Smoking Cessation: Prescription of E-cigarettes

Baroness Finlay of Llandaff Excerpts

Tuesday 2nd November 2021 Lords Chamber

[Lord Kamall (Con)]

I thank my noble friend for pointing that out, and I will investigate. Not being a user of e-cigarettes or cigarettes, or of any sort of narcotics or alcohol, I am afraid that I am not really an expert myself. I will look into that and write to my noble friend.

[Baroness Finlay of Llandaff (CB)]

Can the Minister confirm that the nicotine levels will be looked at, given that the nicotine level in some e-cigarette products is very high and that nicotine is the addictive substance both in cigarettes and in the continued use of e-cigarettes? The commercial incentive for tobacco producers to produce flavoured, palatable and highly addictive products should not be pandered to.

[Lord Kamall (Con)]

The noble Baroness raises an important point about nicotine itself being a very addictive substance. I am sure that the MHRA will be looking at the guidance, but if the noble Baroness would like to write to me, I can confirm that.

Social Care in England

Baroness Finlay of Llandaff Excerpts

Thursday 14th October 2021 Lords Chamber

[Baroness Finlay of Llandaff (CB)]

My Lords, I congratulate the noble Baroness, Lady Pitkeathley, on obtaining this debate, her important opening speech and her constructive suggestions. I welcome the Minister to his crucial role in the future well-being of the nation. I must declare that I chair the National Mental Capacity Forum and am vice-president of Marie Curie, which provides a great deal of care to people in the community as they are approaching the end of life.

Looking forward, we must fix social care properly. I have worked for decades with social carers in an integrated way through the hospice movement, where it is evident that those providing social care are an essential support to people with severe and life-limiting illness, and to their families. Without input from social care, families would break. Where there is a young parent who is ill, their children need to know the person who is coming to provide support to their parent—a person to whom they often look for emotional support also. Where a child or young person has learning difficulties compounded by physical problems, their social care is literally a lifeline for all in the family. Let us not forget the underage carers in so many families.

No one should think that social care is simply about washing, dressing and eating. It plays a vital role to enable the carers of people at home to cope with their own lives, go to work, go to school and study, and manage all aspects of the home. For the person, social care can make all the difference between feeling a burden, worried that one’s family is being worn down, and being able to function still in one’s role within the family and society. Where good social care is in place, people with profound disabilities are often still able to work with the support of different aids and adaptations, and I have been struck over the years by the number who have run businesses, written papers and even books. It is their carers who they praise as the person enabling them to do this.

Sadly, Marie Curie found that, during the pandemic, 61% of carers said that the person who had died had not had all the help that they needed with personal care before dying at home. More than three-quarters of carers said they did not receive all the care and support that they needed. It is the carers who spot when somebody is less well and when things are deteriorating, and is often the person who triggers the call to the GP or district nurse to come in and diagnose what has changed, alter medication and review the way in which an illness is managed. No one should think that these carers are unskilled or low skilled; they are not. They are very skilled and often have a wealth of experience.

When I was medical director of the hospice in Cardiff, I often looked to the care assistants just as much as the trained staff for important information on patients and families. They spotted whether families were behaving oddly. They would alert me to changes in a person’s condition because, when they took them to the bathroom or helped them with the meal, they spotted changes early. Patients talk to carers because they are not part of the power differential between professionals and patients. Patients often tell doctors and nurses what they think they want to hear, but will be much more open and frank with carers about worries and concerns that they may feel are too trivial to trouble trained staff with but are crucial.

Social care is essential to free up places in hospital. Carers should be there when somebody comes home; that transition from hospital to home is a vulnerable time both physically and psychologically, particularly for those who live alone. If hospital discharges do not happen, the backlog right through the system to the ambulance at the front door of A&E only worsens. It has been estimated that NHS bed days lost to delayed hospital discharges rose by 50% between 2015 and 2017—before the pandemic—when the number of beds available was decreasing in the hospital sector. This, of course, produced greater pressure.

Social care work is hard work. There is a workforce turnover of more than 30% and we must be able to retain skilled and experienced care workers by making sure that this is an important, high-status job, and that the travelling time between clients’ homes is recognised. For those who are unpaid family carers, we should consider carers’ leave, particularly when they are caring for someone who is dying at home.

As we move forwards, the reforms set out in the Health and Care Bill should ensure that every part of England is covered in an integrated care system, with close collaboration between the NHS, local government and other partners. However, it is deeply concerning for people living with terminal illness that there is no requirement on integrated care systems to ensure that they commission palliative care services. I therefore give notice that I will be bringing forward an amendment to the relevant Bill and I hope that the Minister will be able to assure me that the Government will consider carefully amending the Health and Care Bill to include a requirement for every integrated care system to arrange for the provision of specialist palliative care services to meet the needs of the population. Everything must be integrated for the benefit of all.

Health: Chronic Fatigue Syndrome

Baroness Finlay of Llandaff Excerpts

Tuesday 12th October 2021 Lords Chamber

[Lord Kamall (Con)]

I thank my noble friend—my predecessor—for his warm words and his offer of advice to me, as I find my feet and find myself swimming at the deep end, if you like, in this job. Usually, when I get a question like this, I say, “I will ask my predecessor” but clearly, he has a question for me.

My noble friend is absolutely right that we have to be concerned about how we help those who are suffering from ME and chronic fatigue syndrome, but he will recognise that there is a range of views on this issue. If we want these guidelines to be widely accepted and respected, it is important that we get as many stakeholders around the table as possible. NICE has agreed to this round table; hopefully, we can then move forward.

[Baroness Finlay of Llandaff (CB)]

My Lords, I too welcome the Minister to his post. I declare that I have been vice chair of the NICE committee that produced the revised guidelines on ME/CFS over the past three years, through consensus agreement in the committee. This was fully compliant with NICE’s rigorous processes. Will the Government work with commissioners to ensure that appropriate specialist services for patients with ME are developed and continue, and that services monitor accounts of harms as well as benefits?

[Lord Kamall (Con)]

I thank the noble Baroness for her warm welcome. I am new to this and, as you can imagine, I am still learning the ropes and learning about NICE and its processes. However, I agree with the noble Baroness: it is really important that we address the issues she raises and if she writes to me, I will ask for some advice and respond to her.

Covid-19 Update

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Thursday 9th September 2021 Lords Chamber

[Baroness Finlay of Llandaff (CB)]

My Lords, I have some supplementary questions. I am most grateful to the Minister for the update and for yet again appearing before the House. I will pose short questions about three areas.

First, on the public health messaging over asymptomatic carriers, we seem to have had a complete drop-off of mask wearing and of being distance aware. Neither of those impedes the economic viability of any business at all; they are simply social behaviours. People seem to have gone back to the most inappropriate social hugging, which is unnecessary. Yet I do not see any public health messages coming out just to maintain the control measures we had in place before. Could the Minister tell me what the plans are for that?

Secondly, does the noble Lord plan to widen the list of eligible children to ensure that those who have a family member, whether a sibling or parent, who is particularly vulnerable are offered vaccination—this would not be forced but would be an offer to them—rather than being excluded, as they are at the moment, because they themselves are not ill? They may carry quite a large emotional burden, knowing that someone at home could become very ill, despite being double vaccinated.

Thirdly, on preparing for the winter, does the Minister recognise this week’s notice from the Royal College of Emergency Medicine showing that 80% of respondents are not confident in their ability to cope safely in their departments as we go into winter, and that half of the emergency departments are reporting delays of transfer from ambulances into their departments? That compares with a quarter of such departments reporting these delays in October 2020, which would suggest that the whole backlog and silting up has got worse. Can the Minister explain what provision there is to expand bed provision, so that people who arrive in emergency departments and need admission can be moved rapidly into beds to be looked after, rather than having this backlog, which also stops ambulances going to other emergencies while they are stuck outside an emergency department?

[Lord Bethell (Con)]

I thank the noble Baroness for three extremely thoughtful questions. I will dwell on them, if I may, because they are a good opportunity to answer some of the concerns that I know many noble Lords have.

On public health messaging and behaviours, there is a question of perception. If we look closely at the analysis done by our behaviours team, we see that the public remain extremely conservative and restrained. While the noble Baroness’s perception may be that mask wearing and distancing have been given up and that hugging is not where she would like it to be, from the data it appears that the public remain extremely concerned about public transport, going to the shops and attending major events. Therefore, we are in a moment of transition, but roughly speaking we are where we would want to be.

Let us be clear: we are keen to get back to the life we once had, and vaccines are going to be the way that we do that. We want to return to intimacy and to the way in which our community likes to live. Testing, social distancing and the panoply of virus control play a role in that—but we are seeking to step back from those days and, so long as the vaccines work in the way they are working at the moment, we are keen not to disrupt people’s lives as much as we can.

On eligible children, that ball is with the CMO at the moment. I completely hear the noble Baroness; she is entirely right about the emotional burden. I also emphasise the importance of making sure that children get the education they need, while at the same time empathising with their concerns for their loved ones and those with whom they live. It is an awful position for those children and families to be in. That is why the CMO is looking at vaccination for 12 to 16 year-olds and possibly beyond.

On winter preparations, I hear the noble Baroness’s comments about the Royal College of Emergency Medicine. The statistics she gave are a matter of concern, but the medical director of the NHS monitors these questions extremely carefully. We think we are in the position we need to be in to get through this winter. We are on the balls of our feet in case there is either an uptick in the current delta variant or a new variant. A huge amount of investment has gone into the redeployment of NHS beds. The NHS has never had a bigger capacity in terms of its workforce and the number of beds available. The use of ICUs and the management of Covid patients have become much more efficient and productive than they used to be, and we believe that we are in good shape.

Calorie Labelling (Out of Home Sector) (England) Regulations 2021

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Thursday 22nd July 2021 Lords Chamber

[Baroness Finlay of Llandaff (CB) [V]]

My Lords, I declare that I chair the Commission on Alcohol Harm. We cannot ignore the obesity epidemic, and we must grasp the nettle of the crisis of eating disorders of all types. However, alcoholic drinks are a major contributor to national ill health and obesity.

In 2020, our commission took evidence on alcohol harms, and I want to focus on the evidence we heard about the obesogenic effect of alcoholic drinks. As the Institute of Public Health in Ireland told us, alcohol

“can make a significant contribution to levels of overweight and obesity in the adult population”.

Adults who drink get nearly 10% of their daily calorie intake on average from alcohol, but people are ignorant of the calories. Over 80% of people do not know, or underestimate, the number of calories in a glass of wine and, similarly, over 80% of people do not know, or underestimate, the calorific content of a pint of lager.

A 175ml glass of 12% alcohol-by-volume wine has about 158 calories. That is equivalent to more than three Jaffa cakes, and it is more than a 330ml can of Coca-Cola, which contains 139 calories. This means that, per ml, wine contains more than double the calories of Coca-Cola. The Government have recognised the obesogenic effect of fizzy drinks through their high calorie content but turned a blind eye to one of the most damaging substances to our economy. Yet 308,000 children currently live with at least one adult who drinks at a high-risk level in England. We worry about obesity and do nothing about the most harmful of obesogenic substances.

Alcohol is exempt from the labelling requirements for food and non-alcoholic drinks. Alcoholic drinks are only required to display the volume and strength, and some wines are required to include allergens. I suggest that the alcohol industry is happy to describe alcohol by volume content, because it knows perfectly well that the public do not understand what this means, either in daily consumption terms or in calories. Information on nutritional values, including calories, ingredients, health warnings and so on are largely absent from labels. In commenting on this, the professor of public health nutrition Annie Anderson, told us she is

“shocked how far alcohol is always kept out of nutrition policy”.

Today’s debate is an example of that.

I would like to quote Adrian Chiles, who explored labelling for “Panorama”. He said:

“It is absurd in a pub that you buy a pint, it doesn’t have to tell you how many calories are in it, but you buy a bag of crisps to go with the pint, by law, it has to give you the number of calories … on an alcoholic product you don’t have to provide nutritional information including calories … if you’ve got a Becks blue, which is the alcohol free one, it’s got all the nutritional information and how many calories on it, ordinary Becks, they don’t have to put it on there”.


If we are labelling food with calories, it is blatantly absurd and deeply irresponsible to ignore alcoholic drinks, both in the bottle and when served by the glass in all out-of-home venues. There is evidence, as we have heard from the noble Baroness, Lady Jenkin, that when calories are displayed on drinks, people drink less, thereby also decreasing their liver damage, their risk of injury, of a road accident or of fuelling their addiction, quite apart from reducing their calorie intake and the obesogenic effect. I could go on. I strongly support the noble Lord, Lord Brooke of Alverthorpe.

Organ Tourism and Cadavers on Display Bill [HL]

Baroness Finlay of Llandaff Excerpts

2nd reading
Friday 16th July 2021 Lords Chamber

[Baroness Finlay of Llandaff (CB)]

My Lords, it is a pleasure to follow the noble Lord, Lord Ribeiro, and I congratulate the noble Lord, Lord Hunt, on all the work he has done in this area and on the Bill. I declare that I chair the UK advisory panel of the Commonwealth “Tribute to Life” project, which is creating a memorandum of understanding to promote and support the highest standards of ethical transplantation across all Commonwealth nations.

The “Real Bodies” exhibition reminded me of the two mass murderers Burke and Hare, who killed between 1827 and 1828 in Edinburgh, supplying victims’ bodies to Edinburgh University for anatomy dissection. One night, they killed an old woman and her grandson. When Hare’s horse refused to pull the heavy load of two corpses uphill in a herring barrel, in anger he shot the horse dead. Burke was convicted and hanged; people paid good money to watch his execution, after which he was publicly dissected. Hare, though, escaped to England. Why the association? Both involved a supply of bodies for purported anatomical education, for profit and with no known consent.

The plastinated bodies exhibition had commercial gain, no evidence of consent to these people’s bodies being used and no evidence they died naturally. Indeed, emails reveal some were supplied for plastination in China after key organs had been removed, suggesting their bodies are the remains from a despicable trade in genocide, organ harvesting and commercial transplantation in China. These bodies on display included a woman in advanced pregnancy. Did she give fully informed consent when dying in pregnancy? The evidence of proper consent processes should be open to international scrutiny. It is not.

China appears to have been killing persecuted religious minorities, particularly Uighurs and Falun Gong practitioners, then harvesting and selling their organs on an industrial scale. At least 29 people have gone from the UK to China to avail themselves of organ transplants. They will have been told the organs came from people who died in accidents et cetera, not that someone was killed to order because there was a reasonable blood group match.

We cannot legislate directly against China’s despicable organ trade, but we can close the loophole in the Human Tissue Act 2004 that makes us complicit. We require careful consent for anatomical donation, through the Anatomy Act, and the use of tissues in this country, through the Human Tissue Act, for any practice. UK ethical standards around transplantation are exemplary. This Bill stops double standards, it supports ethical transplantation and it sends a message worldwide. I hope that the Government will support it.

Covid-19

Baroness Finlay of Llandaff Excerpts

Thursday 15th July 2021 Lords Chamber

[Lord Bethell (Con)]

My Lords, following the G7 we pulled together a joint task force with USA colleagues to address the precise point that the noble Baroness alludes to. That joint task force is working extremely hard to resolve the various practical, epidemiological and virological arrangements for the kind of green-list corridor that we would like to have between our two friendly countries. I am hopeful we will be able to make announcements on that shortly.

[Baroness Finlay of Llandaff (CB) [V]]

I would be most grateful if the Minister could follow on from the question of the noble Baroness, Lady Tyler, and tell us when these plans will be published. The statement says

“we do not believe that infection rates will put unsustainable pressure on the NHS”,

yet we know that the lambda variant, if it should come into the UK and spread, is probably antibody resistant. We know that already, last weekend, some emergency departments had waiting times of around eight hours because they were under such pressure from patients plus staff sickness. We know that it is completely inhumane to expect parents of a sick baby to go into work if the child has RSV during the winter, so those members of staff will inevitably take unpaid leave if they are not allowed to take leave to look after their child.

[Lord Bethell (Con)]

The challenge presented by workforce illness in the NHS is acute at the moment. It is one we are very conscious of, and the noble Baroness is entirely right that parents who have a sick child must stay at home. Not only is that humane; it is also infection control wisdom. That puts the pressure on. That is why we have prioritised vaccination among healthcare staff, and we are prioritising the boosters for staff.

In terms of managing emergency services, we are conducting a huge marketing campaign around the use of NHS 111 so that people can book their slot and be directed to the right kinds of services because, as the noble Baroness knows, many people who turn up in emergency departments are not necessarily in the right place for the conditions they present.

In terms of variants of concern, we are keeping an eye on lambda, beta and all those that may present a vaccine escape risk. We will take whatever steps necessary to address their threat.

Folic Acid

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Tuesday 13th July 2021 Lords Chamber

[Lord Bethell (Con)]

My Lords, I am looking forward to outlining the draft timetable, but I will not be able to do so before the Recess.

[Baroness Finlay of Llandaff (CB)]

My Lords, following on from the Minister’s answers, can he tell us whether a provisional target date has been set with the devolved nations for the implementation? Given that we know that 90% of women aged 16 to 49 currently have folate levels below that required to reduce the risk of neural tube defects and that 70% of adults—that includes men—have folate levels so low that they are at risk of anaemia, this is an urgent problem.

[Lord Bethell (Con)]

My Lords, I share the sense of urgency expressed by the noble Baroness in her articulation of those statistics. They are both worrying and entirely accurate. We very engaged with the devolved assemblies. Welsh and Scottish Ministers have expressed their support, but with Northern Ireland it is important that we consider all the implications of the Northern Ireland protocol. I am therefore not able to lay out the precise timetable now, but I reassure the noble Baroness that we are moving as quickly as we can.

Covid-19 Update

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Thursday 8th July 2021 Lords Chamber

[Lord Bethell (Con)]

My Lords, I understand the question put by my noble friend but I am afraid that I do not recognise the anecdote to which she refers in terms of hospitals’ treatment of individuals. Nor do I particularly recognise the generalisation that males and females are affected by the disease differently, but I would be very happy to look into this matter and write to her if I can find more details.

[Baroness Finlay of Llandaff (CB)]

I thank the Minister for his responses and for the meetings he has set up. Using his words, given the challenges of “getting the NHS back to speed”, as well as the predicted rise in seriously ill patients with infections— both from influenza and Covid variants such as beta, lambda and others that may emerge—what contingency plans are being developed and activated now? What is being done to increase bed capacity for the autumn and winter and to recruit, train and upskill staff who have currently stepped back from or retired from clinical care, to increase overall capacity?

[Lord Bethell (Con)]

My Lords, the noble Baroness is entirely right to make the connection between Covid and flu. We regard the winter as presenting two pandemics, and we will treat them with equal energy. Flu and Covid have the same net effect on the healthcare system, which is to be a huge drain on resources. So we are putting a huge amount of effort into the vaccine and boosters for Covid and the vaccination against flu. They can be taken together, and the advertising and promotion distribution to identify priority groups will be extremely energetic. That is the most important thing we can do to protect the NHS. Our second priority, though, is getting the beds to which the noble Baroness referred used for elective surgery. We do not want to see the NHS heaving under the pressure of Covid and flu. We want to see it addressing the backlog.

Social Care and the Role of Carers

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Thursday 24th June 2021 Lords Chamber

[Baroness Finlay of Llandaff (CB)]

I congratulate the noble Baroness, Lady Jolly, on securing this timely debate. I declare my interests with Marie Curie, the Motor Neurone Disease Association and other charities; I also chair the National Mental Capacity Forum.

There are two main groups needing social care: those with long-term chronic conditions, both physical and mental disorders, often both; and those who are terminally ill and dying. The first group often slips into the second as disease progresses. I want to focus on those families providing unpaid informal care. More than three-quarters of those carers bereaved during Covid reported that they were not offered the care and support they needed, and Carers UK data suggests that one in three may be nearing breaking point. Pre pandemic, it was no better. The Motor Neurone Disease Association found that more than 75% of unpaid carers had not had a carer’s assessment and a third spend more than 100 hours a week caring. When caring for other conditions, the average hours are less, but more than 1 million people are providing 50 or more hours of care per week. Marie Curie estimated that there were 6.2 million carers in the UK in 2018 and 500,000 were looking after someone with a terminal illness, which is about 8% of all carers.

Most informal carers are not professionally trained, and of the 1 million people eligible for attendance allowance, it is estimated that about a third do not claim it. When someone is nearing dying, a prognosis of six months is impossible to provide with accuracy, so the DS1500 form for funding is sometimes filled in relatively late, leaving the financial burden on the family even greater. For many, the care of a person who is critically ill, whose recovery is unpredictable or who has been in intensive care is particularly difficult. These family carers need to be taught some basics of caring and they need to know who to call for immediate support 24/7. The current systems of even supporting them are not adequate.

Those millions of people providing care usually do it well and willingly, but they are exhausted and are becoming more exhausted as there seems to be less support available. What consideration is being given to creating eligibility for a total of up to one month’s paid leave from work for informal carers when someone is critically ill or dying? This could be leave taken flexibly as required for the individual circumstance. After all, we recognise maternity and paternity leave. Why do we not recognise carers’ leave?