Jim Shannon
Main Page: Jim Shannon (Democratic Unionist Party - Strangford)Department Debates - View all Jim Shannon's debates with the Cabinet Office
(2 days ago)
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Adam Dance (Yeovil) (LD)
I beg to move,
That this House has considered the potential merits of appointing a Minister for Neurodiversity.
About 20% of the population are what we would call neurodivergent, yet there is no one person working across Government Departments to ensure that the needs of this 20% are considered. Neurodivergence is an umbrella term that describes people who think, learn, process, inform and interact with the world differently from the normal. It captures both medical and non-medical differences, including attention deficit and hyperactivity disorder, autism, dyslexia and so many others. I myself am very neurospicy, as I call it. Although each of those traits and learning difficulties is unique, we use the term not only because there are overlapping traits but because people with ADHD and autism, for example, share a lot of challenges with their health, school and work.
For years, the main challenge when it comes to Government has been an unacceptable lack of understanding of neurodivergence. Policymakers just have not got it and have made life harder, not better, for that 20% of the population. In fact, that lack of understanding is why I got involved in politics in the first place, campaigning to stop the closure of the youth club that helped to save my life when I was struggling with severe dyslexia, ADHD and severe bullying. It just made no sense to me that the Government and the then Conservative-run Somerset county council could not understand the damage they were doing by cutting youth service funding by 100% in Somerset, particularly for neurodiverse people.
Even after we saved my youth club, the feeling that decision makers just do not understand has followed me through politics. It is what drove me to stand for election and to be in this place today. For far too long, it has felt like the world has been set up by someone else, and like neurodiverse people are an afterthought.
I commend the hon. Gentleman for all that he does and for how he has been able to overcome these difficulties. Many neurodivergent people report being misunderstood by those around them, leaving them feeling isolated and without adequate support. A dedicated Minister for neurodiversity could help drive a more targeted approach. Does he agree that appointing a dedicated Minister would help to prevent neurodivergent people from falling through the cracks and would ensure that they receive the understanding that they very much deserve, which would help them in their lives?
Adam Dance
I completely agree, and I thank the hon. Member for bringing that up. I will come to lots of those points later.
Coming into this Parliament with a new group of MPs and a new Government, I was really hopeful. I thought we would get things done across the parties. There are some fantastic MPs and Ministers who really do get it, but there are still far too many in power who are just as clueless as the Tories were when they tried to shut my youth club. I have been in meetings where Ministers have suggested that ADHD is just a mental health illness, which is not the case, and in meetings and debates where MPs and others have leaned into toxic narratives about ADHD or autism being a myth. While these seem like lots of insignificant things, when they are put together, we get a culture that leads to policy that is not just bad but damaging for neurodiverse people.
In fact, in many ways I think we have gone backwards from when my generation was at school. Under-investment in diagnosis and support pathways in the NHS means that people face a two-year minimum wait for ADHD and autism assessments if they are lucky, and way too many miss out on support and treatment.
A whole generation have gone without any identification or support at all. Research by the charity The Hidden suggests that between 250,000 and 600,000 autistic adults over the age of 50 in England have never been diagnosed. The education system is not set up to support neurodiverse people. Years of under-investment in local councils, which are for some reason responsible for special educational needs and disabilities support, has led to a crisis in Somerset, where more than 85% of children wait 20 to 52 weeks to get their education, health and care plan implemented, if they are lucky, and so many others are going without support at all.
Meanwhile, vocational, technical and creative pathways are being shut down, and there is too much focus on exams. Spelling, punctuation and grammar marks in non-English exams just punish you for having a learning disability. A lack of investment in training and support for teachers has seen them struggling to support pupils or just not understanding them altogether.
Arm’s length bodies are just as bad. Recently removed training material from Ofsted on Prevent suggested that a person with autism is more likely to be a dangerous extremist because they may develop special interests, which is insane. My assistant’s younger sister is autistic; her special interest is frogs. How does that make her more likely to be a terrorist? Guidance like that means that people with autism are more likely to get those types of referral; it does not address the factors that actually lead to radicalisation.
It is not just about healthcare or schools. The failures spread to the workplace. You are 80% more likely not to be in education, employment or training if you have SEND. There is still too little understanding of how to adjust and make the most of neurodiverse people’s skills. Sadly, what all this means is that you are far more likely to end up in prison or taking your own life if you are neurodivergent. Without the support I had, that would have been me.
What is most frustrating of all is that none of the work across Government to solve this is joined up well enough. You do not stop struggling with dyslexia, ADHD, autism or any other neurotype difference when you leave school, believe me. Being neurodivergent means that you will experience our education, health, justice, work and pension and Government systems differently for your whole life. That is why we have so many campaigners out there fighting for support for neurodivergent people: because after years of terrible policy, too many people feel like I did as a young person, which is that decision makers just do not get it and cannot be trusted.
A Government are supposed to serve all their people, and yet we are failing to provide representation for 20% of the population. Think about it like this, Mr Stuart: if I owned a landscaping company and ignored the needs of 20% of my customers by using plants that they were allergic to and making it impossible for them to get around their gardens, I would rightly be out of business. The Government will probably not go out of business—well, I hope not, at least as long as Liz Truss is not allowed anywhere near the Government again—but their failure to properly represent the needs of 20% of the people they were elected to represent is more than just a policy failure. It is damaging our democracy.
What we need in Government is someone whose job it is to listen, to understand and to represent the needs of neurodiverse people. It is not about special treatment, but about making sure that politics—big and small, national and local—do not unfairly impact neurodivergent lives, as they so often do. Given all the big challenges in Government, considering the appointment of a neurodiversity Minister could not come at a better time. Our health service is being restructured, our local integrated care boards are being merged, while their budgets are being cut, and our SEND system is undergoing generational change. The Milburn and Timms reviews will see an overhaul of work and benefits support, local government is being totally restructured, and our justice and prison system is undergoing a serious overhaul as it faces collapse.
Despite the fact that these are the systems that educate, diagnose, support and rehabilitate neurodivergent people, no one in Government is currently responsible for neurodivergent people through this transition. We all know what institutions, politics and Government are like: without someone with authority in the room making the case for neurodivergent people’s needs, they will be drowned out and forgotten. That cannot be allowed to happen any more. Ultimately, that is why we need a Minister in the Cabinet Office for neurodiversity.
A Minister for neurodiversity is obviously no silver bullet. No one policy solution will fix this, but what we need is one officer holding responsibility for making sure we join up all the different solutions: someone who is working across Government and is able to hold Government Departments, bodies and local authorities to account, but also someone who can co-ordinate and help Government bodies to get it right. It is not that there is some evil group of neurodivergent-hating elite we need to get rid of. Well, I hope not; that would be way too easy. There are so many fantastic people across Government, at all levels, who want to do right by neurodivergent people, but right now our institutional culture across Government just does not give policymakers the space or the tools to consider neurodivergent people properly.
The Parliamentary Secretary, Cabinet Office (Sally Jameson)
It is a pleasure to serve under your chairship, Mr Stuart. I am grateful to the hon. Member for Yeovil (Adam Dance) for securing this important debate, and to other Members for their contributions.
I know that the hon. Member speaks truly from his own heart and his own experience about these issues. I assure him that I take his contribution very seriously, and I will make sure that the points he has raised are heard across Government, particularly in the Departments for Education, Health and Social Care, and Work and Pensions. It is so important that we have people like him in this Parliament, making sure that voices and experiences like his are heard not just here but across the country. I thank him for that.
One of the good things about the hon. Member for Yeovil (Adam Dance) introducing the debate is that, by showing others out there with disabilities how they can progress in life and what they can achieve, he will now become, perhaps unknowingly, an inspiration to them.
Sally Jameson
I agree. The hon. Member for Yeovil is a role model for many thousands, possibly millions, of people out there who might think that their neurodiversity could hold them back from office: he is showing that that is absolutely not the case. He is using his role in Parliament to make sure that these issues are brought to the forefront of Government, the media and so on. I congratulate him on doing that, both today and more widely in this place.
Supporting people who are neurodiverse is of critical importance to the Government. The hon. Member is right to say that we do not have a Minister solely responsible for neurodiversity. He will know that ministerial portfolios and the machinery of government more generally are matters exclusively for the Prime Minister himself, but I want to assure him that this is a core focus of Government policy across Departments. I would actually expect—as I am sure Ministers and people more widely would as well—that neurodiversity and the issues that affect neurodiverse people need to be woven into all Government policy across all Departments, regardless of whether there is a Minister. We should expect that and hold the Government and ourselves accountable to ensure that that is happening.
The particular issues raised today are overseen by the Secretaries of State for Health and Social Care, for Education, and for Work and Pensions. Those Secretaries of State and their Departments work closely together, and the Government continue to work on the needs of people who are neurodiverse.
The independent review into the prevalence and support for mental health conditions, ADHD and autism found that ADHD and autism referrals and waiting lists for diagnosis have “risen dramatically”. We want to ensure that people of all ages get the right support and, crucially, get it at the right time, without having to wait for a diagnosis before they can get access to help.
The Government recognise that waits for ADHD and autism assessment remain too long and have a huge impact on individuals and their families. We all know that from our constituency inboxes.