they should start by scrapping the proposals ahead of the 6 March Budget. How much of this plan will actually be enacted before the general election?

In contrast, the Scottish Government are acting within budgetary constraints to improve the lives of disabled people through the adult disability payment and child disability payment. The independent living fund, with an initial investment of up to £9 million, will enable people with disabilities to improve their life. Finally, no offence, but the downgrading of the role of Minister for disabilities indicates this Government’s disregard for people with disabilities.

[Mims Davies]

I thank the hon. Lady for her response; I am glad that advanced sight of the statement was welcome, at least. I reiterate to those watching that this plan is one pillar of the work that we are doing across all Government Departments to help disabled people to succeed, and to make this the most accessible place to live, work and thrive.

The work capability assessment will be changed. My engagement so far has been very much about what disabled people feel. I was in Aberdeen on Thursday, chatting to some of our claimants and those working with a local charity. Many of those disabled people were so frustrated that they cannot get a chance to work, and to try things. The action plan is not about punitive sanctions; it is about giving disabled people the opportunity to take part in wider daily life, which we all take for granted. I point her to the cost of living support, and the around £200 million in Barnett consequentials for her Government. I have consistently asked where the money is going and how they are spending it. I would love to have pointed that out to those I met on Thursday.

This issue is not about party-political barneying in this Chamber; the hon. Lady and I share the view that it is about supporting disabled people in their daily life. I strongly believe that these measures will change their daily life. We will report in six months—if she knows more than me, and the next election is before that, then it will not be me doing so—and in 12 months. Of course, she and I will continue to discuss these matters until the election. I am sure that where we can work together, we will.

Musculoskeletal Conditions and Employment

Marion Fellows Excerpts

Wednesday 10th January 2024 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship, Dame Caroline. I warmly congratulate the hon. Member for Wirral West (Margaret Greenwood) on securing this really important debate. I am grateful to Versus Arthritis and to the British Society for Rheumatology for their very helpful briefings. I listened with great interest to the right hon. Member for Hayes and Harlington (John McDonnell), and I absolutely agree with him that Westminster Hall is more conducive to sharing ideas, rather than just having a go at the Government. However, as the SNP spokesperson, I always have to give the Scottish perspective on things in this place, so I will do a fair bit of that this morning—not for too long, I hasten to add.

We have heard of the number of working days lost because of musculoskeletal conditions, which I will now refer to as MSK conditions, for everyone’s sake—especially those from Hansard who are here. It is really important that the Government change attitudes to people with disabilities such as MSK conditions. We have to support those people, improve their access to work and help them stay in work.

Let us look at what we tried to do in Scotland, and some of the issues that we are really concerned about. We in the SNP are deeply concerned about the changes to work capability assessments, which will lead to disabled people and those with long-term health conditions being put at risk of sanctions. We know that sanctions do not work—we have the evidence—and we really feel that they are not the way forward. More support for people who have been unemployed for a long time is welcome, but sanctions should not form part of that. We do not support mandatory work placements, either.

People with MSK, arthritis and similar conditions often have to give up work because they cannot continue, and they cannot live on statutory sick pay if they have to take short-term absences from work. If the Government are serious about closing the disability employment gap, they have to start providing statutory sick pay that treats workers with dignity. It is ridiculous that recipients get only £109.40 a week; that is wholly inadequate, and is among the lowest amounts in Europe. The Government should look at increasing SSP in line with a real living wage. We also want the Government to provide guidance to employers on reasonable adjustments, and to create statutory timescales for their implementation. We are all agreed that we want people to be able to work, but we need to give them the right support.

The right hon. Member for Hayes and Harlington and others have talked about how difficult things are for people with long-term conditions, especially MSK conditions. They need to dig deep into their household budget to be able to eat properly and keep warm—that is currently a huge problem. The SNP has asked many times for a social energy tariff, and I requested a debate on that in this very place. We need measures to help people return to work properly, when they can and want to.

It is absolutely ridiculous that there has still been no mention of work practices, nor any movement since the Taylor review was first published. We keep hearing promises from the Government, but action is not happening. The SNP’s vision is for Scotland to be a fair work nation by 2025, where fair work drives success, wellbeing and prosperity for individuals, business organisations and the whole of society. That means that we have to look at the drivers of workplace inequality and ensure that everyone is supported to enter into work and progress. That is making a difference: in Scotland people are happy, and want to sign up to the fair work scheme. I know that everyone here wants things to become better. We really need to improve things, but in Scotland we cannot do that on our own, because workers’ rights remain firmly in the hands of Westminster.

We need to look at this issue. The Smith commission tried to look at it, but we were outvoted by Labour and the Tory Government at the time. In Scotland, we want—indeed, we need—the right to set our own agenda for fair work practices. It is really important that people with MSK conditions are able to participate in work fully and do not spend months and months waiting for access to work. Also, when they have to take time off work, they should receive proper statutory sick pay. Then they can go back into the workplace and can continue to contribute to society.

I thank everyone here. We have covered a wide range of issues, and I will listen carefully to the Opposition spokesperson, and especially to the Minister who responds to this very important debate.

Oral Answers to Questions

Marion Fellows Excerpts

Monday 18th December 2023 Commons Chamber

[The Parliamentary Under-Secretary of State for Work and Pensions (Mims Davies)]

My right hon. Friend will be delighted to know it is at the heart of the work that the Employment Minister spoke about today. It is at the heart of our disability action plan, which Members will hear more about in the new year. I advise all employers to focus on being disability confident and employing with confidence, rather than just writing about it on a website.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

After the UK Government appallingly downgraded the dedicated role of disabilities Minister, Scope’s executive director, James Taylor, wrote to the Prime Minister saying that

“the UK’s 16 million disabled people deserve so much better than this treatment.”

It is a clear message that the UK Government do not view disabled people as a priority. Will this Government urgently reverse their decision and reinstate the role?

[Mel Stride]

That is a complete misunderstanding; the hon. Lady refers to reinstating the role, but all the responsibilities of the previous disability Minister have been taken over by the current one, the Under-Secretary of State for Work and Pensions, my hon. Friend the Member for Mid Sussex (Mims Davies), who happens to be the most experienced Minister in my Department. She is extraordinarily capable; she absolutely understands the issues and will do a fantastic job.

Oral Answers to Questions

Marion Fellows Excerpts

Monday 13th November 2023 Commons Chamber

[Mims Davies]

I thank my hon. Friend for the opportunity to mention the household support fund, providing local authorities with further funding which is discretionary for those most in need, particularly those ineligible for cost of living payments. The latest year-long extension in England runs to March next year. Buckinghamshire Council received nearly £4.8 million in its latest extension.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

The proposals in the work capability assessment activities and descriptors consultation will mean some claimants will lose £390 a month if they are reassessed, pushing them even further into poverty. Will the Minister or the Secretary of State please explain this huge financial impact on low-income people with disabilities or a serious health condition?

[The Minister for Disabled People, Health and Work (Tom Pursglove)]

No final decisions have been made. We have had the consultation and we will respond appropriately in the normal way.

Work Capability Assessment Consultation

Marion Fellows Excerpts

Tuesday 5th September 2023 Commons Chamber

[Mel Stride]

I thank the hon. Lady for her question. Just to clarify, there are no plans on the part of the Government to make any changes to the way in which PIP operates—and she did refer specifically to PIP. On the broader point, which is an important point about the interaction between my Department and the Scottish Government, I assure her that I have written today to my Scottish counterpart to open my door to whatever discussions they wish to have. The Minister for Disabled People will also be having his regular engagement with the Scottish Government next week.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

I am almost tempted to say another week, another consultation. Disabled charities come to me regularly with real doubts and worries about the way disabled people are being treated. I visited Project Search in my constituency last week. It was wonderful and inspiring—they practically had to throw me out the door. It is a programme that takes in young people, often from college, with severe disabilities and learning issues and gets them into work and then continues to support them. The support that is offered once people get into work is crucial to the success of any programme the Government undertake, and how they treat these people is vital. What is the Government going to change? How are they going to change these work capability assessments to benefit the recipients, and how will they treat the people that they force into them?

[Mel Stride]

I believe that my hon. Friend the Minister for Disabled People will be meeting the hon. Lady very shortly. That is in the diary, so those matters can be discussed in greater detail then. Specifically, she asks what support we will be providing. It will be exactly the kind of support to which she has just alluded. There will be universal support to help train and place individuals in work, and it will stay with those individuals for up to 12 months to make sure that they get the support to hold down that job.

Disability Benefits: Assessments

Marion Fellows Excerpts

Monday 4th September 2023 Westminster Hall

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It is a pleasure to serve under your chairmanship, Sir Gary. I thank the Petitions Committee, its able representative the hon. Member for Carshalton and Wallington (Elliot Colburn), and the petitioners who brought this really important debate to Westminster Hall. I have rewritten my speech about 12 times since I sat down for the debate, so I will be juggling papers, but that is because I have been listening very carefully to what my colleagues have said about their constituents’ stories and their views on what should happen to try to find a way forward.

I have already thanked the hon. Member for Carshalton and Wallington, and I thank the Chair of the Work and Pensions Committee, the right hon. Member for East Ham (Sir Stephen Timms), for all his work to challenge the Government on how the DWP conducts its business—in this case, specifically on PIP. I thank the hon. Member for North Swindon (Justin Tomlinson), an old ally or enemy of mine who I worked frequently with when he was the disabilities Minister. Although we might not agree on everything, we agree that things should be better.

My hon. Friend Member for Livingston (Hannah Bardell) talked about colitis and Crohn’s, along with her co-chair, the hon. Member for Chesham and Amersham (Sarah Green). The hon. Member for Warrington North (Charlotte Nichols) talked about MS and my hon. Friend the Member for Glasgow East (David Linden)—my part boss—talked quite volubly about what the Scottish Government are doing and about the system’s failings. I find it hard to disagree with him—an unusual occasion for both of us.

The hon. Member for North East Fife (Wendy Chamberlain) talked about us as colleagues counting wins from the DWP. How appalling is it that we feel really happy to secure for our constituents something that they should have got in the first place? She also talked about WCAs and the application process and gave us a harrowing story about one of her constituents.

Green Papers, White Papers, disability action plans—the Government are always saying that things will change, but nothing much has changed since I was elected to this place in 2015. There is a trail of aspirations and only worsening conditions in some areas, where disability organisations have to take the Government to court to try to obtain justice for some of the most vulnerable members of society.

What is PIP for? I thought it was to help with the additional cost of being disabled. The horror stories that we have listened to this afternoon—and others—have often reduced me to tears of pure frustration and anger, especially during this cost of living crisis. At a time when the most vulnerable disabled people really needed help, the £150 just did not cover it.

I will very quickly refer to one constituency case. I know the constituent personally, and my whole team were absolutely appalled. She phoned me in tears to say that she had had to go for a PIP reassessment. She was diagnosed with terminal breast cancer approximately five years ago. She has two young children. She has tried every trial, every drug—everything to try to stay alive for her children. She was forced to use some of her precious time to be reassessed. One of the things that most appalled her, and me, was that an assessor actually asked her, “How long do you expect to live?” I think the Minister is aware of the case. I tried very hard to get my constituent switched to the Scottish system, but no, it comes in turns; I could not do it. She did get the PIP—she did get the money—but what she was put through in the process just defies belief.

As we have heard, the Scottish Government are firmly committed to doing things differently, whether or not we agree that they just want to do things for the sake of being different; I gently disagree with the hon. Member for North Swindon on that point. They have introduced a new, simplified, empathetic system for assessments that works for disabled people in Scotland.

The adult disability payment has been designed in partnership with the people who will receive it. The input of disabled people has been crucial to designing an improved service that is very different from the DWP’s system. The Scottish Government listened to disabled people’s experiences during the design of the new system and are doing things differently. They have abolished the type of DWP assessment that is still being undertaken with some of my constituents. Instead, and only where required, they will hold person-centred consultations between the person and a Social Security Scotland health or social care practitioner, starting from a position of trust. In other words, we think people are applying because they need it, not because they are trying to con somebody in the system.

In contrast to the DWP’s system, the Scottish Government removed the burden from individuals to provide supporting information, so the onus will instead be on Social Security Scotland to collect the information it requires. The Scottish Government have put an end to the anxiety of undignified physical and mental assessments, to private sector involvement and to the stressful cycle of unnecessary reassessments. The Scottish Government have introduced indefinite awards for people on the highest level of ADP who have needs that are highly unlikely to change. That avoids unnecessary reviews, promotes people’s dignity, is proportionate to their needs and provides the security of long-term financial support. Anyone with a terminal illness will be fast-tracked, and access to that support will not be tied to a time-limited life expectancy; the judgment of clinicians will be followed.

The Scottish Government’s priority is getting decisions right the first time, so that people are paid their benefits without having to be put through a time-consuming appeal process. Another key difference is that Social Security Scotland often collects information to support people’s applications on their behalf.

It is different. I have talked to constituents and to people who attend my Poverty Action Network, who have told me that moving from working with the DWP to working with the Scottish social security system has changed their lives. They feel so much better. There may be nothing written in stone, on paper or in guidance for people who work for the DWP, but there is a culture that has changed completely with SSS. It is not perfect; I do not stand here and claim that that is so, but I do say that the Scottish Government are trying to make it easier, better and simpler for people who need these types of payment to actually get what they need to enhance their life.

I, too, received lots of briefings, but the one that I want to quickly concentrate on is from the Royal National Institute of Blind People. It gave me a number of suggested questions for the Minister, so I am going to ask them and, in some cases, say why it wants to know, because it also gave me examples.

Will the Minister change the DWP’s practice with respect to medical evidence, so that assessments make best use of pre-existing evidence from experts such as healthcare professionals? This is particularly the case in relation to claimants who already have certificates confirming severe sight loss.

Secondly, will the Minister ensure that all benefits assessors receive sensory impairment training as part of wider disability awareness training? One theme that others have asked about is informal observations. Will the Minister take steps to ensure that informal observations are credible, discussed with the claimant and substantiated before they form part of the decision-making process? RNIB gave the example of a woman with severe sight loss who was said to have made eye contact. I know many people with sight loss, and they look in the direction of the sound. She was looking at the assessor. She was asked to produce documents, so she went into her handbag and took out documents, which the assessor took to mean that her sight loss was not quite what she appeared to be suggesting. She pulled out the papers, which were in a brightly coloured envelope, which was the only thing in her handbag, but their casual, informal observation was “It’s okay, she can go into her handbag and take things out, so she can’t possibly have that much sight loss.”

A very important question for the Minister that has not been touched on this afternoon is what changes the DWP is making to its procedures, following the High Court ruling that found the Department in breach of equality laws for failing to provide accessible information about benefits to blind and partially sighted people. I visited Deafblind Scotland a few months ago and listened to a tale from a woman who was known to require accessible information, including by the DWP, but was not getting it. Dr Yusuf Ali Osman got a judicial review on this, because he received 21 pieces of information from the DWP over a three-year period that he just could not access. He could not read it.

This is really important, and a recent example is the closure of ticket offices, whereby rail groups are putting notices in stations, which people with sight loss cannot read, to say that they are closing the ticket office and there is a consultation. I have written to the Minister on that and I know it has been changed, but the DWP really has to look at this unthinking process that assumes that everybody is the same and fits into a box. What steps will the Minister take to ensure that all benefit advisers have a stronger understanding of the reasonable adjustments available and the legal duty on the Department to make those adjustments?

I have meetings with the Minister and we agree on many things. I know he wants to improve things for disabled people, but I go back to what I said: what is PIP for? I thought it was to help people with disabilities. It should be easily proven by medical experts, and whether it is a mental health or physical issue, we should not have to put disabled people through the trauma of PIP assessments in their current form.

Cost of Living Support

Marion Fellows Excerpts

Tuesday 20th June 2023 Commons Chamber

[Tom Pursglove]

I reiterate the point that people often receive multiple parts of the comprehensive cost of living support that we are providing. The hon. Lady also made a point about the UN, but my experience from speaking to counterparts from across the world at the UN last week and being involved in the discussions there was that people often look to the United Kingdom as being a world leader on these matters. It is important to make that point in the context of the comment she just made. The fact is that we are continuing to keep under review the package of support that is provided, but it is worth recognising that people often receive multiple parts of the package alongside the disability cost of living payment.

[Marion Fellows (Motherwell and Wishaw) (SNP)]

It was a real pleasure to listen to the hon. Member for Battersea (Marsha De Cordova), who is always eloquent when it comes to disabled people. We have heard already about the support with the £150 extra. I thank the Minister for that; it is literally better than nothing. Many disabled people are trying to get into work, because they have to work to be able to afford the basics in life. There is a disability income gap, as the Minister will be aware. Will he look back on his White Paper, because he missed out the delays that people are now facing to get support from Access to Work? It is impossible, almost. Disabled people are losing jobs daily, because they cannot get the support they need when they need it. Will the Minister review that and try to help disabled people be able to afford more?

[Tom Pursglove]

The hon. Lady knows, because we meet regularly to talk about these issues, my absolute determination to deliver on greater employment opportunities for disabled people. In fact, as I said earlier, I am meeting the Scottish Minister later today, where this issue is on the agenda. I hope that we can move forward with our reforms in a constructive, collaborative manner, so that they benefit people across the United Kingdom to their fullest extent. We are putting additional resource into Access to Work to get through applications quicker, and a number of process changes have also been made. Those are in the early stages, but the anecdotal commentary I am receiving from officials is that with some of these changes, we are seeing cases processed much more quickly.