(2 years, 9 months ago)
Commons ChamberI thank the Secretary of State for setting out his thinking today. The Government said in the Budget that they planned to invest responsibly. Does he believe that it was responsible to cancel a multimillion-pound contract to supply a covid vaccine that phase 3 trials show may be more effective than the Oxford vaccine, threatening hundreds of jobs in Livingston for no apparent good reason? Will he consider rethinking that unfortunate decision?
I know the case to which the hon. Lady is referring. We are clear in our decision, which was made for all the right reasons. I hope that she will understand that I am not at liberty at this point to share those reasons, due to commercial and legal sensitivities, but I assure her that there is absolutely no point in revisiting that decision.
(2 years, 9 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
It is a pleasure to serve under your chairship, Mr Mundell. I am grateful to the hon. Member for Coventry North West (Taiwo Owatemi) for leading this important debate so powerfully, and to all the women—so many women—who signed the petition, including the 241 in my constituency of East Renfrewshire.
Endometriosis and polycystic ovary syndrome affect so many women, yet we hear so little about these conditions day to day, so this debate is really important, because it allows us to focus on areas such as research, where I will be seeking assurances from the Minister. It is really important, too, that this afternoon we are shining a light on these conditions and helping a bit by letting people know about the reality and the challenges of daily life for women who are affected.
I will not speak a great deal about endometriosis today, not because it is not important—it absolutely is—but because colleagues from across the Chamber have spoken so knowledgeably and eloquently. But I would first like to echo what others have said about Sir David Amess and the huge contribution he made. And I would like to reflect on a few things that we have heard that bear further examination.
My hon. Friend the Member for Livingston (Hannah Bardell) spoke so eloquently about the support of women campaigners. I really take my hat off to women like that. They are amazing people. The hon. Member for Rutherglen and Hamilton West (Margaret Ferrier) noted the importance of recognising the mental health impact of both these conditions. And we have heard from hon. Members across the Chamber about the impact on people’s working lives. But I think the hon. Member for Streatham (Bell Ribeiro-Addy) spoke most powerfully. She spoke so well about her own experience—a really hard experience—as a woman with endometriosis. I hope that the Minister is able to reflect on that in the context of her response and the need for research.
I want to concentrate today on PCOS. I have been contacted by several constituents who have PCOS, and I have PCOS myself. Like many women with PCOS, I have not really spoken it a great deal—and to be perfectly honest, I had not intended to speak about it in the context of my work. It is a personal thing, but I decided that I would speak today because the silence around this condition really has to change. So many women are affected by PCOS, but so little is said about it, written about it and, frankly, known about it. We really need to shine a light on this condition and to push for far greater understanding and a far greater commitment to the research that can make a difference.
I was diagnosed with PCOS about 20 years ago, but to be honest, even though I initially spent quite a lot of time trying to research it myself, that was difficult, because much of the information that women would want to find and anticipate being able to find does not actually exist, because of the glaring lack of research. Like so many other women with PCOS, I have been in the dark most of the time, just because there is not enough understanding out there of this condition, which has certainly impacted on my day-to-day life.
I see that the Royal College of Obstetricians and Gynaecologists has helpfully put this in a nutshell for us all. It has established that less than 3% of the overall medical research funding in the UK is focused on women-specific diseases, such as endometriosis and PCOS. They are holding back women’s health outcomes and experiences and holding back our lives, yet that is the kind of priority—less than 3% for women-specific diseases—that these conditions are given. I reflect again on what the hon. Member for Streatham described.
I am pleased that the new Scottish Government have in their first 100 days published a new women’s health plan that includes several actions to improve access to appropriate support, speedy diagnosis and the best treatment for endometriosis. That is practical progress, and I hope it will have a knock-on effect for PCOS. That kind of practical action is really important and will make a difference to people’s daily lives, but we are working with one hand tied behind our backs if we do not focus on the dearth of research on, and lack of conversation around, both these conditions.
That is one call from Verity, the national PCOS charity, which does a fantastic job despite being volunteer-run. Those volunteers deserve our grateful thanks for their work and focus. We might want to take a wee minute to wonder why this condition, which affects up to 10% of women, has to rely on volunteers, however professional, influential and brilliant they are—they are all that. That is not illustrative of a collective appreciation of the harm PCOS causes daily to women throughout their lives.
The fact is that, like endometriosis, the cause of PCOS is unknown, and there is no cure. That can be quite devastating to hear, because as we have heard, some of the symptoms can have a significant impact on daily life—on what we would call normal life—and in a variety of ways. Bear in mind that some women will experience multiple issues once, including irregular periods, or a complete lack of periods. Again, that is not a topic I ever thought I would touch on at my work.
Does my hon. Friend agree that her speech and that of the hon. Member for Streatham (Bell Ribeiro-Addy) show the very reason why diversity in our Parliament, including women who will come forward and be so brave as to share their personal experiences, is absolutely crucial?
My hon. Friend is right: we have to listen to women’s experiences, and I think the hon. Member for Bury South (Christian Wakeford) referenced that too. That really matters here. I never imagined talking about my experience of menstrual irregularity, ranging from nothing at all to a full, continuous six months of periods, which was both debilitating and, frankly, somewhat concerning.
It is fair to say that these are the kind of challenges that women would really rather do without. We heard about the irregular nature of fertility, including irregular ovulation, or no ovulation, which is an issue for women with PCOS, who of course probably do not know that until they find out that they are not pregnant when they are trying to be; reduced fertility—difficulty becoming pregnant—can be the reason why many women become aware that they have PCOS. That was certainly my experience, and it explained many other things. I may have a wee glimmer of light in what is possibly a quite depressing contribution: I have two amazing sons thanks to just a wee bit of PCOS-related medical assistance.
I can tell hon. Members, as we heard so eloquently from others, that women with PCOS can have a difficult time in many ways, particularly with issues such as hirsutism—unwanted facial or bodily hair. I cannot emphasise strongly enough how women are influenced by this. Again, there is no solution. Imagine the impact on the self-esteem of young women in particular. However, PCOS does not only affect young women, and young women are not alone in facing a severe impact on their life from these kinds of issues. None of us wants to sprout a beard, feel unable to go swimming or have to cover up from head to toe. Noting symptoms as oily skin and acne do not really cover the magnitude of those either.
PCOS is often assumed to related only to fertility, and that is a big issue, but all these other issues affect how the world sees us and how we present ourselves to the world. Thinning hair—male pattern baldness, basically —2014 is crushing to have to deal with. Being overweight is so common among PCOS-affected women because our bodies metabolise differently. For some women, that has a significant impact on both their health and on how they interact with the world. There are also depressions and mood changes. If I went through everything, we would be here all day. So many things have a connection to PCOS but, again, we cannot say exactly what or why because the research is not there.
As a younger woman with no idea of where to go for support, it was heartening to hear of women, such as the hon. Member for Streatham, speak about communities supporting one another. That is really helpful when diagnosis is not straightforward or where the issues are not resolvable, but we need to do better than that DIY approach. For young women and teenagers, it is rubbish in the age of Instagram to have to deal with unexplained weight gain or hair growing where it should not, and worries about the future. As for menopause, I have no idea what it will mean, but I would certainly like to know. When I looked into aging women, the best I could establish is that it is thought to be a medical black hole. That is simply not good enough, and that is why research is needed.
To conclude, I thank all the women who have been in touch with me about this matter—so many of them. I thank Verity PCOS and my constituent Anji Sandhu, who is in the process of setting up a group to raise awareness of PCOS and its challenges so that we can talk about it more. That will help because so many women are affected and rely on us here to take it seriously. At the moment it feels to them like a big, dirty secret, and that is what needs to stop. That is why we need research, and I hope that the Minister has something positive to say on that.
Before I call the shadow Minister, Alex Norris, I will say that I am sure he and the Minister will want to help me allow the hon. Member for Coventry North West a couple of minutes to wind up at the end of the debate.
(2 years, 11 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
The hon. Member is absolutely right. With disparities such as these and no clear way forward, that is what we are hoping to hear from the Government. With all the information that we have, it is clear that the response is not good enough.
In the USA, where there is also a glaring disparity in maternal health outcomes for black and ethnic minority women, the Government have actually begun to take steps to address the problem. In April, the White House issued its first ever proclamation on black maternal health. President Joe Biden declared a Black Maternal Health Week, to take place annually from 11 to 17 April.
The hon. Lady is giving a very powerful and important speech. I wonder whether she is aware that research from the USA shows that when black and Asian women do not have pre-existing medical conditions, do have English as their first language and come from middle-class backgrounds, they still have worse outcomes than comparable white women. Does the hon. Lady agree that there is something more going on here, making it all the more pressing that this Government here understand and act?
I thank the hon. Lady for that timely intervention. She is absolutely right; that shows that this is clearly about racism. It is important that we look to what other countries that also clearly have issues with racism are doing to tackle it.
Alongside the Black Maternal Health Week proclaimed by the White House, the Biden-Harris administration has outlined several action plans specifically looking at addressing maternal health issues. Through the American Rescue Plan Act 2021, $30 million has been reserved for implicit bias training for healthcare providers, as well as a provision that will allow states to expand post-partum Medicaid coverage from 60 days to a full year.
How have our Government responded in comparison? In response to a question I asked one of our equality Ministers, I was told that there was no target because the numbers were not high enough. Our Government have responded with poorly rolled-out plans that actually exacerbate the issue by ignoring the problem altogether. The NHS long-term plan aimed at providing continuity care for women across the country seemed, on paper, like a really good starting point to improve maternal health outcomes. However, a whistleblower at Worcester Royal Hospital has said that, in reality, it has created a two-tier system for pregnant women. To create the new team of continuity carers, midwives have had to be pulled from the hospital’s core staff, leaving the hospital unit without enough specifically trained staff.
It is a pleasure, Mr Hollobone, to serve under your chairmanship today.
I start by paying tribute to the hon. Member for Streatham (Bell Ribeiro-Addy) for securing this debate in Black Maternal Health Week. Clearly, she is determined that something will be done to change this terrible situation, and rightly so. Persistence very often pays off and I am sure that she will persist until change comes. I also know that this is a very personal matter for her and nothing that happens in the future can change what happened to her and her child. The fact that she keeps fighting so that the situation changes for others says much about her and I am more than happy to offer her my support.
Just as the hon. Member and others will keep raising this issue, so should we all keep raising it again and again, as others have today, until it is no longer true that black women are four times more likely to die during pregnancy and childbirth than white women. I repeat that: four times more likely to die. Women from mixed backgrounds are three times—
To highlight what my hon. Friend is saying, it seems to me that it is inconceivable that the general public know about this issue. If people understood what a huge disparity in maternal health outcomes there is for black women and for mixed race women, I feel sure that there would be a huge outcry. It is really important that the Minister takes that point on board and takes every step possible to deal with this terrible blight.
I completely agree with my hon. Friend. It is up to the many Members of this House who are not already doing it to do it, and those of us who are doing it must keep repeating over and over again that black women are four times as likely to die during pregnancy and childbirth as white women. For women from mixed backgrounds it is three times as likely, and for Asian women it is twice as likely.
The reason we need to keep saying that is that, despite the fact that the inequality and disparity in maternal and newborn health has been highlighted for many years, we still do not fully understand why it exists, as we have heard, and we do not have the targets that we need to tackle it. The right hon. Member for Romsey and Southampton North (Caroline Nokes), the Chair of the Women and Equalities Committee, of which I recently became a member, said that the statistics are so stark that there should be immediate change. She called on the Government to meet ambitious targets rapidly, and I completely agree.
In the previous debate on this matter, I focused on some of the shocking statistics that MBRRACE-UK highlighted in its confidential inquiry into maternal deaths; I shall repeat some of them. For every 100,000 women who gave birth between 2016 and 2018, 34 black women, 25 mixed ethnicity women and 15 Asian women died, compared with eight white women. Behind those numbers are people—women and babies. Compared with babies of a white ethnicity, black babies have a 121% increased risk of stillbirth and a 50% increased risk of neonatal death, and the gap has been widening since 2013. So there are these tiny human beings—boys and girls—who never got a chance at life. There are grieving fathers and husbands. There are whole families and whole communities.
In addition to the higher mortality rates, other concerns include the number of near misses and the number of times that women have felt that their voices have not been heard because of their skin colour. The hon. Member for Vauxhall (Florence Eshalomi) described a terrifying experience, when she must have felt completely powerless. That is wrong. I was shocked to hear many stories of mothers denied pain relief or left to suffer with undiagnosed post-partum conditions. I know that these things happen to women who are not black—it is always wrong—but for someone to be treated differently because of their skin colour surely compounds the problem. Just as we would research and address any medical causes of these things, we must research and address this issue. I echo the calls of the hon. Member for Streatham for the Government to address it.
As someone who is white, it took me some time to learn that people who are black just know when someone’s behaviour towards them is because of their skin colour. It is hard to explain. It was hard for me to understand at first, and obviously it is harder for me as a white woman to explain it because I do not experience it, but I have no doubt about it. I encourage everyone who does doubt it to really listen to what black and Asian mums are saying and trust that they just know.
NHS GP Dr Adwoa Danso has pointed out that instances of medical mistreatment have impacted on black, Asian and minority ethnic communities’ faith in the health services, and we saw that when it came to getting the covid vaccine. There is a further suggestion that, as the majority of migrants are disproportionally black, Asian and mixed ethnicity, the Home Office’s hostile environment immigration policy makes public services incredibly difficult to access. The right hon. Member for Hackney North and Stoke Newington (Ms Abbott) talked about the hostile environment and has campaigned hard against it for many years.
Women seeking asylum have been blocked or refused by reception staff acting as gatekeepers, often in conjunction with expectations or experiences of prejudice and discrimination. The hostile environment also leads to decisions such as taking women seeking asylum out of supportive communities and into places such as the so-called mother and baby unit in Glasgow, where tiny babies are put in tiny rooms with not even enough room to crawl. The frustrating thing for me as an MP representing Glasgow North East, in a country where we have our own Government, is that our Government can do nothing about it because all the decisions about it are taken down here in Westminster.
Absolutely. The right hon. Member for Romsey and Southampton North mentioned evidence from the Women and Equalities Committee. I was not on the Committee at the time, but NHS staff gave evidence saying that they felt unable to speak up. A number of years ago when I was a Member of the Scottish Parliament, I met with a group of South African nurses, and they were astonished that they were able to meet with a parliamentarian, because they thought it was not their right to be represented. They told me the things that were happening to them in their jobs in the NHS, and they certainly needed someone to support and represent them, so, yes, I do completely agree with the right hon. Member for Hackney North and Stoke Newington.
Maternity Action research found that, just like staff who were too afraid to report, black and minority ethnic women tended not to report negative experiences, and they were less likely to be treated with kindness by health professionals or spoken to using terms they could understand. Although data has not been collected recently, a 2007 confidential inquiry into maternal and child health found that between 2003 and 2005 10% of all maternal deaths were women who could not speak English. As we heard earlier in an intervention from my hon. Friend the member for—Eastwood?
It is Eastwood in the Scottish Parliament. Forgive me, Mr Hollobone. As my hon. Friend said, studies in America show that even among women who come from fairly well-off backgrounds and who do speak English, black and Asian women are still disproportionately affected.
If I worked in maternity care in the NHS and heard someone like me saying these things, I would naturally feel defensive. Instead, what I ought to do is think about it, read up on it, question myself—and I do regularly—and really listen to what people are saying. I have no doubt that the vast majority of healthcare workers care deeply about the people they work with. The debate is more about the system itself and the inbuilt structural inequalities. For those who may be watching and do not know this, if we say the health service is structurally racist, it does not mean it is populated by racists: it means the way in which it is structured is for white people from certain backgrounds. It takes into consideration their needs, culture and language, with very little flexibility to take into account anyone else’s. Changing the structures makes them more flexible, and that is what the debate is calling for, in addition to addressing the very specific problems that have been talked about. After all, our NHS is not a white person’s NHS, it is an NHS for everybody.
I had decided that I was only going to speak for five minutes, and I think if I had not taken interventions then I would have done, but I think it is worth saying why I had decided that. I wanted to give the hon. Member for Streatham longer—and I know she will want to say a few words at the end—because, even though I have ended up taking 10 minutes, I do believe that part of offering support is saying less and listening more.
(3 years, 1 month ago)
Commons ChamberI am pleased to speak in this debate on such an important inquiry. I pay tribute to Members across the House for some outstanding speeches today, and to those who have campaigned for so long to draw attention to the issues that have been addressed in this excellent report, which I think reflects very clearly the distress shared by hundreds of affected patients and their families.
I want to focus on problems with mesh implants, which have been raised with me by many constituents, and most recently by Nicole MacNiven. Nicole has been in constant pain since her mesh was fitted four years ago, and she of course wants to see action on the back of this report. The timelines of events contained in the report make for salutary reading. In each case, warning signs were dismissed, patient and practitioner concerns disregarded, and those at the heart of the healthcare system allowed professional or commercial concerns to outweigh the interests of patients. As a result, decisions on harm avoidance were delayed, allowing many more women’s lives to be diminished or destroyed, and sometimes also those of their babies.
In the case of mesh implants, concern was expressed for many years, but it took until 2014 before the Scottish Government took the lead and called for a suspension of their use, something the MHRA should have done long before. Baroness Cumberlege’s words are very direct and very telling when she reviews the many treatments and devices the inquiry was asked to investigate, but which fell outwith its remit. She concluded:
“Concerns about these…point to a healthcare system that cannot be relied upon to identify and respond promptly to safety concerns.”
That certainly describes the case of mesh implants, and these words should be a wake-up call for the new Secretary of State for Health and Social Care, as he takes over responsibility for a regulatory system for the whole UK that is in serious need of reform. As the inquiry makes clear, the healthcare system takes far too long to pull back to a place of safety when warning signs emerge or, as Professor Ted Baker puts it, there is an “insidious” culture of defensiveness and blame.
Key to the failure of the MHRA has been its lack of engagement with patients, which is what makes the recommendation of a patient safety commissioner so important. I am pleased that, as the hon. Member for Bolton South East (Yasmin Qureshi) has just set out, the Scottish Government have consulted on the appointment of a truly independent commissioner, as recommended by Baroness Cumberlege and endorsed by Scottish mesh survivors. However, that is not what is proposed by the UK Government, who seem determined to let the Health Secretary appoint the commissioner. The recent scandal over how Ministers in the Department of Health make important appointments should lead to a rethink of that proposal. This is too important an issue to let the usual Tory chumocracy operate.
It has taken a long time, but now the report is here, it is the responsibility of Governments to ensure that women such as Nicole MacNiven get the support they need and deserve. The Scottish mesh survivors charter sets out some key demands, and this has now been endorsed by the Scottish Government. A mesh fund has been established, and steps are to be taken to provide reimbursement for past mesh removal surgery. A comprehensive service for mesh complications and removal is being established, and that will be developed in consultation with the affected women. The national service will be delivered by a multidisciplinary team, supported by more than £1.3 million of Scottish Government funding for 2020-21. For those patients who are reluctant to return to the NHS for mesh removal, NHS Scotland is tendering internationally for additional capacity.
We have heard so clearly today how the healthcare system has badly let down women damaged by mesh implants. The Scottish Government have appreciated this, and accepted their obligation to support these women and to do what needs to be done, so now the UK Government must follow suit and implement Baroness Cumberlege’s recommendations. Given what we have heard in the Chamber today, that is the very least these women should expect.
(3 years, 2 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I thank the hon. Member for Swansea East (Carolyn Harris) for securing this important debate. It should be clear to all of us that we do not speak nearly enough about the menopause, and that needs to change.
For far too long, a polite veil has been drawn over this and other issues facing women, young and old, so any mention of menopause, as if it were not a perfectly normal states of affairs, has been seen as a little bit distasteful. For women of a certain age, myself included, that is not okay. I am heartened that the SNP is committed to a women’s health plan and has plans in place to work with women’s organisations and the Scottish Trades Union Congress to identify areas in relation to menopause where action is needed.
Specifically female health issues have been silenced for far too long. We have recently been climbing a mountain in discussing sanitary protection. There is still more to do there, but bravo, as the hon. Member for Pontypridd (Alex Davies-Jones) said, including to the Scottish Government and the women who pushed for change, which meant that Scotland became the first country in the world to have free period products. We need to take the same approach to menopause. Things will not change if we do not have that opportunity and take the initiative in discussing it.
That dialogue will matter, because the veil of secrecy that too often surrounds discussions about the menopause is damaging women’s lives. Why is that the case? Half the population will experience menopause. A great many of them will be unclear about symptoms, treatments and where to go for support. The hon. Member for Canterbury (Rosie Duffield) mentioned the work of menopause cafés. The Menopause Café in Newton Mearns was admired by the people who attended it for the frank, open and supportive discussions held. That sharing and sharing alike on menopause is really helpful.
Some employers are making important moves to increase awareness and support for the menopause, including my local council, East Renfrewshire Council, which I know is discussing that at the moment. That is really important. If employers do not take that initiative, they are in grave danger of losing out on talent and experience, as well as treating women in a way that they simply do not deserve.
As the hon. Member for Swansea East said, that is one of the reasons we wanted to see an employment Bill. Equality matters, and while employment law remains reserved to the UK Government, the Scottish Government will continue to provide and promote fairer work practices for employers to look at. We need these powers to be devolved so that we can get on with job if it is not being done here.
I accept that conversations in the workplace will not be entirely straightforward. Policy development is never straightforward or clearcut, particularly on this issue because menopause is not linear. It can be extremely variable in terms of symptoms, duration and physical and emotional impact, but women need us to tackle this, none the less. At the moment, many feel unable to seek support about the menopause at work. However, the very fact that it is so complex means that it is all the more vital that we make progress.
We all know, or perhaps we are, women who have experienced uncertainty, miserable confusion—symptoms of all kinds. I thought it was really interesting, but not in a good way, to hear the hon. Member for Swansea East talk about the challenges of being unable to afford some of the necessary prescriptions. That is not an issue for women in Scotland, who are able to avail themselves of free prescriptions. There is so much more to be done, in terms of understanding, and her points about the education of the medical profession were absolutely spot on.
Women must be able to seek assistance and support. Although some will sail relatively serenely through menopause, there are often health and wellbeing implications which, if they are acknowledged at all, are just dismissed as women’s troubles. I have to tell hon. Members what women’s troubles actually are. They are the kinds of troubles that it suits folk for us not to talk about: periods, hot flushes—I could go on. The reason we have not historically talked about them is age-old: pure and simple sexism. Let us not have that anymore, thanks very much. I know that colleagues across Scotland and across the UK are doing great work to stamp that out, and I commend them all.
As we travel down that road, and with all the challenges it brings, let us continue to talk and to push for improvements in education and employment. Let us talk about the menopause and how we can practically improve things, and about periods, too. It would be sensible for those things to be part of our normal, everyday discourse. The menopause is normal, and it is time we stopped pretending that it is not.
(3 years, 2 months ago)
Commons ChamberI am very happy to work with the Select Committee on the forthcoming health and care Bill. The Committee has already had a huge amount of input into that Bill, and I am sure that, during its passage, we will be working together on making sure that this piece of legislation, which has cross-party support, can come through the House in the best possible state. I am very happy to look at the specific proposal, but what I would say is that we have been recruiting record numbers of doctors and nurses to try to make sure that the NHS is always there for all of our constituents and their families.
We made very significant progress on this in the Budget immediately following the general election, as the hon. Lady will know. That has removed this problem for the vast majority of doctors who serve in the NHS. I am very glad that we were able to make that progress. I am always happy to look at suggestions from the unions and others, but I am glad to say that we have made a good deal of progress on this one.
(3 years, 8 months ago)
Commons ChamberThe Secretary of State heard earlier about my constituent Fred Banning, a 38-year-old father of two who has terminal cancer. For Fred and others in his situation, the vaccine is all about making the best of the time remaining. I have written to the chair of the JCVI, the Minister for covid vaccine deployment, the hon. Member for Stratford-on-Avon (Nadhim Zahawi) and the devolved Administrations seeking a review of the priority given to those living with terminal illness. Will the Secretary of State work with them to deliver a speedy response for Mr Banning and others in his tragic circumstances?
(3 years, 8 months ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
Thank you, Mr Mundell. In July, I was fortunate enough to secure a question at Prime Minister’s Question Time. As Members across the Chamber will know, that is when we try to think of the best political hit we can get, but on that day there was only one question I was going to ask. It was about a young man, Daniel Caplan, a constituent of mine who had just turned 17 and had been diagnosed with diffuse midline glioma—a brain stem tumour. As I explained to the Prime Minister, it was a terminal diagnosis and, of course, an absolutely crushing one for Daniel and his family. As the hon. Member for Gower (Tonia Antoniazzi) said, I am so sorry to say that Daniel died last week.
I did not know Daniel, but I was really struck that one of his friends, Martin, who spoke to me earlier this year about something else entirely, made sure to tell me what a great person his friend Daniel was. It is crystal clear what a special and very much loved young man he was. If I, who did not know this lovely young man, am so devastated to hear of his loss, I cannot begin to imagine how Daniel’s family can cope with it, just at the time when, if things were different, he would be looking to make his way in the world and realise all of his potential. I have been thinking about them a great deal.
For families like Daniel’s, and all those we are hearing about who have received the devastating news of a childhood cancer diagnosis, among all that awful news is the terrible realisation—one they probably never had cause to be aware of before—that there have been no new treatments for these conditions for 40 years. There has been no progress in treating childhood brain stem tumours. That is stark and shocking. It is absolutely right and necessary that we heed the call of all those families faced with that terrible news when they ask for a renewed focus on research and for a light to be shone on awareness of childhood brain stem cancers so that others do not have to face what they have gone through. I was glad that the Prime Minister agreed with me when I asked for his commitment to shine that light and to bring focus to this issue.
The Scottish Government have also done a great deal of work to improve cancer treatment in Scotland over the last decade. All these things matter, but we need a commitment from all of us not to let it lie for these young people, because although cancer is rarer in children and young people than in adults, it is often more complex and more difficult to treat.
Earlier this year, working with the Brain Tumour Charity —an organisation close to my heart—and with other Members, I tabled an early-day motion to raise awareness of DIPG. That continued focus has to be our priority, because only 10% of children with DIPG survive for more than two years following their diagnosis and research into brain tumours represents less than 3% of the UK’s cancer research budget. Those statistics should stop us all in our tracks, because in the midst of all the medical advances of recent years, affected families find that crushing and inexplicable.
All of us in the Chamber need to ensure that this area is a priority. We need to have more research and to think of it as we go forward. For Daniel Caplan and all the other children like him, and all their families, a cure really cannot wait.
(3 years, 11 months ago)
Commons ChamberAs well as our world-leading obesity strategy, we have today announced a targeted dietary approach to diabetes. From next week, thousands of people will be able to access a rigorous weight-loss programme to help tackle type 2 diabetes. The diet and lifestyle plans have been shown to put diabetes into remission for many people who have been recently diagnosed. This will provide 5,000 more patients with the first stage in an NHS drive to increase access to the NHS diabetes prevention programme and builds on the commitment to get another 200,000 people into the life-changing programme. We know that diabetes increases the risks of other health challenges and coronavirus, so it is vital that we take immediate action to help people.
As the hon. Lady knows, the negotiations with the EU on our future relationship with it following the end of the transition period are ongoing. This Government are delivering on their pledge to respect democracy and the referendum result, with the UK engaging continuously and constructively in the negotiations. We must await the outcome of those negotiations, in which health-related aspects are very important, rather than prejudging what will emerge from them.
In just four months’ time, new customs bureaucracy will lead to increased drug costs for the NHS, including for insulin, which the UK does not produce. Pharmaceutical and medical supply firms report that they are struggling to rebuild last year’s stockpiles because of global shortages due to covid. How does the Minister plan to ensure that patients will not face shortages next year?
The Department is putting in place a multi-layered approach to help to ensure continuity of supply of medicines and medical products in any case that might fall out of the negotiations and the end of the transition period. We are confident that we will maintain continuity of supply.
(4 years, 2 months ago)
Commons ChamberUrgent Questions are proposed each morning by backbench MPs, and up to two may be selected each day by the Speaker. Chosen Urgent Questions are announced 30 minutes before Parliament sits each day.
Each Urgent Question requires a Government Minister to give a response on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
The answer is yes and yes. Survey testing is the most reliable way of assessing the prevalence of the disease and its downward trajectory, because it takes into account a randomised approach to working out where the disease is—much like the opinion polls that we are familiar with in this House—because as testing has gone up, inevitably more cases have been found. It is a good thing that more cases have been found, but we need to know the prevalence, which is best done by surveys.
The Secretary of State has just spoken about the importance of people following the rules, but it is clear that Dominic Cummings’s rule-breaking trip across England has undermined the little confidence that there was in the UK Government’s public health messaging. Does the Secretary of State appreciate the harm that has been done by the outrageous spin and shape-shifting on this issue, and what will he do to repair the damage?
No, I do not think that has anything to do with it. The most important thing is that people follow the social distancing rules, and that should apply even if they have a strong and heartfelt case to make in a public discussion, such as at the weekend.