Speaker’s Statement

Debate between Julian Smith and Wendy Chamberlain

Tuesday 13th May 2025 Commons Chamber

[Wendy Chamberlain (North East Fife) (LD)]

Further to that point of order, Mr Speaker. I have to admit to shedding a tear last night when I heard the news of Sir Roy’s passing. Within nine months of joining the House in 2019, I became the Chief Whip of a small group of 11, and he treated me and my party with the utmost respect. He was the first person to refer to me as “chief”—sadly, my family have not picked up that term—which showed the respect he had for the House, MPs and the parties they represent.

I valued his counsel. We sometimes take the daily business for granted, but it is testament to the work of the usual channels and the Government Whips Office that we end up with the business and debates we have in this place.

My right hon. Friend the Member for Orkney and Shetland (Mr Carmichael) is sitting with me. When Sir Roy left his role and the House in 2021, we took him for dinner at the Liberal Club. I will just say that the club’s standards of service were exactly what my right hon. Friend and I expected them to be; I will say no more on that.

Sir Roy was the epitome of the best of the civil service. We had good conversations, but it is fair to say that no confidences were betrayed. I am very saddened to hear of his loss. My thoughts and my party’s thoughts are with his family.

[Sir Julian Smith (Skipton and Ripon) (Con)]

Further to that point of order, Mr Speaker. In his role in the usual channels, Sir Roy Stone had a unique influence in this place, as we have heard, working for decades for the Government Chief Whip and the Leader of the Opposition, providing advice to both and protecting the confidences of both, but answering honestly to each. Those in the usual channels hold the only role in government that means working for both the Government and the Opposition; Roy managed the Whips Offices for both. The British public see adversarial politics and parties in this Chamber, but for decades, Roy and his teams organised and co-ordinated legislation, debates, recesses, statements and urgent questions and managed the relationship between the parties. Woe betide any Chief Whip who tried to change Roy’s recess schedule, which was almost always in tandem with the Kent school holiday breaks.

Every political science course in the country should have dedicated modules on the usual channels and Sir Roy Stone. Roy’s dominance of this behind-the-scenes role made him one of the most impactful and consequential civil servants of his time. Despite being fair to all sides, he was political to his core, not least during the hung Parliament and Brexit. During that time, he was passionate about and focused on supporting the Government to deliver on the referendum, and was increasingly frustrated with us politicians, and in particular me, for failing to deliver a meaningful vote.

Roy loved his central role in this place, and had the respect, if not always the agreement, of everyone, politician and civil servant alike. Despite all the stresses and strains in that most demanding period of parliamentary history, which is when I worked with him, what shone out was the love for and commitment to his family: his brother, who was ill with cancer during the Brexit years; and his wife Dawn and children Hannah and Elliott. In particular, there was pride in Elliott’s commitment to the RAF, in which he was a cadet, and of which he is now a full-time member. A patriot at work, a patriot at home. Rest in peace, Sir Roy Stone.

PANS and PANDAS

Debate between Julian Smith and Wendy Chamberlain

Tuesday 12th September 2023 Westminster Hall

[Wendy Chamberlain]

I am conscious that we need to deal with the medical profession in relation to this condition, but we must be able to do things as parliamentarians, and the Government must be able to do things too. Obviously, I am standing here as a Scottish MP, as is the hon. Member. It is about ensuring that there is parity of treatment across the UK.

As I say, I hope it will not be a difficult ask for the Minister to say that PANS/PANDAS is real, because I am privileged to have sight of a letter that she sent earlier this year to another Member, which confirmed such a position. In that letter she noted the common practice of treating infections with antibiotics and that PANS/PANDAS could be treated successfully in that way if caught early enough. I am sure she will also be aware of the PANS/PANDAS working group statement that was issued earlier this year.

The working group consisted of representatives from the British Paediatric Neurology Association, the Royal College of Psychiatrists, the Royal College of Paediatrics and Child Health, the Royal College of Nursing, the Royal College of Occupational Therapists, and the British Paediatric Allergy, Immunity and Infection Group, as well as parents, social workers and campaigners. The statement is an important step. It signposts clinicians to the international peer-reviewed treatment guidance in the absence of peer-reviewed treatment guidance domestically. The position appears to be the same as the Minister set out in her letter. I therefore ask her to use her time today to confirm that to the House and pledge to make a written statement to the same effect. The power of such a statement in the face of doctors refusing to believe in your child’s illness would be literally life changing and potentially life saving. As I have said, as a Scottish MP I would want to see parity of support in Scotland. I hope that when the SNP spokesperson, the hon. Member for Motherwell and Wishaw (Marion Fellows), speaks in the debate she will agree to take forward a request from me to the Cabinet Secretary for health to ensure that we see that parity of care in Scotland.

[Julian Smith (Skipton and Ripon) (Con)]

I commend the hon. Member on the preparation that went into this debate and the information that she sent round to colleagues. One issue that seems to be present in the condition is the crossover with autism spectrum disorder, attention deficit hyperactivity disorder, and pathological demand avoidance and other types of autism. It would be useful to hear more from her about how the symptoms can sometimes be confused.

[Wendy Chamberlain]

I accept that the presentation of the symptoms can and does give clinicians pause for thought. The very severe onset of symptoms is clearly very different from other mental health conditions that develop over a period of time. As I say, when a patient presents with those symptoms to a GP there is an opportunity to take the antibiotic step that would allow PANS/PANDAS to be ruled out at an early stage, if that is not the condition that they have. Today’s debate is aimed at raising awareness so that we can separate out the different conditions. I am grateful to the right hon. Member for Skipton and Ripon (Julian Smith) for taking part in the debate.

I hope the Minister will be able to take such vital steps today. Looking to the future, I think we all want to see NHS and NICE guidance and proper research into the conditions and their treatment. I am sure the Minister and her officials have regular meetings with representatives from the NHS, the Academy of Medical Royal Colleges and the National Institute for Health and Care Research. Can she ensure that PANS is discussed in those places, that awareness is raised and that there is home-grown leadership? Medical conditions do not have nationalities and, with political will, there is no reason why the UK cannot be a world leader in treating this one.

I want to look at aspects of dealing with a health condition that do not just stem from medical diagnosis and treatment. I hope the Minister regularly speaks to colleagues from other Departments where their remits cross. There is a remit for the Department of Health and Social Care in building the hospitals, but it is the Department for Transport that makes sure there are roads to get people to them. It is the Minister’s Department that comes up with a cancer strategy, but the Department for Work and Pensions sets the policy on statutory sick pay and disability benefits. In this case, although she has an incredibly important role in ensuring the recognition and treatment of PANS/PANDAS, we need to look at the other impacts on a child who is so poorly.

The first and most obvious point is that a child who is too poorly to get dressed is probably unlikely to be in school. If they are in school, flare-ups of the condition—one of the symptoms is difficulties with cognitive processing—can mean dropping behind. When I recently asked children on the youth board about that, I was told that universally before they were ill they had loved school and had been doing well there. In fact, a survey carried out by PANS PANDAS UK this year found that, pre-onset, only 9% of patients were below the expected academic standard for their age group. After onset, the figure soared to 53%.

As with treatment, support from the school is a lottery for families. Most schools and teachers do not know what PANS/PANDAS is and have no idea how to support students with it. I have spoken to families of children who have been out of education for over a year because they have been too ill to go to school. I have spoken to others who say that the support is so poor that they have moved to home schooling. Others count themselves as lucky, because the special educational needs department has been open to supporting them.

One girl on the youth board told me that the SEN department at school was her safe place, that it was really calm, and that her teachers had researched the condition and made allowances for her school work. That should not be the exception in children’s experience—it should be what we aspire to for all of them. Not being in school is a reality for many children with PANS/PANDAS, particularly if they are not receiving the proper medical support to help them get better.

Oral Answers to Questions

Debate between Julian Smith and Wendy Chamberlain

Wednesday 5th February 2020 Commons Chamber

[Julian Smith]

I thank my right hon. Friend for all his work in this area. I was reading his Defence Committee’s 2017 report again at the weekend. I confirm that we can deliver on the Prime Minister’s and the Government’s priority of ending vexatious claims against our armed forces and the police, and we can deliver for victims and survivors in Northern Ireland.

[Wendy Chamberlain (North East Fife) (LD)]

9. What steps the Government is taking to ensure consistency in customs regulations throughout Northern Ireland and the rest of the UK.