NHS Continuing Healthcare

Jim Shannon Excerpts

Wednesday 25th March 2026 Westminster Hall

[Ayoub Khan (Birmingham Perry Barr) (Ind)]

I beg to move,

That this House has considered NHS continuing healthcare.

It is a privilege to serve under your chairship, Mrs Harris. The continuing healthcare—CHC—system should represent the very best of our national health service, offering 24-hour, round-the-clock care for approximately 50,000 of the country’s most vulnerable adults, but at the moment the reality is quite the opposite, exposing some of the system’s innermost failures.

For those who may be unaware, continuing healthcare is a package of care arranged and fully funded by the NHS for adults with significant ongoing health needs. Crucially, eligibility is based not on diagnosis, but on whether a person has a “primary health need”. If they qualify, the NHS covers all their care costs; if they do not, they are left to navigate a complex and means-tested social care system, often at catastrophic personal cost to their carers and family.

CHC was created to protect those with the most severe and complex needs, but today it often does the opposite: it confuses, delays and denies. CHC is a lifeline for people with the most complex, severe and often life-limiting conditions, making it all the more crippling when funding is stripped at short notice without a clear reason, and yet there is a body of evidence, which is growing year on year, to suggest that the system is unfair, inconsistent and often inaccessible to those who need it most.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Gentleman for bringing this debate forward. I spoke to him beforehand, as I always try to be helpful in my contributions. He may only now be aware that in 2023, the High Court in Northern Ireland determined that the previous Northern Ireland continuing healthcare policy breached obligations regarding equality for older people—some of the very things that he is referring to. As a result, the Department of Health in Northern Ireland is in the process of reviewing and developing new, fairer guidance. Does he agree that, UK-wide, this must be tailored care, with an understanding that one size simply cannot fit all?

[Ayoub Khan]

I totally agree about the need for parity of service across the United Kingdom. That must be not only the right thing, but the only thing to do.

A recent report from the Nuffield Trust describes CHC as an “all or nothing” affair for applicants that creates a cliff edge between carers getting full NHS funding and paying out of pocket to care for loved ones. But although chance certainly plays a role in determining who gets funding and who does not, there is also a sinister practice at play—one that violates the very principles of our health service and inflicts unnecessary hardship on families across the country. That is the ever more common practice of revoking funding, and making vulnerable people appeal and fight for the right to retain the funding they should have had all along. We see the same pattern emerging with benefit claimants and home-to-school transport for 16 to 18-year-olds with special educational needs and disabilities. In the vast majority of cases, after all the time and energy wasted by applicants and assessors, the decision is overturned.