Diabetes

John Hayes Excerpts

Wednesday 9th January 2019 Westminster Hall

[Sir John Hayes (South Holland and The Deepings) (Con)]

I beg to move,

That this House has considered diabetes.

What a delight it is to serve under your chairmanship, Mr Robertson. C. S. Lewis, the great Christian writer, said:

“Courage is not simply one of the virtues, but the form of every virtue at the testing point.”

Every day, our constituents—people across Britain—are tested by the challenges that are the effects of diabetes, which is the fastest growing health crisis of our time. There is barely a family in Britain that has not been touched by it. As so many elderly ladies do, my late mother contracted type 2 diabetes when she reached her 70s. I spoke to colleagues from across the House in preparation for this debate, and many of them, including one this morning, said that they had a family member who had been affected by the disease.

In the last 20 years, the number of people in the UK living with diabetes has doubled, reaching 4.6 million. Every day, 700,000 people are dealing with the worst effects, and 700 people are newly diagnosed as suffering from some kind of diabetes. Amazingly, that is one person every two minutes, so this debate is not only necessary and apposite; rather, I would go one further and say that it is essential.

[Nick Thomas-Symonds (Torfaen) (Lab)]

Will the right hon. Gentleman give way?

[Sir John Hayes]

I shall just finish the next exciting sentence and then I will happily give way. By 2025, there could be as many as 5 million people living with diabetes in the UK.

[Nick Thomas-Symonds]

I thank the right hon. Gentleman for giving way and congratulate him on securing this debate. The statistic for Wales is that one person in 14 is affected. Does he agree that, going forward, we must look at prevention—seeing the warning signs and looking at lifestyle changes—as well as having excellent treatment for those who are formally diagnosed?

[Sir John Hayes]

Absolutely. I will deal with that during my speech. Information that leads to a better understanding of risk, which in turn leads to prevention, is critical, particularly with respect to type 2 diabetes, which is the type that I mentioned earlier when I referred to my late mother.

I spoke of hundreds of thousands of people who suffer from type 1 diabetes—about 500,000 at the moment, but that could easily rise to 700,000—but of course 90% of sufferers are type 2 diabetics, and prevention is particularly critical in their case.

[John Howell (Henley) (Con)]

My right hon. Friend is making a very strong case. Is he aware of the new research into the treatment of type 2 diabetes, which suggests that a change of diet can eradicate it, giving the person a clean bill of health?

[Sir John Hayes]

I was going to refer to the achievements of the deputy leader of the Labour party, the hon. Member for West Bromwich East (Tom Watson), later in my speech, but my hon. Friend obliges me to highlight them earlier than I had planned. He is a model example of someone who, having contracted type 2 diabetes, adjusted their lifestyle and diet, lost large amounts of weight, and fought back against—indeed, fought off—type 2 diabetes, exactly as my hon. Friend suggests. Many other hon. Members, including some in the Chamber today, are living with diabetes. Remarkably, our Prime Minister not only manages to hold down her job with immense dedication and determination, but manages type 1 diabetes simultaneously. I spoke about every family and every constituency, but many Members of this House have personal experience of dealing with both type 1 and type 2 diabetes.

During the debate, I will focus on three areas in which we can make real progress: the human and financial cost of diabetes; how education and technology can enable self-management and improve outcomes for both type 1 and type 2; and how, in the case of type 2 diabetes, intervention on societal and individual levels can prevent the onset and mitigate the effects of such a serious problem.

To prevent just a fraction of the complications arising from diabetes would have a big impact on the national health service, generating significant savings as well as fundamentally reducing pain and distress for individuals. Every week in England, over 160 lower-limb amputations result directly from the effects of diabetes, so the ability to provide high-quality diabetic foot care is of particular concern. The recently published NHS long-term plan makes a renewed commitment to the diabetes transformation fund, and I know that that will be welcomed by the whole diabetes community.

I hope that the Minister will set out what steps the Government are taking to encourage the use of education and technology to better support people in self-managing their diabetes, as that will reduce the burden of diabetes both on the individual and on the NHS. A few years ago, a family came to my constituency surgery, with a tiny, wonderful little girl. She was just about to start school. She had already been diagnosed as a type 1 diabetic. That little girl, Faith Robinson, was wearing technology that allowed her glucose to be monitored and insulin to be administered to her—that was absolutely necessary because she was so young. The family came to me with a request, which I will pass on to the Minister so that he can work with colleagues across Government to ensure that this happens routinely for all constituents who need it. They asked that Faith receive one-to-one support at school to manage that technology. The little girl was under five, and needed people at the school she was about to attend to understand the condition and how to deal with the challenges that she faced.

I estimate that there are constituents across the country in similar circumstances, with very young sufferers who need that kind of care and support. I invite the Minister not necessarily to comment today—I do not want to catch him out; that is not my intention—but to reflect on that and to say more about what can be done for that little girl, who I was able to help in that circumstance, and for many others like her.

[Mr Philip Dunne (Ludlow) (Con)]

I not only congratulate my right hon. Friend on securing the debate but thank him for allowing me to intervene on that point. My second daughter was two and a half when she was diagnosed as an insulin-dependent type 1 diabetic. I very much empathise with the story that he has just told us about his constituent. My daughter was barely able to describe her feelings because she was only just talking at the time, which was really quite challenging for the clinicians treating her, as she was unable to describe the impact of treatment and how she felt.

I agree with my right hon. Friend that the introduction of technology—both a result and part of the significant research efforts in this country by charities and the Medical Research Council—is leading to opportunities in treatment provision, in particular the flash glucose monitoring device, which I know the Government will introduce across the country in a more even way than in the past. That is very welcome, but it remains subject to clinical guidance. I urge the Minister to look at that guidance and the attributes required for people to have access to those devices, because they remain quite restricted.

[Sir John Hayes]

With the insight and acumen that characterised my right hon. Friend’s ministerial career, he has identified a point that I was going to make later. With his permission, I will amplify that in my speech. I was aware of his personal circumstances and of his expertise as a result of having a daughter with diabetes. He will recognise that the average sufferer spends about three hours a year with a healthcare professional. Self-management is therefore critical and, in turn, technology is essential to such self-management. We cannot expect a healthcare professional to be on call every time someone needs support or the kind of treatment that is routine for someone such as my right hon. Friend’s young daughter. I entirely endorse his remarks. The Minister will have heard them and will respond accordingly.

In essence, I want a world in which all people with diabetes have access to the right information, advice and training, not just at the point of diagnosis but throughout their lives. People will say, “Well, of course, we all want the very best, and we all want the ideal,” but if we do not aim for the very best, we will get something very much less than that, so I make no apologies for being definitive in my determination to aim for that ideal. It is critical that we as parliamentarians should look to more distant horizons than sometimes the prevailing powers in Government—as I know from my long experience of that—would encourage us to do. Such debates as this allow us to do that in a cross-party way, for this is not about party political knockabout but about something much more fundamental.

Only if we can achieve the ideal will people be well placed to gain confidence and to cope as the Prime Minister does—as I have described—and as the deputy leader of the Labour party does. They can manage their condition and do not have their lives inhibited by it, and so believe that their opportunities are unaffected by the condition.

To ensure the early uptake of education, it must be provided in a useful format: digitally and through every kind of agency, whether that is schools working with health professionals, or local authorities, which have a responsibility for public health following the Health and Social Care Act 2012, stepping up to the mark too. I shall say a little more about the co-ordination of that, although the Minister is already aware of my concerns. It is about ensuring that our public health effort on diabetes is co-ordinated, consistent and collaborative. That is vital, for reasons already mentioned by colleagues in interventions.

I welcome the commitment in the NHS long-term plan, as I said, to expand the support on offer for people with type 1 and type 2 diabetes, including through the provision of structured education.

[Sue Hayman (Workington) (Lab)]

The right hon. Gentleman is making incredibly important points. He mentioned the deputy leader of the Labour party, who turned his life around through diet and exercise—nutrition. That is an incredibly important issue in my constituency. Throughout west Cumbria, we have serious levels of diabetes, health deprivation and obesity. I thank the right hon. Gentleman for making what is an incredibly important point about bringing together health education at a very young age, and I encourage the Government to invest in that.

[Sir John Hayes]

I hope that the Minister, in respect of that excellent intervention and my earlier remarks, will say how he will ensure that that kind of vital education is provided in a format and at a point that works for everyone. This is about getting to people by a means and at a place that will penetrate, have effect and be comprehensible. The objectives in the long-term plan are right, but how we deliver those objectives has become the vital next step.

We have already spoken in this debate about technology. A flexible approach to the provision of technology, as well as education and support, is critical. Once equipped with information and skills, people must have access to, and the choice from, a range of technologies to help them to manage their condition in everyday life, as my right hon. Friend the Member for Ludlow (Mr Dunne) mentioned a few minutes ago. For people with type 2 diabetes, that is about ensuring access to the required number of glucose test strips. In the rapidly developing world of type 1 technology, insulin pumps and continuous glucose monitors can radically transform lives.

Decisions on which technologies are available should be made with reference to advice from clinicians, patients and, perhaps most importantly, health economists, who will help to determine value to the NHS.

[Mr Edward Vaizey (Wantage) (Con)]

Will my right hon. Friend give way?

[Sir John Hayes]

I will give way, but I want to make my point before I do so, and it might well inform and inspire my right hon. Friend’s intervention: it concerns me that, in contrast to medicines, medical devices and now digital solutions do not have clear processes for appraisal and subsequent funding once approved.

[Mr Vaizey]

My right hon. Friend has indeed inspired me. I do not have diabetes, but I tried a FreeStyle Libre sensor because a constituent of mine is involved in the company. Given my right hon. Friend’s remarks, he seems to agree with me that a robust process of cost-benefit analysis would show that the more people who were issued with that device, the more the health service would save in the long term from people being able to avoid catastrophic incidents because they could monitor their glucose levels much more effectively.

[Sir John Hayes]

I agree entirely with my right hon. Friend. In the modern idiom, we need to be technology-neutral about that, because the field is changing rapidly. As new technology comes on stream and improves, we need to be sufficiently responsive to and flexible about those changes to ensure that people get the very best, latest technology available to them, for the reasons he gave.

The limits on self-management by the restrictions on technology inhibit people’s wellbeing, confidence and, thereby, opportunities. I want to ensure that the provision of technology is consistent throughout the country. There are suggestions that such provision is patchy, that some places are better than others and that some of our constituencies are not getting all that they deserve. The Minister will not want that, because he is an extremely diligent and resourceful Minister—I know that from previous experience—and I want him to tell us how he will ensure that the technology is appraised properly, is delivered consistently and, accordingly, will change lives beneficially.

[Mr Dunne]

My right hon. Friend is being generous with his time. May I elaborate a little more on that specific point to give an indication to the Minister of the specifics that might cause difficulty between different clinical commissioning group areas? In my experience, those who are allowed to have clinical access to a glucose monitoring device already need to have their blood sugar levels under control—in single digits, below nine. For many people, however, the monitoring device is the one thing that gives them the ability to get better control of their blood sugar glucose levels. Therefore, if they do not get access to it until they are under control, it does not have the immediate benefit to their lifestyles that it would if the regime were slightly more permissive in the allocation of the devices.

[Sir John Hayes]

My right hon. Friend makes a very shrewd point about cause and effect. In Scotland, for example, both the processes leading to allocation and the actual allocation of technology are much more routine, as he suggests should be the case. I hope the Minister will tell us today or subsequently how he will ensure that that becomes true for the whole of our kingdom—that the very principles set out by my right hon. Friend become embedded in the way in which we approach technology, ensuring that it is allocated according to need.

We all agree that the resources should be targeted to secure optimal outcomes for the 4.6 million people who have been diagnosed with the condition. In addition to those diagnosed, however, one in three adults in the UK has pre-diabetes and might be at risk of developing type 2 diabetes if they do not change their lifestyle—a point made by a number of Members in interventions. About three in five cases of type 2 diabetes can be prevented or delayed. A focus on preventing the onset of diabetes should be of paramount importance. G. K. Chesterton said:

“It isn’t that they can’t see the solution. It is that they can’t see the problem.”

By seeing the problem, the solution will be implicit, because many more people will never develop type 2 diabetes if they make those adjustments to their lifestyle.

There is a dilemma, though: is it better that 50,000 people get a perfect solution and are prevented from having diabetes, or that 5 million people reduce their risk marginally? Let me set that out more clearly. Is it better that a small number of people achieve what the deputy leader of the Labour party, the hon. Member for West Bromwich East, has done—losing immense amounts of weight, changing their lifestyle and completely revising their diet? Or is it better that a very much larger number of people make a smaller change, lose less weight and change their lifestyle more marginally, but by so doing significantly reduce their risk of developing type 2 diabetes?

That is a challenge in health education; it affects many aspects of the health service’s work. It probably means that, rather than seeing this issue purely from a clinical perspective, we have to democratise the diabetes debate, spread the word much more widely and get many more people to lose a couple of inches off their waist, to lose a stone or half a stone. That effect would be immense in reducing the risk of diabetes, not for tens of thousands but for millions of people.

If the figures I have brought forward are so—I have cited them only because I have learnt them from Diabetes UK and others who have helped me to prepare for this debate—we would change the lives of very large numbers of constituents in a way they would be able to manage, understand, comprehend and act upon reasonably quickly. I want the Minister to reflect on the dilemma I have described; it may not be quite so much of an either/or as I have painted it, but we need a democratic debate about that, which is part of the reason I have brought this debate to the House. Certainly we need an open and grown-up conversation about some of those measures and how we go about tackling what I have described as a crisis.

I do not want to speak forever, Mr Robertson—I know you and others in the Chamber will be disappointed to hear me say that. That will cause disappointment and even alarm among some, but I want others to contribute the debate. However, I have a couple of other points to make so I will move on—having taken a number of interventions already, I hope colleagues will bear with me.

I have been fascinated to read about research funded by Diabetes UK that proves that remission is possible. I would like to take the time to congratulate the hon. Member for West Bromwich East once again and to say that I hope many more people will recognise that remission is a real possibility for them by making changes in what they do.

Part of the issue is how lives more generally have changed. My father cycled five miles to work and five miles home every day, but now most people do not do that. Once many more people worked in manual jobs—my father had a physique like Charles Atlas, but the nearest I have come to Charles Atlas is reading an atlas. Part of the problem is the way we live now; far fewer people exercise implicitly in the way he did, and it seems that junk food is more appealing to many people than eating fresh, healthy produce—indeed, that has been recognised by successive Governments as significant for health outcomes.

Evidence shows the best way to reduce the risk of diabetes is through a healthy diet, being physically active and reducing weight. That can be facilitated through societal approaches and targeted individual interventions. Technology, including digital services to support lifestyle changes, is increasingly critical in diabetes prevention. To be sustainable, methods to prevent type 2 diabetes should focus on individual behaviour change, not just short-term activity levels.

We recently learned that, by their 10th birthday, the average child in the UK has consumed 18 years’ worth of sugar. That means they consume 2,800 more sugar cubes per year than recommended levels. The current food chain has become badly distorted. Basic knowledge that my parents’ generation took for granted about how to buy, cook, prepare and store food has steadily but alarming declined.

We have allowed soulless supermarkets to drive needless overconsumption of packaged, processed, passive, perturbing products, and it is time that the greed and carelessness of corporate multinational food retailers gave way to a better model. It is not a coincidence, it is something considerably more than that; as local food retailers have declined—people knew from whom they were buying, understood what they were buying and where it came from—the consumption of processed, packaged ready meals has grown. We need to rebalance the food chain in favour of locally produced, healthy produce and to re-educate people about how to buy, cook, eat and enjoy it.

[Luke Graham (Ochil and South Perthshire) (Con)]

I will certainly give no lectures on buying and cooking food, but will my right hon. Friend join me in supporting Diabetes UK’s Food Upfront campaign, which calls for a front-of-pack traffic light system to ensure that the content and nutritional value of processed foods are much clearer for people who are suffering from diabetes, and for a whole other range of dietary and nutritional needs?

[Sir John Hayes]

Entirely; in fact, I call on the Minister to do just that: will he introduce a mandatory front-of-pack traffic light labelling system, which is supported not only by my hon. Friend but by 83% of the population when asked whether that should happen? The Minister will be in tune with popular opinion; he will become something of a popular hero by responding to my hon. Friend’s request, which I amplify.

[Mr Vaizey]

We have Belisha beacons—could this not be the moment for Brine indicators?

[Sir John Hayes]

It could indeed. Not only that—I wonder whether we might consider a watershed on the advertising of junk food. Wherever children go, they face adverts suggesting that they eat all kinds of foods. As children, we never ate those things, did we? We were not exposed to the same kind of seductive, alluring advertising suggesting that children should consume that kind of food. There is an argument for cracking down, and Government have a role to play. Again, that kind of watershed on junk food advertising is supported by 76% of the population. The Minister would be a double hero if he did that.

Fitness matters, too. There must be a focus on exercise, given that studies illustrate that regular exercise pays dividends in respect of health and wellbeing, including diabetes. That is why we should not build on playing fields, close down sports halls and concrete over green spaces where people walk, play, run and enjoy all the opportunities to get healthy.

There is a link between poverty and ill health, as Members in the Chamber know very well. Although 6.6% of Britons have diabetes, that percentage falls markedly in wealthy areas. In Richmond upon Thames, 3.6% of residents have diabetes; in Bradford, the number rises to 10.4%. In south Lincolnshire, where my constituency is located, 7.3% of people have been diagnosed as diabetic. Such health inequalities must be addressed. It is with that in mind that I have campaigned so hard for the protection and maintenance of our parks and green spaces, which are often the only places that communities in less advantaged areas have to exercise, play sport and get healthy. In the case of diabetes prevention, do we perhaps take too puritanical an approach by rigidly pursuing individual outcomes? As I said, contrast that with what I described as the democratisation of the debate and the wider view that I have begun to outline today.

I commend, finally, the work of Government and the NHS on moving towards a fresh approach to diabetes in the NHS long-term plan, with a commitment to double the number of diabetes prevention programmes to 200,000 places. None the less, hon. Members will agree that that is a fraction of the 12.9 million people who are at high risk. Will my hon. Friend the Minister say how he plans to take a measured approach and appraise the evidence for all available solutions that might reach the wider population, beyond those targeted special programmes for that relatively small number—well, 200,000 is not a tiny number, but it is a relatively small proportion of the total number of people at risk of contracting diabetes?

Much commendable progress has been made, but it is now time for the Government to do several things. First, they must intensify their public information campaign and encourage everyone to speak about their own type 2 diabetes with their healthcare professional. Secondly, they should ensure that healthcare professionals offer a range of proven solutions, be that education or technology to enable self-management, or the resource to facilitate prevention at scale. Thirdly, they should continually review a rapidly changing environment and update the House on the tough political decisions being made to tackle this crisis of immense proportions. Politicians can no longer afford to abnegate their responsibility to a so-called expert class driven by bureaucracy. Too much is at stake. I know that the Minister will not be able to respond now to all my points, but I invite him to meet me and other concerned colleagues once he has had a chance to reflect on some of the issues, so that we can take the debate forward.

I began with C. S. Lewis, and I will end with him as well:

“We all want progress…If you are on the wrong road progress means doing an about-turn and walking back to the right road and in that case the man who turns back soonest is the most progressive man.”

I do not think we are entirely on the wrong road, but we must be honest about what more we can do. That is not for our own interests or sake, and it is not even for the Minister’s heroic reputation, which I championed earlier. It is for all those who are suffering, or who might suffer, from the crippling illness that is diabetes.

--- Later in debate ---

[Steve Brine]

Not only do I agree with my hon. Friend, but the company would agree with him. It is very aware of how much pressure that I and the Government are putting on it to change its products. I would say that it is top of my Christmas card list. Many other manufacturers have not yet made it on to my list, and I ask them to step up and raise their game to the level of the best. I am sure that they can.

In 2018-19, the diabetes prevention programme achieved full national roll-out, making England the first country in the world to achieve full geographical coverage. That is a great achievement, and the figures are good. As set out in the long-term plan, NHS England intends to double the capacity of the programme up to 200,000 people per annum by 2023-24. As my right hon. Friend the Member for South Holland and The Deepings said, it is a modest number in context, but it is also a big number. This is still the largest diabetes prevention programme of its kind. He asked whether we keep these things under constant review and whether we have the ambition to go further. You bet we do, and I think we need to.

There has been much talk this morning about technology. We are also developing an online, self-management support tool called HeLP, comprising a structured education course that has content focused on maintaining a healthy lifestyle for people with type 2 diabetes. That includes content on weight management and alcohol reduction—that can of course help with many health challenges—and cognitive behavioural therapy related to diabetes-related distress. NHSE hopes, once the tool has been developed, to roll it out in the summer of this year.

[Sir John Hayes]

In my opening remarks, I called for a new system for appraising technology and ensuring that it is allocated according to need and consistently across the country. On education, it does seem to me that there is a littered landscape. We have Public Health England, the NHS and local authorities. That littered landscape could easily lead to complication, confusion and even, possibly, contradiction, so will the Minister look at that, too?

[Steve Brine]

Of course I will look at it. I talk to Public Health England regularly about all these matters, and I take my right hon. Friend’s challenge on board. In the time that we have, I cannot respond in any more detail, but I totally take his challenge on board.

There are public health campaigns such as One You, the behavioural change campaign aimed at people in the 40-to-60 age bracket—sadly, that now includes me—and designed to motivate people to take steps to improve their health through action on the main risk factors, such as smoking, inactivity, obesity and alcohol, which will help to reduce the risk of developing type 2 diabetes.

I would like to say so much more, but as ever in the House of Commons there is no time to do so. What I will say is this. We have great ambition in the long-term plan. The long-term plan is a living document, a document that we will build on—we have ambitions to go even further—but I hope that the Government and I, as the Public Health Minister, have shown our commitment to improving outcomes for people with diabetes and living with it through treatment, but also to helping to prevent people from developing it in the first place. Our constituents demand that from us, and our health service, if we believe in it as a publicly funded, free at the point of use health service, which we do, needs us to deliver on that, and we will.

[Sir John Hayes]

I think that this has been, as the Minister generously said, a useful debate, but I hope that it is also the start of a process, rather than the end of a story. That process should involve, exactly as the right hon. Member for Knowsley (Mr Howarth) recommended, a continuing dialogue with Government. I hope that the Minister will agree to the meeting that I suggested with a small delegation of colleagues, so that we can explore further the matters raised briefly today. There are real issues in relation to prevention and education, as I hinted a moment ago, but also with regard to treatment, as the Minister has acknowledged. The long-term plan puts the strategy in place. We now need to ensure that that strategy is delivered in a way that brings relief from need for constituents across this country. That need is illustrated by the commitment of all those who have contributed to this debate. I am immensely grateful for your stewardship of it, Mr Robertson, for all the contributions and for the Minister’s typically robust but sensitive response to the remarks made this morning.

Question put and agreed to.

Resolved,

That this House has considered diabetes.