Rare Cancers Bill

Johanna Baxter Excerpts

2nd reading
Friday 14th March 2025 Commons Chamber

[Katrina Murray (Cumbernauld and Kirkintilloch) (Lab)]

There is hardly a family in the UK who have not been touched by cancer in some way—this morning’s debate has shown how much we reflect the population—and the feeling of fear, anxiety and heartbreak that comes with it. But for those diagnosed with a rare cancer, the challenges are even greater: delayed diagnosis, fewer treatment options and the shocking lack of research, which means that these patients and their families are often left in the dark. I am glad that we are united in saying that that has to change. I am so proud to support the Bill introduced by my hon. Friend the Member for Edinburgh South West (Dr Arthur)—I think I possibly worked with his father-in-law at Bell Baxter many years ago—because we now have the chance to turn the tide and focus on people with rare cancers.

We have talked a lot about the statistics. Rare cancers still do not get the same investment in research or access to clinical trials as common cancers. As a result, survival rates for some of the least survivable cancers, like pancreatic cancer, brain cancer and stomach cancer, are stuck at just 16%, which is not good enough.

Seven weeks ago, I lost my dad. More time has now passed since his death than the time we had between his diagnosis and his passing. The grief is still exceptionally raw.

[Johanna Baxter (Paisley and Renfrewshire South) (Lab)]

I pay tribute to my hon. Friend’s dad. He would be extremely proud of her, and of the speech that she is making.

[Katrina Murray]

I thank my hon. Friend for that intervention.

The Brain Tumour Charity and Brain Tumour Research have highlighted time and again that just 1% of national cancer research funding goes towards brain tumours, despite their being the biggest cancer killer of children and adults under 40. That is totally unacceptable. People who are dealing with these devastating diagnoses need more than words; they need real investment in clinical trials and better pathways to diagnosis. The Bill is about fairness—it is about tackling the lack of funding, the difficulty in getting patients into research, and the absence of clear Government leadership in this area.

People miss out on life-changing trials because they simply do not know that they exist. My hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh) talked about having a universal system in this country. We also have one of the most siloed systems. People in one part of the system often do not know what is going on in other parts, and we need that to stop. We have talked a lot about the approaches in places like the United States, where targeted policies have led to surges in new treatments for rare cancers. But we also need to recognise what else is going on in the United States: a raft of Executive orders from the White House is putting higher education and current clinical trials into a tailspin.

I want to pay tribute to the people who have helped me a lot over the last few weeks, in particular my hon. Friend the Member for Mitcham and Morden. She talks about being angry. I just remember that anger is a natural stage of grief, but it is also a massive driver for change and for getting things done. I am not at the angry stage just yet, but I will be at some point, and when I get there I will certainly be joining my hon. Friend; it is something we all get.

Somebody said to me many years ago that the greatest gift that any of us can give is the gift of time. No matter our political differences on other things, we have a chance today to give others the gift of time and to make sure no other families have to experience what we have had to go through. Please pass this Bill. Thank you.

--- Later in debate ---

[Johanna Baxter (Paisley and Renfrewshire South) (Lab)]

I will be brief, because I understand that we are at the end of the debate, but I rise to support the Bill and pay tribute to my hon. Friend the Member for Edinburgh South West (Dr Arthur) for bringing it forward, and for the dignified, collegiate manner in which he has gone about things. Up to 95 people in Paisley and Renfrewshire South will be facing a less survivable cancer. That is 95 people who will wait longer for a diagnosis, will face a postcode lottery to access specialist treatment, and will be left asking why there are so few treatment options available.

The truth is that rare cancers do not receive the research attention or funding that they need. The Bill would take decisive action to change that. It would introduce measures to break down systemic barriers preventing research and innovation in rare cancers. These are not abstract policy changes but lifesaving reforms that would give patients with rare cancers greater access to clinical trials. Researchers would have better tools to study the diseases, and pharmaceutical companies would be given stronger incentives to invest in treatments that could transform lives.

Behind every rare cancer diagnosis is a person fighting for their future, a family searching for answers and healthcare professionals looking for better treatment options. We cannot allow those individuals to be left behind simply because their condition is considered rare. We have the opportunity to change that. By supporting the Bill, we send a clear message that no cancer is too rare to matter, and that no patient should be forgotten. I am proud to support the Bill and thank my hon. Friend for bringing it forward.

[Madam Deputy Speaker (Ms Nusrat Ghani)]

I call the shadow Secretary of State.

Tobacco and Vapes Bill

Johanna Baxter Excerpts

2nd reading
Tuesday 26th November 2024 Commons Chamber

[Andrew Gwynne]

That is absolutely crucial. With this legislation, we have to make sure that we do not take our foot off the pedal when it comes to education and informing the next generation of children of the harms of smoking and vaping through our public health initiative.

[Johanna Baxter (Paisley and Renfrewshire South) (Lab)]

My constituents in Paisley and Renfrewshire South need a health service that moves from sickness to prevention, so can my hon. Friend confirm that this UK-wide Bill will impact my constituents? Has he had discussions with the Scottish Government about ensuring its implementation north of the border?

[Andrew Gwynne]

That is an important point, and it allows me to place on record my thanks to the Health Ministers in Scotland, Wales and Northern Ireland for how they have approached our desire to bring all parts of the United Kingdom together to make a smokefree United Kingdom, not just a smokefree England, through this legislation. I hope that I can reassure my hon. Friend that I have had incredibly fruitful conversations with the Health Minister in the SNP Scottish Government. She is as wedded and committed to this Bill and its measures as we are in this House today. I am reassured that across the whole United Kingdom, we will be walking in step to ensure that the next generation of children never takes up smoking.

National Insurance Contributions: Healthcare

Johanna Baxter Excerpts

Thursday 14th November 2024 Commons Chamber

[Karin Smyth]

The right hon. Gentleman says that it is an ill-thought-through Budget. I do not know whether he agrees or disagrees with the extra funding that the Government have committed to the NHS after the disaster of the last 14 years.

[Johanna Baxter (Paisley and Renfrewshire South) (Lab)]

This morning, we learned that the Scottish Government have wasted £28 million of taxpayers’ money on the flawed, ill-conceived National Care Service (Scotland) Bill, which did not command the support of almost any of the stakeholders needed to pass it. Does my hon. Friend agree that the additional funding for the NHS that has been committed to in our Labour Budget should be used to come up with a proper plan for social care across the UK that does not follow the flawed approach in Scotland?

[Karin Smyth]

I am so pleased to see my hon. Friend in her place. As I said to the hon. Member for Aberdeenshire North and Moray East (Seamus Logan), the SNP has been in charge of Scotland for a very long time. We have certainly missed having a Scottish Labour voice in this place. She makes an excellent point and shines some sunlight in this place on the actions that have been taken up in Holyrood.

Oral Answers to Questions

Johanna Baxter Excerpts

Tuesday 15th October 2024 Commons Chamber

[Wes Streeting]

I welcome the hon. Lady to her role. I am afraid that this case is just one of countless stories of people whose lives might have been saved had the NHS been there for them when they needed it. It is bad enough when people receive a late diagnosis that equates to a death sentence; it is worse still when people in that position are not given the fighting chance of urgent, life-extending treatment.

The inheritance we have received is truly shameful. I assure the hon. Lady, as a cancer survivor myself—because the NHS was there for me when I needed it—that we will work tirelessly through a national cancer plan to make sure that we deliver the cancer waiting time standards that the last Labour Government met, and that are sorely needed today.

[Johanna Baxter (Paisley and Renfrewshire South) (Lab)]

6. If he will make a comparative assessment of the adequacy of access to primary care services for men in (a) England and (b) Scotland.

[The Parliamentary Under-Secretary of State for Health and Social Care (Andrew Gwynne)]

As Lord Darzi identified in his NHS review, primary care is broken, with 1,600 fewer fully qualified GPs than in 2017. We recognise that men can face particular challenges in accessing services, which is why we are committed to fixing the front door to the NHS, bringing back the family doctor and shifting the focus of care away from hospitals and into the community. Health is devolved in Scotland, but I welcome opportunities to share learning across our two nations.

[Johanna Baxter]

In my Paisley and Renfrewshire South constituency, the rate of premature death in men is 47.9% higher than the UK average. According to National Records of Scotland, the number of people who have died by suicide in Renfrewshire as a whole has increased to the highest level in 10 years. Does my hon. Friend agree that this is a damning indictment of the SNP Government’s record on health? Will he commit today to holding a summit in November, with Movember, to raise men’s health up the agenda?

[Andrew Gwynne]

Those statistics are both damning and shocking. Health inequalities in any part of our United Kingdom need to be tackled, and the SNP Government have real questions to answer on these shocking statistics for men in my hon. Friend’s constituency and across Scotland. I will take up her challenge. A summit with Movember, and with her and other interested Members, to talk about men’s health issues is a cracking idea, and I will get straight on to it when I get back to the Department.