Parkinson’s Disease Debate
Full Debate: Read Full DebateManuela Perteghella
Main Page: Manuela Perteghella (Liberal Democrat - Stratford-on-Avon)Department Debates - View all Manuela Perteghella's debates with the Foreign, Commonwealth & Development Office
(1 day, 12 hours ago)
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Alison Bennett
Of course I am happy to join my hon. Friend in paying tribute to Peter Cook and to Paul Mayhew-Archer for their campaigning.
The Liberal Democrats believe that people deserve regular mental health check-ups, access to walk-in mental health hubs and timely specialist dementia care. No one should have to fight the system while they are already fighting their condition. Social care is a crisis that cannot be ignored any longer. Parkinson’s is a progressive and fluctuating condition that affects every aspect of daily life, yet people are too often left without the support that they need to live with dignity.
Manuela Perteghella (Stratford-on-Avon) (LD)
Does my hon. Friend agree that diagnosis is just the beginning, because too many people tell us that after receiving that life-changing news, they just feel abandoned? Nearly one quarter receive no information about Parkinson’s services and no adequate information about their condition, so does my hon. Friend agree that we need to ensure that they receive that?
Alison Bennett
I am happy to agree. My hon. Friend makes an excellent point, and it also applies to the loved ones of people receiving a Parkinson’s diagnosis.
We need better social care for all people when they are faced with a disability. We need there to be more respite breaks, paid carer’s leave and a system that recognises the specific needs of people with neurological conditions.
On work—here I am thinking in particular of my friend Rob, whom many of my hon. Friends will also know—we must ensure that people who have Parkinson’s and are of working age can live and work and participate in work with independence and dignity wherever possible. That is why my Liberal Democrat colleagues and I are fighting for a new right to flexible working, and the right to work from home for every disabled person unless there is a significant business reason otherwise.
The Liberal Democrats also want to adopt a new accessibility standard for public spaces and embed in UK law the UN convention on the rights of persons with disabilities. We want to ensure that support moves with the person and does not just stay with the original employer. That is why we are calling for adjustment passports—records of the modifications, equipment and adjustments that a disabled person uses—so that when they change jobs, their support goes with them. That seems to be plain common sense.
On medicines and their availability, we must speed up access to new treatments. It is simply unacceptable that the Medicines and Healthcare products Regulatory Agency has seen its workforce cut.