Seriously Ill Children: Financial Support for Parents

Debate between Chris Hinchliff and Jim Shannon

Tuesday 25th March 2025 Westminster Hall

[Chris Hinchliff (North East Hertfordshire) (Lab)]

I beg to move,

That this House has considered financial support for parents caring for seriously ill children.

It is a pleasure to speak under your chairship, Ms Jardine.

I begin by paying tribute to my constituents Ceri and Frances Menai-Davis, who are in the Public Gallery today. Their tireless advocacy, following the tragic loss of their six-year-old son Hugh to cancer in 2021, is an inspiration to me, and I know this feeling is shared by colleagues across the House.

Ceri, Frances and the charity they set up, It’s Never You, have highlighted the immense challenges faced by families caring for seriously ill children. When a child is born, there is a support system in place for parents. Maternity pay provides a safety net for those who must stop work to care for their child, and the Neonatal Care (Leave and Pay) Act 2023 covers the parents of babies who are admitted to neonatal care within 28 days of birth. However, if a child falls seriously ill outside those periods, parents must navigate burdensome and insufficient systems that were not designed for families facing what is, for most, the very hardest time of their lives.

Ceri and Frances experienced this unfairness at first hand during the 100-mile round trips they had to make to be with Hugh during his treatment. Thankfully, they were financially stable, but they witnessed the harsh reality of our benefits system as they saw other parents being forced to sell their homes and give up work to care for their seriously ill children. Of course, these issues are compounded by the cost of living pressures that all families face, even without family emergencies piling on.

Approximately 68% of women and 57% of men with mental health problems are parents, which highlights the emotional strain that families across the country already face. Last year, a quarter of parents with children aged 18 and under said they struggled to provide sufficient food for their children, and Shelter estimates that 1.7 million private renters do not have enough savings to pay their rent if they were to become unemployed.

[Jim Shannon (Strangford) (DUP)]

I commend the hon. Member for securing this debate, and I spoke to him beforehand. Charities such as the Family Fund provide a wide range of grants to families in Northern Ireland who are raising a disabled or seriously ill child or young adult on a low income, to spend on kitchen appliances—a fridge, a cooker or a washing machine—or clothing, bedding, sensory or play equipment, technology or just a much-needed family break.

Does the hon. Gentleman agree that the fact such charities are stepping in no way abdicates the Government’s responsibility to do more to help families when they need help? He is speaking about compassion. Compassionate action is what we need.

[Chris Hinchliff]

I agree that we should commend such charities. The hon. Gentleman shows moral clarity in rightly saying that the Government have an obligation to support families going through this incredibly difficult time.

Research shows that all the factors I have described mean that families are on a difficult footing even before facing the additional pressures of caring for a seriously ill child. When families need extra support during such challenging times, they are often met with bureaucratic hurdles that only add to their mental and financial stress. To access disability living allowance, parents face a 90-day waiting period, a daunting 40-page application form and long waits for responses. Universal credit and shared parental leave are unsuitable options for too many parents in this situation, as the rigid eligibility criteria mean that many parents of seriously ill children simply do not qualify.