Children’s Hospices: South-east England

Josh Babarinde Excerpts

Thursday 16th October 2025 Commons Chamber

[Alison Bennett (Mid Sussex) (LD)]

I wholeheartedly welcome the Government’s announcement this morning, in anticipation of this afternoon’s debate, of £80 million of support for children’s hospices over three years. I thank the Minister for listening to the calls of the children’s hospice sector and the Liberal Democrats.

The three-year settlement will enable hospices to plan and deliver services over a longer period. Above all, it will ensure that seriously ill children and their families can continue to access hospice care. However, providers tell me that this level of funding does not solve the children’s hospice funding crisis, nor does it put children’s hospices on a genuinely long-term, sustainable financial footing. Bluntly, this funding will only slow the rate at which children’s hospice services are being cut.

Across the south-east—indeed, across the whole of England—children’s hospices support thousands of seriously ill babies, children and young people, and the families who love and care for them. One such organisation is Shooting Star Children’s Hospices. A parent recent said:

“Without the support of the team at Shooting Star I believe our family would be under enormous strain and feel unable to know where to turn.”

They are places of compassion, expert medical care and human dignity. They provide everything from end-of-life care to vital symptom management and psychological support, but our children’s hospices are in crisis. Unless urgent action is taken, many may disappear.

Since 2019, the number of children and young people needing end-of-life care has doubled. The demand for symptom management has surged by 108%. Hospices are having to provide more care and support than ever before, yet they are struggling to keep their doors open. At the same time, inflation and rising costs, particularly in recruiting and retaining highly skilled staff, has driven hospice expenditure up by an average of 15% in the past year alone.

The Government’s disastrous national insurance hike has only exacerbated the existing pressures. For example, Southern Hospice Group is a local charity made up of three Sussex hospices: Chestnut Tree House children’s hospice near Arundel, Martlets in Hove and St Barnabas House in Worthing. The national insurance rise has collectively cost them £500,000. Yes, the Government have increased funding in cash terms, but it is simply not enough. Local NHS funding from integrated care boards remains 18% lower than it was three years ago, even as hospices stretch to meet rising demand. Children’s hospices are now dipping into their reserves to stay open. In 2024-25, 59% of them ended the year in deficit. In 2025-26, that figure is expected to rise to a staggering 91%. This is clearly not sustainable.

Meanwhile, a postcode lottery in funding continues. Recent freedom of information requests conducted by the charity Together for Short Lives showed that some integrated care boards in London spent over £400 per child needing palliative care, while others spent less than £25. We see that too in the south-east: one ICB spent over £260 per child, while another spent just over £100. Only 32% of ICBs could even say how many children accessed hospice care in their region. This gap in data must be filled.

The announcement this morning suggested that funding being distributed via ICBs would tackle the postcode lottery issue, but the results of these FOI requests suggest that there is an awfully long way to go. How will the Minister ensure that ICBs commission children’s hospice services equitably? What guidance will they be given to ensure that these vast variations in support are eliminated?

If I can emphasise one thing, it is that people are the beating heart of the hospice movement. Highly qualified specialists, passionate volunteers and generous donors all make the seemingly impossible happen, but the work- force is in crisis. Incredibly, there are only 24 full-time equivalent paediatric palliative medicine specialists serving the entire UK, when we know the need is for at least 40 to 60. If we followed the guidelines of the Royal College of Nursing, we would have nearly 5,000 community children’s nurses; right now, we have under 1,000. The professionals who care for our sickest children are being stretched to breaking point.

I urge the Minister and the Government to build on today’s announcement by first fixing the broken commissioning system. We must instruct NHS England and the Department to model what each local NHS body should be spending on palliative care and to hold them accountable. We must commission services at regional and national levels, where appropriate, to create economies of scale, and we must use the new pan-ICB commissioning offices to ensure consistent and equitable access to care across England.

Secondly, we must tackle workforce shortages and invest an additional £2.4 million per year in GRID and SPIN training for paediatric palliative medicine. We must fund and implement safe staffing ratios for nurses and aim to employ the 4,960 community nurses that England truly needs.

[Josh Babarinde (Eastbourne) (LD)]

I congratulate my hon. Friend on securing this debate. An amazing children’s hospice that serves constituents in my patch is Demelza, which has an amazing array of staff, volunteers and the rest, including Queen’s nurses such as Donna Mole. Will my hon. Friend congratulate Donna on being a recipient of that award? Will she also congratulate the fabulous Fia, one of the children served by the hospice, on a book that she has written, and will she encourage the Minister to order a copy?

[Alison Bennett]

I thank my hon. Friend for celebrating the work of Queen’s nurses and fabulous Fia for what she has done in writing a book—I am not sure that I could do that. It is truly impressive, and I am happy to encourage the Minister to buy the book; it sounds like I had better buy it too.

This is about real children like fabulous Fia. It is about real families and real suffering that could be eased. Children’s hospices provide £3.32 of care for every £1 invested by the state, which is extraordinary value, so they deserve more support. These children deserve dignity, comfort and skilled care, and their families deserve the support that only children’s hospices can offer.