Hughes Report: Second Anniversary Debate
Full Debate: Read Full DebateJames Naish
Main Page: James Naish (Labour - Rushcliffe)Department Debates - View all James Naish's debates with the Department of Health and Social Care
(6 days, 19 hours ago)
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James Naish (Rushcliffe) (Lab)
Thank you for your chairship, Dr Allin-Khan. I congratulate the hon. Member for Chesham and Amersham (Sarah Green) on securing this debate. I will put one family at the heart of my response: my constituent Catherine and her son Matthew, whom I mentioned in Prime Minister’s questions last February, 12 months ago.
When she was pregnant, Catherine did what any parent would do: she trusted the medical advice that she was given. She was prescribed sodium valproate, a medicine used to treat epilepsy. Matthew is now 24 years old, and as a result of that medical advice he has lifelong needs and a learning disability. He has done incredibly well, securing a part-time job and maintaining a level of independence while walking around the village where he lives.
Matthew was also incredibly proud to take part in the 2024 general election, and he voted in the hope that there would finally be redress for those affected by the valproate scandal. Matthew has since written to the Prime Minister; I put on the record my frustration at seeing how his correspondence was passed from pillar to post. It was only after several chases by me that Matthew received a response—a response entirely inappropriate for somebody with a learning disability.
Catherine and her family provide significant support to Matthew, and his life is all the richer for it. But that is not the case for all children impacted by sodium valproate, and there will come a point in time when Catherine will not be able to provide that support any longer. Catherine, and other families in the Public Gallery today, fear that day, and they want the state to ensure that specialist assessments, therapies, adaptations, lost earnings and round-the-clock care are provisioned for now, so that a secure future for their children is guaranteed.
That is why the Patient Safety Commissioner’s report is so important. It sets out a clear and workable route, and it is the responsibility of this Government to acknowledge that. Every month of delay is another month when parents are left to patch together support, fight for diagnoses, battle through fragmented services and carry costs that should never have landed on their shoulders.
Today I ask the Minister directly, as I asked the Prime Minister 12 months ago: will the Government commit to a clear timetable for implementing the Hughes recommendations? For Catherine and Matthew, the argument that the situation is complex simply does not land. Their lives are already complex—more complex than most of us can even imagine. What they are asking the Government to do is simple: accept responsibility for the scandal and act now while the redress can still be meaningful.
The question today is whether this Government—the Government who both Catherine and Matthew were desperate to see when I first met them, as a candidate—will match that urgency with action. I hope that the Minister will take seriously all the representations made today.