(1 month ago)
Commons ChamberI congratulate my hon. Friend the Member for Stroud (Dr Opher) on getting this important debate in the House. People sometimes talk about rising levels of obesity as simply a consequence of individual choices; they say the issue is no more complex than the fact that people are choosing not to eat healthily and not to exercise regularly. But if we talk to any expert, academic or parent struggling to put food on the table, they will say that the truth is much more complicated, because rising rates of obesity are deeply tied to social and economic changes.
Over the past 30 years, obesity rates have doubled while people’s knowledge of nutrition has not declined. Instead, experts point to the changes in the food environment. Unhealthy food has become much cheaper, easier to access and more convenient, while healthy options have become more expensive, harder to access and less convenient. The facts bear that out. Today, fruit and vegetables cost twice as much per calorie as foods high in fat and sugar. To eat in line with the Government’s recommended diet, the most deprived fifth of UK households would need to spend 50% of their disposable income on food, while the richest fifth would need to spend just 11%, according to research from the Food Foundation. It is little wonder, therefore, that the most deprived fifth of households eat more than a third less fruit and vegetables compared with the wealthiest fifth. Although everyone is affected by the food environment, it does not affect everyone equally. It is harder for working-class families to afford healthy and nutritious food—that is beyond doubt.
That link between poverty and obesity is clearly seen among children. Those in the most deprived fifth of the population are more than twice as likely to be living with obesity than those in the richest fifth. Children in Knowsley, which forms part of my constituency, have some of the highest rates of obesity in the country. The fantastic director of public health at Knowsley council, Sarah McNulty, says that that is a poverty and deprivation issue.
It does not have to be this way. Instead of a food system that pumps out unhealthy food while millions struggle to put a meal on the table, we could have a system that guarantees everyone a good, healthy diet—putting an end to the scandal of hunger and food banks. That is the demand of the Right to Food campaign, which I am very proud to lead in Parliament. It seeks first and foremost to end the injustice of food poverty, but also to ensure that food is of high quality and healthy. That means everything from ensuring that high-street planning encourages healthy eating, and building a proper safety net to get people out of food banks, to introducing universal free school meals and opening community kitchens. We know the effects that those policies have in tackling food poverty and obesity. Academic studies show that in the London boroughs that have provided free school meals for all primary school pupils, the prevalence of obesity has been reduced by around 10%.
In Liverpool, co-operatives such as Food for Thought, a non-profit company that produces school meals, are waiting to go on free school meals. Many areas in Liverpool are classed as food deserts, with healthy food in short supply and unaffordable for people who are struggling to get by after the cost of living crisis and 14 years of grinding austerity. Just 24% of adults in my great city of Liverpool eat five portions of fruit and vegetables every day.
In 2019, Fans Supporting Foodbanks—an organisation we set up in 2015—created the market-style mobile food pantry model to tackle the issue of food deserts in Liverpool, which has since fed thousands of families across Liverpool and St Helens in a non-stigmatising manner, with fresh fruit and vegetables an absolutely fundamental part of the offering. I take this opportunity to place on the record my thanks to all the volunteers who have created that unique model and made it such a success; it has made such a difference to lots of communities across Liverpool.
Since 2017, the Rose vouchers for fruit and veg project has supported struggling families in Liverpool to access fruit and veg. Almost £300,000-worth of fresh fruit and veg has been bought with the vouchers, enabling almost 5,000 people to access healthy options and avoid food poverty. Such community-led solutions, which put people before profit, are one way we can help those in our communities who are struggling to access healthy and affordable food. I take this opportunity once again to thank everybody involved in those projects.
Both those fantastic schemes are sticking plasters over a gaping wound. We need systemic change. Implementing a right to food is not the art of the impossible; it is in the Government’s gift. Its funding could be underpinned by a high fat, salt and sugar levy on food producers. The remodelling of our food system into one that keeps the population and future generations healthy is a political choice. For the sake of future generations, I hope that the Government make the right choice.
(1 month, 1 week ago)
Commons ChamberI thank the hon. Member for Wimbledon (Mr Kohler) for securing this important debate and for his passionate contribution.
It is shocking that, on average, only one third of hospice funding is provided by government, with the rest coming from charitable donations. Rising costs, inconsistent income and a shortage of state funding have left the hospice sector in a precarious position. Indeed, many have had to cut back on the services they can offer and are struggling to meet growing need. A recent meeting of the all-party parliamentary group on hospice and end of life care made for a sobering experience for all the MPs present, because every representative from the hospice sector outlined their fear around the future.
I am blessed to have both Claire House and Zoe’s Place children’s hospices in my constituency of Liverpool West Derby, but we witnessed first-hand last year the seriousness of the situation for hospices with the threatened closure of Zoe’s Place, which rocked us all to the core in my great city. It was unthinkable that something so precious should be lost, but, due to the lack of funds, it was going to happen. However, the community of Liverpool and beyond rose to the challenge by raising an incredible £5 million in 30 days to ensure that this amazing place could remain open. While I have the chance, I want to thank every single individual and organisation who worked relentlessly to make this happen: without them all, the city of Liverpool would have lost Zoe’s Place. There are so many that I could name, but let me thank the Steve Morgan Foundation, the 64 Trust and TJ Morris for underpinning this remarkable community effort. They should not have had to do this.
I am pleased, then, that in December the Government recognised the crisis faced by hospices and committed £126 million to the sector, with £100 million of one-off funding and a one-year extension of the children’s hospice grant, but this is still only a sticking plaster. Hospices need consistent, reliable funding that accurately reflects the cost of care and their value in society to be able to meet the growing demand for palliative and end of life care, to ensure that people have the best possible experience at the end of their lives, and to prevent future funding crises. Hospice sector leaders have estimated that the need for palliative care in the UK will increase by 25% over the next 25 years, and it is clear that long-term reform of the hospice funding model is necessary to ensure that this demand can be met. That is why I back the calls from Hospice UK for the Government to commit themselves to a long-term reform of hospice funding in their 10-year plan for the NHS.
I have a couple of questions for the Minister, who has been superb in supporting me over Zoe’s Place. Will the Government ensure that the confirmed £26 million NHS England funding for children’s hospices for 2025-26 is ringfenced, distributed centrally, and increased in line with inflation in subsequent years, and does the Minister recognise the strong preference among children’s hospices for that £26 million to be distributed as a centrally managed and ringfenced grant rather than being distributed via integrated care boards?
Without ongoing Government support and a fresh funding model, what nearly happened to Zoe’s Place in Liverpool will happen elsewhere. Hospices will undoubtedly close down. The problems are systemic, and it will take Government action to fix that. The city of Liverpool rose to the challenge to save Zoe’s Place; now this place has to rise to the challenge as well, and give all hospices the funding that they need to survive. This cannot wait, because all who rely on these incredible services do not have time on their side.
(3 months ago)
Commons ChamberI can assure the hon. Lady that the Government will ensure that the authority has the support it needs. I expect it to be making the first payments to infected people by the end of the year, and to start making payments to affected people next year. Further regulations will be required for people who are affected, but that will not disturb the timetable that I have set out. I intend the second set of regulations to be in force by 31 March next year. More than £1 billion has already been paid out in interim compensation, and the Government have opened applications for interim payments of £100,000 to the estates of deceased people who were infected with contaminated blood or blood products and have not yet been recognised.
Last week a constituent came to my office whose mother had died 50 years ago, eight months after a blood transfusion she had received when giving birth to her fourth son. When the family went back to collect the medical records, they found that they had all been destroyed. When we talk about a cover-up, they rightly make that link. Is there anything the Government can say to reassure my constituent that her case will be heard?
The Infected Blood Compensation Authority will obviously take—and I know this because of the discussions I have had with Sir Robert Francis—a sympathetic view of the level of evidence that will be required. Sometimes the problem is that the issues complained of date from so long ago, but another chilling aspect of this scandal is, in some cases, the wilful destruction of documents. That is something that we have to take into account when it comes to securing justice for people. I have had the privilege of meeting several members of the community, and I am grateful to them for continuing to campaign on this issue. Let me also openly express my gratitude to Sir Robert Francis and David Foley of the Infected Blood Compensation Authority for continuing to work with the community to drive that delivery of compensation forward.
Ending the defensive culture in the civil service and Government is a cultural change that should unite all of us throughout public life. That is why work is under way across Government to strengthen responsibilities relating to candour and transparency for public servants. In the King’s Speech that opened this Parliament, the Government set out their commitment to legislation to introduce a duty of candour for public authorities and public servants, and the Prime Minister confirmed at the party conference that such legislation would be delivered. He said:
“It’s a law for the sub-postmasters in the Horizon scandal. The victims of infected blood. Windrush. Grenfell Tower. And all the countless injustices over the years, suffered by working people at the hands of those who were supposed to serve them.”
He also said that the Hillsborough law would be introduced to Parliament before the anniversary of that event, on 15 April next year.
(3 months, 3 weeks ago)
Westminster HallWestminster Hall is an alternative Chamber for MPs to hold debates, named after the adjoining Westminster Hall.
Each debate is chaired by an MP from the Panel of Chairs, rather than the Speaker or Deputy Speaker. A Government Minister will give the final speech, and no votes may be called on the debate topic.
This information is provided by Parallel Parliament and does not comprise part of the offical record
I beg to move,
That this House has considered funding for children’s hospices.
It is a pleasure, as always, to serve under your chairship, Mr Twigg.
“To me and my family, Zoe’s Place represents one word… family…They gave my confidence to give my angel 10 years of a fantastic life and provided the most outstanding care when she passed away last year.”
Those are the words of Abbi, mother of Evie-Kate, who relied on Zoe’s Place, a children’s hospice in my constituency. Abbi said:
“Without Zoe’s Place and the support, friends, families and being able to go visit my baby girl’s plaque on her final day…I would be a broken woman.”
Another parent, Jennifer, mother of Theo, said Zoe’s Place means that
“Theo gets the love and care that he has at home, they have been amazing, I can’t put into words how much we will miss the girls…The pure joy in Theo’s face as we pull up and see the Teddy bear. So yes, to us Zoe’s Place is our family…Zoe’s Place has been a massive support and a lifeline, without Zoe’s Place we wouldn’t have got Theo home from Alder Hey after being there for 12 months.”
Those parents are far from alone in finding Zoe’s Place to be an absolute lifeline. If I had more time, I would love to tell hon. Members about countless other families and children supported by Zoe’s Place. But I applied for this debate because earlier this month, we received the shocking news that Zoe’s Place was going to close. Jennifer spoke of her “devastation” on hearing the news, and Abbi said:
“Please don’t take this amazing place away.”
Zoe’s Place opened in my constituency in 1995 and has supported thousands of children and their family members over the years, providing respite and palliative and end of life care for babies and children up to the age of five. It is one of two wonderful children’s hospices that my constituency is home to and which I am so proud of. The other is Claire House, another place of love and warmth, with the most wonderful staff, who do so much good when families are facing such heartbreak. I see that at first hand when I volunteer at that wonderful place, and I find speaking to the families so enlightening. The absolutely life-changing service offered and given by those places is why we could not accept the news, when it was announced three weeks ago, that spiralling costs meant there was not enough money to build a planned new home for Zoe’s Place.
I congratulate the hon. Member on securing a debate on such an important issue. He mentions Claire House, which also has a site in my constituency. Claire House is an essential part of our health and social care system, and on my visit there, I could see the clear passion and pride that people have in that service and the important work it does for my constituents. With integrated care board funding for children’s hospices varying so significantly across England, does he agree that more must be done to ensure that every seriously ill child and their family, regardless of where they live, have equitable access to palliative care?
I thank the hon. Member for that wonderful intervention; I wholeheartedly agree about what Claire House does and with his asks.
Three weeks ago, it was announced that spiralling costs meant that there was not enough money to build a planned new home for Zoe’s Place and that the baby hospice would close for good at the end of the year. It was therefore with real trepidation that we met the trustees on the Thursday after the announcement. We entered Zoe’s Place with the staff—many had been there for decades—feeling devastated after being issued with the consultation period ahead of the planned closure. At the meeting, we were desperate to find a future for Zoe’s Place. The trustees and the staff present outlined what we needed to do: raise £5 million in 30 days and then Zoe’s Place could have a future.
I thank my good friend for giving way and I congratulate him on securing this important debate. Will he join me in congratulating the wonderful community of Liverpool on its amazing work to secure nearly £5 million for Zoe’s Place? However, does he agree that instead of relying on charitable trusts to support these important hospices, we need to think about how we put them on a statutory footing to provide better end of life care for everybody?
I thank my hon. Friend for her excellent intervention; I wholeheartedly agree.
We had to raise £5 million in 30 days to give Zoe’s Place a future, so I asked the trustees to let us give it a shot, harnessing the spirit of the city, which has been galvanised since people heard the news, and the love for this wonderful institution. We put the call out in Liverpool, and I have never seen a response like it in my life. It has been my great city at its very best, for the world to see. We have had kids going door-knocking with fundraising buckets, raising money because one of their friends is being supported by the hospice; parents who turned to Zoe’s Place in times of need organising fundraising walks and sponsored motorbike rides; and support from MPs, such as my right hon. Friend the Member for Hayes and Harlington (John McDonnell) promising to carry on playing his unique take on “You’ll Never Walk Alone” on his trombone if we did not raise the funds—the city has spoken, John, and I’m saying no more. Cafés have pledged their takings to the campaign, running raffles to raise money, and local businesses have got involved, donating tens of thousands of pounds, and their time and expertise, which will never be forgotten.
Will my hon. Friend accept from me the congratulations of the people of Leeds, who value Martin House Children’s Hospice in Wetherby so highly? Many people in Leeds will look to Liverpool with great admiration at the incredible fundraising efforts, which have impressed and inspired so many. They have also led people to conclude that we cannot allow places such as Zoe’s Place to go to the wall, and that guaranteed full funding for palliative care and children’s hospices is a must.
I thank my hon. Friend for that excellent intervention, with which I wholeheartedly agree. Former football stars from Liverpool joined the efforts, donating more than £150,000. The local paper, the Liverpool Echo, and its staff led by Liam Thorp, have thrown their weight behind the campaign, doing everything they could to save the hospice. On Monday, we had the incredible news that Liverpool-based company Home Bargains was pledging £2.5 million to the campaign, bringing us within touching distance of the total.
The tireless and wonderful work of so many has been invaluable over the past few weeks. There are so many to thank, if I had the time, but I must pay tribute to the wonderful comic, Adam Rowe and fellow funnyman, Willie Miller, who have done so much to raise this issue both publicly and behind the scenes, and John Gibbons from “The Anfield Wrap” for his tireless efforts over the past few weeks.
There are still 10 days to go, and we are not over the line yet, but we are proving that if any city can do it, Liverpool can. The community, the solidarity, the togetherness—I have never been prouder to be a Scouser. Today, the plans for the future are coming together. Last week, we announced what the new Zoe’s Place Liverpool would be like, operated and run in Liverpool, putting it on a footing to care for kids from across Liverpool and beyond for generations to come. I am really optimistic that we will do it.
But the truth is this: talk to the families who rely on Zoe’s Place and Claire House, see the support that those hospices give to seriously ill children, babies and families, and you will know that that support is not a luxury—it is essential in a modern, functioning society. They provide a vital service that should not require charity to keep it going. Everyone who needs it should have access to high-quality palliative and end of life care, but that is not happening at the moment. Not just Zoe’s Place, but children’s hospices across the country are in crisis, with many more fearing for their future.
That is why today’s debate is important to families up and down Britain. Despite children’s hospices providing an essential service, they are overwhelmingly funded by charity. Less than a third of their income—around 30% —is public money, with the remaining 70% coming from charitable donations. That is a broken model. Let me be clear that I have the utmost respect for people who give up their time and money to support our hospices, but as one constituent said to me recently:
“We shouldn’t have to sell charity cupcakes to make sure kids are cared for”.
But that is what is happening at the moment.
The public funding element of children’s hospices is both inadequate and messy. Most of it comes from the children’s hospice grant. Introduced by the previous Labour Government, it was designed to provide direct funding to children’s hospices. Today, it stands as a £25 million grant, but it has an uncertain future. It was renewed by the previous Government for 2024-25, but the new Government have not yet said whether the funding will continue. According to the charity Together for Short Lives, if the grant is not renewed, there will be a profoundly negative impact on lifeline care and support. Eighty-two per cent of children’s hospices told the charity that they would have to cut or stop providing respite care or short breaks; 70% said they would have to cut or stop providing emotional and psychological support; and 45% said they would have to cut end of life care.
Will the Government commit to maintaining the £25 million children’s hospice grant as a ringfenced fund in 2025-26 and for the long term? Will they commit to making it centrally distributed once again? Many care homes have said to me that they are opposed to the integrated care board model that NHS England is using, as it has led to delays in children’s hospices receiving money.
The next biggest pot of public money for children’s hospices comes from integrated care boards, which have a legal duty to commission palliative care, but the funding is patchy and falling. Research shows that the funding per child with a life-limiting or life-threatening condition varies wildly across the country. It is just £30 per child in Northamptonshire but £397 in Bristol, north Somerset and south Gloucestershire. In my area, Cheshire and Merseyside, it is slightly above average at £206, but there should be no postcode lottery in funding care for kids. And the funding is falling—last financial year, children’s hospices on average received almost 10% less funding than the year before, and almost a third less than the year before that. What are the Government doing to make sure that every seriously ill child and their family, regardless of where they live, have fair and equal access to palliative care?
Local authorities have a duty
“to provide services designed to assist”
family carers of
“disabled children to continue to”
provide care
“or to do so more effectively, by giving them breaks from caring.”
Local authorities, which are under immense pressure, account for just a small fraction of children’s hospice public funding—about 2.5% of the total. The funding fell by 26% from last year to this year, and more than half of children’s hospices received no funding at all from their local authorities. What conversations is the Minister having with colleagues in the Ministry of Housing, Communities and Local Government to ensure that local authorities meet their legal duty to provide short breaks for disabled children who have life-limiting or life-threatening conditions?
The funding streams are insufficient for children’s hospices at the best of times, but we really are at crisis point. That is why we are all here today. With public funding falling, charitable donations squeezed as the cost of living crisis bites—the cost of living crisis, again, is affecting us all— and increased energy prices, children’s hospices have seen their income fall. That is having grave consequences. More than half of children’s hospices in England ended the last financial year with a net deficit, and it gets worse: next year, more than two thirds of children’s hospices forecast a deficit. Unless more public money is found, more and more children’s hospices will have to cut back, more services will be reduced, more kids will miss out, more families will have nowhere to turn and more children’s hospices will be put at risk, just like Zoe’s Place in Liverpool. Extra funding is needed just to stay still, let alone to build the world-class care system that our constituents deserve.
According to research from Together for Short Lives, the NHS needs almost £300 million extra to meet the standards for children’s palliative care set by the National Institute for Health and Care Excellence. That is the inheritance of 14 years of Conservative chaos, with deeply damaging NHS reforms and chronic underfunding of our public services. Our new Labour Government promised change, and that must be delivered. Will they use the opportunity of the NHS 10-year plan to fill the almost £300 million gap in funding for children’s palliative care?
Let me remind everyone that there is money in this country to fund children’s palliative care. Our problem is not a lack of wealth, but its extremely unequal distribution. In the run-up to today’s Budget, I was one of the MPs who called on the Chancellor to raise taxes on the richest, with policies such as a 2% wealth tax on assets over £10 million, which would raise £24 billion a year—enough to meet the palliative care funding gap 80 times over. That is why I introduced a private Member’s Bill yesterday that would launch a review of the funding for children’s hospices and guarantee high-quality care for all seriously ill children and their families. I really hope that the Minister will take up that call.
In Liverpool, the people have risen to the challenge, and we are on the cusp of saving Zoe’s Place. Now this place has to rise to the challenge as well, and we have to give children’s hospices the funding they need to survive. The children and families who rely on these incredible institutions do not have time to waste.
I remind Members to bob if they wish to speak—I am pleased to see that they are doing so.
It has been a privilege to listen to hon. Members and sense the unanimous feeling that where we are now is not sustainable or acceptable. We do not want to see more cases like Zoe’s Place to happen in constituencies across the country. Once again, I thank the House and all hon. Members here for what they did, and the Minister and the shadow Minister, the hon. Member for Sleaford and North Hykeham (Dr Johnson), for their responses. I hope that we can find the solution moving forward; I will certainly be having conversations with the Chancellor about it.
Question put and agreed to.
Resolved,
That this House has considered funding for children’s hospices.