Question to the Department of Health and Social Care:

To ask His Majesty's Government how the cross-government delivery plan for myalgic encephalomyelitis/chronic fatigue syndrome will ensure collaborative work with patient advocates, philanthropy and industry partners to leverage additional funding for biomedical research.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

The Government is committed to better care and support for people living with myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). We have reconvened the ME/CFS Task and Finish Group, including senior Department and cross-Government officials, ME/CFS specialists and researchers, representatives from NHS England, the National Institute for Health and Care Excellence, the National Institute for Health and Care Research (NIHR), the Medical Research Council (MRC), the devolved administrations, ME/CFS charities, and organisations and patients with lived experience of ME/CFS.

We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by responses to the 2023 consultation on the interim delivery plan, alongside continued stakeholder engagement via the ME/CFS Task and Finish Group, with three broad themes of boosting research, improving attitudes and education, and bettering the lives of those living with ME/CFS. We aim to publish the final delivery plan by the end of March 2025.

Research is an important pillar of the delivery plan for ME/CFS. Future planned action to support research in this area will take a cross-sectoral and inclusive approach, recognising the value of patient and public representatives in particular.

The Department funds research on ME/CFS through the NIHR and the MRC. The NIHR and the MRC remain committed to funding high-quality research to understand the causes, consequences, and treatment of ME/CFS, and are actively exploring the next steps for stimulating further research in this area. The MRC and NIHR currently fund research through a variety of routes, including infrastructure, research programmes, capacity building, through for example research fellowships, and, in the case of the NIHR, research delivery to support recruitment to studies. The NIHR welcomes the opportunity to work collaboratively with partners, including patient representative groups and industry, to stimulate further research in this area.

Question to the Department of Health and Social Care:

To ask His Majesty's Government how the cross-government delivery plan for myalgic encephalomyelitis/chronic fatigue syndrome will reflect their commitment to embracing the opportunities of digitalisation for NHS services.

Answered by Baroness Merron - Parliamentary Under-Secretary (Department of Health and Social Care)

The Government is committed to better care and support for people living with myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). We have reconvened the ME/CFS Task and Finish Group, including senior Department and cross-Government officials, ME/CFS specialists and researchers, representatives from NHS England, the National Institute for Health and Care Excellence, the National Institute for Health and Care Research (NIHR), the Medical Research Council (MRC), the devolved administrations, ME/CFS charities, and organisations and patients with lived experience of ME/CFS.

We cannot comment on the exact content of the final delivery plan at this time, but it will be shaped by responses to the 2023 consultation on the interim delivery plan, alongside continued stakeholder engagement via the ME/CFS Task and Finish Group, with three broad themes of boosting research, improving attitudes and education, and bettering the lives of those living with ME/CFS. We aim to publish the final delivery plan by the end of March 2025.

Research is an important pillar of the delivery plan for ME/CFS. Future planned action to support research in this area will take a cross-sectoral and inclusive approach, recognising the value of patient and public representatives in particular.

The Department funds research on ME/CFS through the NIHR and the MRC. The NIHR and the MRC remain committed to funding high-quality research to understand the causes, consequences, and treatment of ME/CFS, and are actively exploring the next steps for stimulating further research in this area. The MRC and NIHR currently fund research through a variety of routes, including infrastructure, research programmes, capacity building, through for example research fellowships, and, in the case of the NIHR, research delivery to support recruitment to studies. The NIHR welcomes the opportunity to work collaboratively with partners, including patient representative groups and industry, to stimulate further research in this area.

Question to the Ministry of Justice:

To ask His Majesty's Government whether they have any plans to require all funeral directors and crematoria to publish their schedule of planned direct cremations to ensure that the service that has been commissioned has been carried out.

Answered by Lord Ponsonby of Shulbrede - Lord in Waiting (HM Household) (Whip)

The Law Commission is currently undertaking its “Burial, Cremation and New Funerary Methods” project which seeks to create a future-proof legal framework to address what happens to our bodies after we die and to make recommendations that will provide modern, certain and consistent regulation across different funerary methods. As part of this project, the Law Commission has considered issues surrounding direct cremation. Its recent “Burial and Cremation” consultation document invited evidence from consultees as to whether, in relation to direct cremations, there are cases where an applicant for the cremation will not know which crematorium will be used at the time of application.

The Government does not currently have plans to require all funeral directors and crematoria to publish their schedule of planned direct cremations. Direct cremations are subject to the same legislation as any other cremation. The Government will consider any changes to the legal framework governing direct cremations as part of any wider recommendations made by the Law Commission in due course. As the Law Commission project is still ongoing, we do not want to pre-empt its recommendations. We look forward to carefully considering these once published, which we expect to be towards the end of 2025.

Question to the Ministry of Justice:

To ask His Majesty's Government whether funeral directors providing a direct cremation service are required to collect the body of a deceased person from a hospital mortuary within a specified time frame after the medical examiner has issued the medical certificate of cause of death.

Answered by Lord Ponsonby of Shulbrede - Lord in Waiting (HM Household) (Whip)

At present there is no mandatory time period within which all funeral directors across England and Wales should collect the body of a person who has died and take them into their care.

The introduction of regulation into the funeral director sector requires thorough consideration due to the complexity and sensitive nature of the area. It is essential to ensure that the rights and dignity of deceased individuals and their bereaved family members are protected, while implementing measures that are proportionate.

For that reason, the Government is considering the full range of possible next steps to ensure appropriate standards are in place, including the potential for introducing some form of appropriate, proportionate regulation of funeral directors. An update on next steps will be provided in due course.

Found: Hardington Mandeville Lord Hall of Birkenhead Baroness Chakrabarti Baroness Humphreys Baroness Finlay of Llandaff

Found: BARONESS FINLAY OF LLANDAFF 43_ Clause 3, page 1, line 22, at end insert “subject to subsection (2A)

Found: Hardington Mandeville Lord Hall of Birkenhead Baroness Chakrabarti Baroness Humphreys Baroness Finlay of Llandaff

Found: BARONESS FINLAY OF LLANDAFF 43★_ Clause 3, page 1, line 22, at end insert “subject to subsection (2A