Baby Loss Awareness Week Debate
Full Debate: Read Full DebateJim Shannon
Main Page: Jim Shannon (Democratic Unionist Party - Strangford)Department Debates - View all Jim Shannon's debates with the Department of Health and Social Care
(6 days, 8 hours ago)
Commons Chamber
Andy MacNae
I agree wholeheartedly, and as the hon. Member will see, I will focus on that significantly later in my speech.
On miscarriage data, Scotland is expecting to begin routine data collection on miscarriage from this year. England should match that ambition. Linked to that, we also need to address anomalies in how stillbirth is defined and recorded. However, targets and data are only meaningful if someone is responsible for monitoring progress and challenging failure.
That brings me to my second point. The maternity and neonatal commissioner, as recommended by Baroness Amos, must be independent, empowered and properly resourced. The commissioner could provide a strong national voice for women, babies and families, monitoring whether recommendations are implemented, holding the system to account and ultimately helping to rebuild trust. The commissioner should report regularly to Parliament on progress against national targets, identify where improvement has stalled and require public bodies to explain what corrective action they will take. That must include being able to challenge the regulators. Long-terms issues with the Care Quality Commission and the General Medical Council are well recognised, but effective, trusted and fit-for-purpose regulators are a crucial element of any maternity safety system and a maternity commissioner should be able to demand better of them.
The commissioner’s potential will be realised only if they can act independently of the system being scrutinised. The system cannot be allowed to mark its own homework. The commissioner should have a statutory basis, independent publication rights, the power to obtain information and make formal recommendations, and a duty to monitor their implementation. The office will also need protected funding and a dedicated team. The Government must explain how the commissioner will work alongside the taskforce and other bodies, what powers the office will possess and how its independence will be protected. That will be particularly important if the role is to be based within the Department of Health and Social Care. If that is the case, the Government should present a clear rationale as to why it is the best option and provide specific assurances around independence. Ultimately, families will judge the maternity commissioner role by whether it can ask difficult questions, publish uncomfortable findings and demand proof that change has occurred.
I was hoping the hon. Member would mention this point. When there is a tragedy, a loss, a heart aching and a family grieving a child they have lost, that really hurts. Does he, and ultimately the Government, feel that there should be access to a person of faith—perhaps a chaplain, a man or woman of the cloth—who could come forward to provide succour and support whenever they need it?
Andy MacNae
I think this connects to the issue of personalised care. When it comes to bereavement support, it is the care and support that works for that individual. I will talk later about personalised care plans and personalised support plans during bereavement, but it is about reflecting on what the individual needs, not what the system says someone needs.
I thank the hon. Member for Rossendale and Darwen (Andy MacNae) for that excellent opening speech. I also thank him and the hon. Member for Sherwood Forest (Michelle Welsh) for co-sponsoring the debate with me.
Most of all, however, I thank the parents who have lost children, and who took me on a journey on this issue when I was Health Secretary. I am thinking of James Titcombe, who lost his son Joshua at Morecambe Bay; of Carl Hendrickson, who lost his wife Nittaya and his son Chester at Morecambe Bay; of Richard Stanton and Rhiannon Davies, who lost their daughter Kate at Shrewsbury and Telford; of Derek Richford, who lost his grandson Harry at East Kent. They, and many others, are watching this debate and can see that the Health Secretary is here. I thank her for being here for this Backbench Business debate; it means an awful lot, and I know that she cares about the issue.
I start by recognising that some progress has been made. Since I first stood at the Dispatch Box in 2014 with the Morecambe Bay inquiry, which was the first of many maternity safety inquiries, the neonatal deathrate has fallen by 21%—about 700 fewer deaths a year—but that is not good enough. The fall in death rates plateaued in 2020 and has not got much better, and since then we have had a worrying rise in maternal deaths. The 2025 target to halve neonatal deaths that I set in 2017 was missed.
There are three problems behind our lack of progress. First—and this is something for which I am partially responsible—there are too many recommendations. Earlier this year, Baroness Amos counted 748 maternity safety recommendations, mainly since 2015. The NHS is a world champion at doing reports into maternity safety, but sadly not a world champion at implementing the recommendations made.
It is encouraging that the Health Secretary says that there will be a recommendations hub, but could she give it real teeth, so that there is a timescale within which the NHS will decide if it is going to adopt a recommendation and, if it is going to, a person responsible for implementing it within the vast labyrinth that is the NHS? Could she give a timescale so that we and our constituents all know that something really is going to happen?
I know the right hon. Gentleman will be aware of the research that suggests that giving women access to specialised care after their first miscarriage can help prevent baby loss. Currently, specialist care is only offered after three miscarriages. It is estimated that supporting early intervention could prevent around 10,000 baby losses a year—that is one thing that could be done right now.
I absolutely agree with the hon. Gentleman, and his point closely links to the second of my three reasons, which is that we have still not, after all this time, implemented proper continuity of care. That should mean that every mother, from the moment she is told that she is pregnant, is assigned one team of doctors and midwives to be with her throughout pregnancy, birth and even after the birth. Clinical teams that know their patients are much more likely to identify risk when it happens and to avoid tragedies. That lack of continuity of care sits behind the feeling that we heard about in the speech by the hon. Member for Rossendale and Darwen: parents saying time after time that they feel forgotten in the system.
It is a pleasure to follow the hon. Member for Morecambe and Lunesdale (Lizzi Collinge). I thank her for sharing her personal story, as many others have in this Chamber. Those personal stories remind us all of the grief, the loss and the pain. Thank you, Madam Deputy Speaker, for allowing this important debate to be brought forward.
Baby Loss Awareness Week provides an important opportunity to raise awareness and to reflect on loss. Everyone who has spoken tonight has reflected on loss, whether directly or through friends and family. However, we must recognise that the impact of baby loss extends beyond this week. It is not just this week; it is every other week of the year. Families continue to carry their grief long after this campaign ends.
Losing a baby, both before and after term, is devastating. Parents speak of the potential of what could have been, of the hopes and dreams they had for their child and the milestones that they believed they would celebrate, but that were not to be. With this loss comes immense grief and anxiety, and the impact, not only on the mother but on the wider family circle, cannot be overestimated.
I know that the mums, the dads and the siblings will probably feel the pain more, but the grandparents, aunties, uncles, sisters and brothers all feel it as well, because they are all living through their family member, hoping that the new life will be something they can enjoy as well. For many families, this continues to affect future pregnancies. Parents report feeling constant fear and anxiety, waiting with grim anticipation for this tragic event to happen again. Sadly, for some families it does.
My mother had four children, but she also lost four. My speechwriter Naomi, who is a very busy girl, also lost her first baby. Many of my constituents tell me of their loss, and this debate allows me to express, on their behalf, their sorrow and the fact that it means so much to them.
Supporting women through and after this loss should be a priority. We must advocate for open communication among friends and family, as many women have shared that talking about their loss has helped their healing and made them realise that they are not alone in this experience—and they are not alone in this experience. They have their family, and many others have been through the same pain.
Supporting women in this loss is essential, but we must also do everything we can to prevent loss, where possible. I drew attention in an earlier intervention to the research suggesting that giving women access to specialised care after their first miscarriage could help to prevent baby loss.
Lee Pitcher (Doncaster East and the Isle of Axholme) (Lab)
My daughter is a rainbow baby. It is amazing that we managed to have her, but the hurt and the pain to get to that position, when you have lost children in between, is absolutely unbelievable. Does the hon. Gentleman agree with me, based on what he has just said, that it is so important that after that first loss, as Tommy’s has suggested, intervention and professional support is given immediately, both in terms of investigating and understanding the cause and in terms of mental health support?
I totally agree with the hon. Gentleman, as I think does everybody in the Chamber. Currently, specialist care is offered only after three miscarriages. Estimates suggest that if early intervention were offered after one miscarriage, potentially around 10,000 losses could be prevented each year in the UK. That is the magnitude of just one step in the right direction. I look forward to the Minister’s response, and I hope that she can give us some encouragement. She is compassionate, and she understands how all of us in the Chamber feel about this issue, so I hope we can get that reassurance.
I want to speak about Northern Ireland, as the hon. Member for Lagan Valley (Sorcha Eastwood) already has done. I sincerely welcome the recent changes in Northern Ireland. We became the first region in the United Kingdom of Great Britain and Northern Ireland to provide paid leave to both parents affected by miscarriage. It is really important that our Minister took that step in the right direction. Maybe it is something that the Secretary of State would consider implementing here on the mainland where it would help many people. It is estimated that around 9,000 people per year in Northern Ireland are affected by miscarriage, which leaves me in no doubt that the change will have a real impact on families in Northern Ireland.
Further efforts have been made in Northern Ireland, including through the baby loss certificate scheme—perhaps a small thing but it is has a big effect. Certificates are now available to anyone who has experienced a pregnancy loss before the end of the 24th week of pregnancy. The formal recognition of the loss offers families, who previously went unrecognised, a degree of comfort and closure.
In an intervention on the hon. Member for Rossendale and Darwen (Andy MacNae), I spoke about the importance of having a chaplain or minister available to give the succour and care that is sometimes needed. There is a spiritual dimension to loss. As a Christian, it would mean a whole lot to me, but I think it would mean a whole lot to others as well if they had that opportunity. Perhaps the Secretary of State can provide some reassurance on that as well.
We must ensure that the impact of these schemes is properly evaluated so that we can understand how effective they are in supporting bereaved families. If the evidence shows that measures are making a meaningful difference, this House must consider how similar support can be implemented across the UK.
It is clear that baby loss has a lasting impact. Every baby lost represents a life that could have been lived and a future that might have been. We must show compassion and understanding to those affected, not only during Baby Loss Awareness Week but every day of the year.
Several hon. Members rose—