Oral Answers to Questions

Ian Byrne Excerpts

Wednesday 28th January 2026 Commons Chamber

[The Deputy Prime Minister]

I think I once campaigned with the hon. Gentleman when he was a member of the Labour party. It has been said of him that, when he left, he enhanced the IQ of the Labour party and the IQ of the party he went to. I wonder what job he is pitching for in Reform’s shadow Cabinet. They have Nadhim Zahawi to advise on tax and the right hon. Member for Newark (Robert Jenrick) to open up the borders, and now they need Liz Truss to crash the economy!

[Ian Byrne (Liverpool West Derby) (Lab)]

I hope you get well soon, Mr Speaker.

Lillia Jakeman is 19 years of age and has been given a devastating diagnosis of motor neurone disease. When she was told that she has a very rare form of the disease that can be treated with a groundbreaking new drug called tofersen, her family were given hope. They have since discovered that although the drug is being made available to the NHS free of charge, her local trust has declined to deliver it. This afternoon, her family will be arriving at Downing Street, having walked from Southampton, to highlight this injustice. Will the Deputy Prime Minister work with me, MPs from across the House, Ministers in the Department of Health and Social Care and NHS bosses to deliver fair access to tofersen for all living with this rare form of motor neurone disease?

[The Deputy Prime Minister]

I am sorry to hear about those who are waiting for this treatment. Of course, I will ensure that my hon. Friend gets the appropriate meeting with the relevant Minister.