Motor Neurone Disease Research: Government Funding

Debate between Karl Turner and Jim Shannon

Tuesday 13th December 2022 Westminster Hall

[Karl Turner (Kingston upon Hull East) (Lab)]

I beg to move,

That this House has considered Government funding for research into motor neurone disease.

It is an absolute pleasure to serve under your chairship, Mr Mundell. MND is a devastating, debilitating and untimely life-limiting disease. We saw that just two weeks ago with the tragic loss of Doddie Weir, to which you have referred. Doddie was a giant of a man, both on and off the field, but the MND Association estimates that in the UK six people a day die of MND. A third of them die within 12 months of diagnosis, but it is now more than a year since the Government pledged—in response to the tireless efforts of campaigners and following meetings between me and the then Business Secretary, the right hon. Member for Spelthorne (Kwasi Kwarteng)—to invest £50 million. We met the Secretary of State that day with campaigners, and he gave an assurance to us all that immediate action, meaning immediate money, would be forthcoming. It was not.

[Jim Shannon (Strangford) (DUP)]

I thank the hon. Gentleman for bringing forward this important issue. I have a close working relationship with MND campaigners back home, and ahead of the debate they got in touch to point out the lack of adequate care and provision in Northern Ireland. The Department of Health back home needs help to improve the standard for accessing clinical trials, and the same applies for people across the UK. Does the hon. Gentleman agree that it is imperative that people in all parts of this great United Kingdom of Great Britain and Northern Ireland are able to gain from research and be involved in clinical trials? We all stand to gain from that.

[Karl Turner]

I agree with the hon. Gentleman, who is an incredibly impressive campaigner on the issue. I pay tribute to him. He is knowledgeable on the subject, and he raises it both publicly in debate and privately with Ministers when given the opportunity. I commend him for that.

I very much welcome the Secretary of State for Health and Social Care commenting at the weekend that the money will be fast-tracked into the hands of researchers, but I am sorry to say that it feels as though the Government have dragged their feet. They have been dragged kicking and screaming to this point by the impressive dedication of MND campaigners—not least Rob Burrow, who is a rugby league legend—and it is disappointing that we have had to wait 12 months for anything. This debate was secured, then there was talk in the media that there would be funding available, but campaigners are entitled to be a little concerned and a little nervous about where and when that money will be forthcoming.

I pay tribute to the campaigners. I have briefly mentioned Rob Burrow; for all his brilliance on the pitch, the whole rugby league community has been blown away by his determination to raise awareness of MND. It is his tenacity that has brought us to where we are today. I have to be honest that I knew very little about MND. I am a rugby league fanatic; I support both of the rugby league teams in Hull. I am bound to say, being the Member for east Hull, that I support the red and whites a bit more than the black and whites on occasion. Rob is the person who brought this to my attention. Special mention should also be given to Rob’s former teammate and best pal, Kevin Sinfield, who has completed seven ultra-marathons in seven days to raise about £1.5 million for MND charities. That is an incredible effort from an incredible campaigner and man.

This debate was secured before the Secretary of State announced the money at the weekend. I want to mention that I have spoken with the MND Association at length, and my office has spoken with it in preparation for this debate. It has one single ask. It desperately needs a meeting with the Secretary of State for Health and Social Care and the Secretary of State for BEIS, so that it can get a timeline and some understanding of when the money will be made physically available. It is no good promising money and then not delivering it. The promise was made more than 12 months ago—nothing has been forthcoming.

I am quite annoyed at the fact that the debate was secured, and all of a sudden there is discussion in the media that the money is coming. People are asking me whether it means 50 million quid last year and 50 million again this year. The reality is that it is 50 million quid, which is much needed—the association and campaigners are grateful for it—but they need to know when and how the money is going to be made available.

I am going to rest there; I do not think I have anything further to add. It is a simple ask: will the Minister agree to speak to the Secretaries of State concerned and put the meeting together as quickly as possible, so that we can move forward?

National Lost Trawlermen’s Memorial Day

Debate between Karl Turner and Jim Shannon

Monday 13th December 2021 Commons Chamber

[Karl Turner]

I am very grateful to the hon. Lady. She and I were elected together in 2010 and I remember that terrible event. She paid tribute to me, but may I pay tribute to her for what she has just said in this important debate?

People come together in the city. They do that because, at one time, Hull was the largest and most successful fishing port in the world and the city’s development was closely tied to the industry. That success came at a terrible human cost. The price of fish at market may have gone up and down but, at least until recent years, it was always high in terms of lives lost at sea. I think I am right in saying that it was Walter Scott who wrote, over two centuries ago:

“It’s not fish you’re buying, it’s men’s lives.”

Sadly, that was very true.

[Jim Shannon (Strangford) (DUP)]

I congratulate the hon. Gentleman on bringing this debate forward and pay tribute to the hon. Lady for her heartfelt thoughts.

I represent Portavogie, the second largest fishing village in Northern Ireland and I have known in my lifetime many a brave man lost at sea. Indeed, just last week, my office had contact with a widow who lost her husband at sea in 1986—35 years ago—and she still mourns him today. Does the hon. Gentleman not agree that the widows and the children of these men will be warmed in the knowledge that their loved ones have not been forgotten by us in this House tonight?

[Karl Turner]

I do agree, and I pay tribute to the hon. Gentleman, because I know he is incredibly proud of the industry in his area and campaigns tirelessly for the interests of those who earn their living fishing at sea.

Fishing was and is a hard, tough and unimaginably dangerous job. In the mid-20th century, workers in the fishing industry were four times as likely to be killed as those in the UK’s next most lethal profession, underground coalmining.

Air Travel Organisers’ Licensing Bill

Debate between Karl Turner and Jim Shannon

2nd reading: House of Commons
Monday 3rd July 2017 Commons Chamber

[Karl Turner (Kingston upon Hull East) (Lab)]

This has been an excellent debate, in which we have had 22 Members speak and no less than 13 maiden speeches. There have been too many to mention, but the contributions have been truly excellent, in what has been a non-contentious debate, given that the Opposition agree with the Government’s position. As my hon. Friend the Member for Middlesbrough (Andy McDonald) stated at the outset of the debate, the Opposition are not opposed to the Bill; indeed, we are broadly very supportive of it. There are, however, some concerns about the impact of some provisions, so we want to press the Government on some issues.

The Bill will bring ATOL up to date and ensure that it is harmonised with the latest EU package travel directive, extending coverage to a wider range of holidays and protecting more consumers, as well as allowing UK travel companies to sell more seamlessly across Europe. Labour welcomes the extensions, which will ultimately help to protect more holidaymakers, but we want clarity on how UK consumers will be protected by EU-based companies, as they will no longer be subject to ATOL, but to member state equivalents.

[Jim Shannon (Strangford) (DUP)]

Will the hon. Gentleman give way?

[Karl Turner]

If the hon. Gentleman does not mind, I will not give way at this stage. I am hoping to mention some of the wonderful maiden speeches if I have time later.

The implications of ATOL after Brexit are also a cause for concern. Hidden in the Bill are proposals that the Secretary of State will require only the affirmative resolution procedure to significantly reform ATOL and the air travel trust fund. Labour recognises the merits of some reforms, but we believe that an impact assessment, full consultation and full scrutiny will be required before any fundamental changes are made to this well-respected consumer protection. These issues bring to the forefront uncertainties about the future of UK aviation following the decision to leave the European Union. Labour has been clear that whichever framework is chosen, the Government should prioritise retaining an essentially unchanged operating environment.

In conclusion, the Labour party broadly supports the Bill, as it will extend protections to many more holidaymakers. However, we want clarity on how EU-based companies—which will no longer be subject to ATOL, but rather to their respective member states’ equivalents—will provide protections to UK consumers. We are committed to securing the best possible framework to ensure that the sector flourishes, but this means adequately preparing ourselves for the many implications that Brexit will have for ATOL and our aviation sector as a whole.

Given that I have a few minutes, I want to mention some of the maiden speakers, kicking off with the hon. Member for Redditch (Rachel Maclean). She spoke very passionately about her constituency and the fact that her daughter Ruth encouraged her to stand and continue the long tradition of Redditch electing women to Parliament. That was an excellent move, because her speech was extremely well received and very good. She also spoke warmly of her immediate predecessor, Karen Lumley, who retired from this place due to ill health. We send our very wishes to her from all parts of the House. The hon. Lady also mentioned her predecessor Jacqui Smith, who was the first woman Home Secretary from this place.

The hon. Member for Chelmsford (Vicky Ford) eloquently described the need for consumer protections in this area. She spoke with great knowledge about the EU and the importance of these consumer protections given that we are leaving the EU. I understand that the hon. Lady is a Member of the European Parliament.

My hon. Friend the Member for Crewe and Nantwich (Laura Smith) spoke with great pride about representing the constituency in which she had been raised. She also spoke about the very important issue of gender inequality and the pay gap, and the injustice represented by the WASPI women.

The hon. Member for East Renfrewshire (Paul Masterton) rightly used his opportunity to right the wrong of forgetting to mention his wife in his general election acceptance speech. The hon. Member for North East Derbyshire (Lee Rowley) spoke with great passion about the constituency in which he grew up, and also spoke very warmly about his predecessor, our very own Natascha Engel, who is greatly missed here. My hon. Friend the Member for Weaver Vale (Mike Amesbury) spoke with great passion about his constituency as well, and also, very cleverly, mentioned his wife, referring to the fact that she had been born and bred in Runcorn.

The hon. Member for Clacton (Giles Watling) was, I have to say, very entertaining. He was, I understand, an actor, but he said that this was probably a more interesting theatre. If I remember rightly, he appeared in “Bread”, which I recall watching as a kid. That, of course, was the comedy series about a family in Liverpool who had suffered a terrible time under the Thatcher Government.

The hon. Member for Isle of Wight (Mr Seely) spoke with great passion about notable people in his constituency—too many to mention—but he also decried the privatisation of the ferry service, and many Labour Members would probably agree with him. The hon. Member for Stirling (Stephen Kerr) spoke with great passion about his constituency too, especially when referring to the wonderful shortbread and whisky. The hon. Member for Walsall North (Eddie Hughes) spoke about a very serious issue: the fact that nearly one in four of his constituents do not own a passport, and the importance of the Bill in protecting people who spend an awful lot of their hard-earned money on holidays and expect to be protected by legislation.

The hon. Member for Ayr, Carrick and Cumnock (Bill Grant) spoke of the terrible tragedy that is Grenfell Tower, having had a great deal of experience as a long-standing fire officer. I am sure that the House will benefit from his expertise in that area, and in others.

The hon. Member for Harborough (Neil O’Brien) told us how innovative his constituents were, making everything from jet engines to milk floats. He also mentioned the Jo Cox Commission on Loneliness, and said that he would support it. All of us, in all parts of the House, would be grateful for that support. Last but not least among the maiden speakers, the hon. Member for Dumfries and Galloway (Mr Jack) also spoke about innovation in his constituency, in which the first bicycle was created.

The Bill is not particularly contentious, and Labour supports the Government’s efforts to legislate in this regard.

Criminal Legal Aid Reforms

Debate between Karl Turner and Jim Shannon

Wednesday 4th September 2013 Westminster Hall

[Karl Turner]

Of course, but the point is to dispel the bonkers notion that old lags cost the money. The reality is that people are entitled to a defence, and I will address that later.

I want to deal briefly with the suggestion that the previous Labour Government were profligate with the system. I have spent years defending my party because many practitioners say that the previous Government cut the system to the bone, but we were careful with legal aid spend. I also want to dispel the myth that only self-interested, fat-cat lawyers are concerned about the changes. I have been lobbied by charities, constituents, colleges and trade unions that do not benefit in any way from legal aid, but want a system that continues to be fit for purpose and protects the most vulnerable at the time when they need access to justice.

[Jim Shannon (Strangford) (DUP)]

I thank the hon. Gentleman for bringing this important matter to the House for consideration. On his reference to those who are less well off, Citizens Advice in my constituency has told me—I am sure that many other hon. Members here have received similar information from their citizens advice bureaux—that the least well off will suffer more and those with little or no money will be unable to take a case to court to protect or defend themselves. Does the hon. Gentleman believe that the critical issue is that the less well off will suffer more?

[Karl Turner]

The hon. Gentleman makes a valid point. The reality is that the proposals will lead to a system in which only the rich—those who can afford to be represented privately—will have access to the courts. That is simply not justice.