Children with Genetic Conditions: Specialist Support

Baroness Eaton Excerpts

Tuesday 15th June 2021 Lords Chamber

[Lord Farmer]

To ask Her Majesty’s Government what steps they intend to take to ensure that children with (1) 22q11 deletion syndrome, and (2) other genetic conditions, receive specialist support to address and prevent any loss of (a) learning, or (b) social skills, due to the disruption of their education during the COVID-19 pandemic.

[Baroness Eaton (Con) [V]]

On behalf of the noble Lord, Lord Farmer, and with his permission, I beg leave to ask the Question standing in his name on the Order Paper.

[The Parliamentary Under-Secretary of State, Department for Education and Department for International Trade (Baroness Berridge) (Con)]

My Lords, we are committed to help all children, including those with genetic disorders, to recover from the impact of lost learning during the pandemic. Following the most recent announcement on education recovery on 2 June, we have now allocated over £3 billion to children and young people. We are targeting those resources to support those in greatest need; for example, special and alternative provision schools will receive additional funding to ensure one-on-one tutoring for their pupils.

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[Baroness Eaton (Con) [V]]

I commend the Government on their growing support for family hubs. The original Breakthrough Britain report recommended these, high- lighting their role as a one-stop shop for families with disabled children, which would greatly help those with often very debilitating genetic conditions. Can my noble friend the Minister advise the House of what plans there are to expand the remit of family hubs to include this?

[Baroness Berridge (Con)]

My Lords, a number of family hubs are already in operation but the department has just finished procurement for a national centre for family hubs as part of the £14 million allocated to this. Part of that role will be to ensure that best practice is spread across England. The noble Baroness is correct that these centres should be a hub of voluntary, statutory and other services for families, including those with special educational needs and disabilities.