The Parliamentary Under-Secretary of State for Health and Social Care (Dr Zubir Ahmed)
I start by thanking my hon. Friend the Member for Mitcham and Morden (Dame Siobhain McDonagh), and the hon. Members for Witney (Charlie Maynard) and for Kingswinford and South Staffordshire (Mike Wood) for supporting this important debate. I would like to take a few moments to acknowledge the contributions of all hon. Members across this House—from personal experience, I know how hard it is to talk about these issues when people close to your family are lost to brain tumours. They include my aunt, who was instrumental in my pursuing a career in medicine. She passed away in 1997, only four months after a diagnosis of glioblastoma.
The hon. Member for Witney asked about consent in relation to tumour tissue research, which is a really important and pertinent topic. I am very happy to go away and consult with the Human Tissue Authority regarding the facility we have at the moment, which is quite sizeable, for securing consent to research on tissue from living persons and deceased persons. As a transplant surgeon, I am relatively au fait with some of the consent issues that can arise in using tissue from deceased persons, and I am always very happy to encourage consideration of those issues wherever possible. The hon. Member rightly challenged us to improve our architecture for digital consent. We continue to do so through our “analogue to digital” platform, on which the 10-year health plan is based, not only for care but for research.
I thank my hon. Friend the Member for Colne Valley (Paul Davies) and the hon. Member for Mid Dunbartonshire (Susan Murray) for their thought-provoking contributions to this debate, as well as my hon. Friend the Member for Edinburgh South West (Dr Arthur), who talked so passionately about these issues. I thank him once again for bringing forward his private Member’s Bill, which will do so much to move the dial on research, not only on brain tumours but on rare cancers more generally. He had a specific ask about visa costs for talent coming from elsewhere in the world, and I assure him that we are looking seriously into these issues. Only today, I was chairing a session of the Life Sciences Council, where we talked about the global talent fund. That is pertinent to the discussions that my hon. Friend is having, and I am happy to put the council in touch with him to further those discussions regarding how we attract the brightest and the best to our country to advance the cause of life sciences generally, as well as the cause of researching rare cancers.
The hon. Member for Wokingham (Clive Jones) talked more specifically about referral targets. I can reassure him that we are totally committed as a Government to hitting those national standards on 62-day waits. He challenged us to go to 100%. I caution him that although 85% is possible, 100% is not, usually for clinical reasons. There may be genuine clinical reasons why patients cannot access treatment within 62 days in terms of planning and specialist access.
My right hon. Friend the Member for Hayes and Harlington (John McDonnell) talked about diagnostics. That issue is close to my heart, and I reassure him that through the continued opening of community diagnostic centres up and down the country and £2 billion of funding, I am determined to ensure that diagnostics is improved and available closer to home wherever possible.
The hon. Member for North East Hampshire (Alex Brewer) talked about her friend being diagnosed with a brain tumour in A&E. As someone who was a young casualty officer many years ago, that resonated strongly with me. The A&E department is the last place where any tumour should be diagnosed, but I remember it happening far too frequently as a young casualty officer. One litmus test of the success of our cancer plan will be that much fewer of those diagnoses will be undertaken in an unplanned fashion in A&Es up and down our country.
I am always grateful for the learned remarks of my hon. Friend the Member for Bury St Edmunds and Stowmarket (Peter Prinsley). I always feel like I learn so much from him. In fact, I learned so much tonight that I might add his contribution to my portfolio of continuing professional development when I submit myself back to the General Medical Council to extend my licence.
The hon. Member for Strangford (Jim Shannon) always raises thought-provoking issues about four-nation working. I assure him that I continually and frequently discuss many matters pertaining to the health of our four nations with the Minister of Health in Northern Ireland. I can also reassure him of our UK-wide commitment to the life sciences sector plan and life sciences project. On that note, it was my great pleasure to meet academics from Queen’s University Belfast in this place only a few months ago, where I reaffirmed my commitment as life sciences Minister to the life sciences sector plan being a true four-nation project. That of course includes Northern Ireland, and I know from my own academic interests that much expertise resides in Northern Ireland.
The hon. Member for Epsom and Ewell (Helen Maguire) talked about benign tumours not being forgotten, and she is absolutely right. Those of us from a medical background know that it is a spectrum between benign and malignant tumours. Many benign tumours can evolve into malignant tumours, and they must be captured by plans such as the national cancer plan. She challenged me about publishing regular outcomes from the national cancer plan, and I can certainly commit to that. Those can be scrutinised in the normal way by the Health and Social Care Committee.
The shadow Minister, the hon. Member for Sleaford and North Hykeham (Dr Johnson) talked about screening. She will know, as I do, that screening is important when it is evidence-based and where the benefits outweigh the harms. Screening is never harm-free, so it is important to ensure we are calculating these things based on expert evidence. Neither she nor I are experts in screening, so we always defer to the UK National Screening Committee and its deliberations and opinions on these matters.
The shadow Minister asked me about the workforce plan. I can assure her that that is in play and will be published shortly, in the spring or very early summer. She asked how that might interact with diagnostic capacity, and I can assure her that we are working at great speed to ramp up diagnostic capacity through the funding envelope that I mentioned. She will know that it is important, when we plan both for workforce and diagnostic capacity, to take account of AI moving at a rapid pace. We have already been able to eliminate one radiologist from breast cancer diagnoses, and it is entirely possible that we will be able to have a similar impact with technology on the rates of other cancers and, for example, lung cancer diagnostics. It is important that, as we work through the workforce plan, we take account of what the future will look like in that context.
When we came to the topic of the potential association between traumatic brain injury and brain tumours and my hon. Friend the Member for Bury St Edmunds and Stowmarket intervened on the hon. Member for Sleaford and North Hykeham, the medical man in me could not help himself. I looked at PubMed quickly to check whether there was indeed an association, and I picked out a paper that may be of interest to the medical people in this place. Following 24 years’ worth of data from Mass General Brigham hospital, with 75,000 patients on each arm looked at retrospectively, there would seem to be a mild association between severe traumatic brain injury and the diagnosis of malignant brain tumours.
Sir John Hayes
As the Minister is now referring to my specialist subject, I thought that I had better intervene. Although I defer, of course, to the immense experience of the hon. Member for Bury St Edmunds and Stowmarket (Peter Prinsley) in these matters, I think that this is associated with lesions and scarring, and that is why, as the Minister said, there is a mild association. As the hon. Member said, there is a much more profound association with other neurological conditions, particularly dementia.
While I am on my feet, may I ask the Minister to address the issue of research? The hon. Member for Bury St Edmunds and Stowmarket is right: diagnostics are terribly difficult, but 1% of the expenditure on cancer research currently goes towards brain tumour research. Can we increase that?
Dr Ahmed
I am grateful to the right hon. Member for his remarks. At the risk of turning this into some sort of medical journal club—I will move on quite swiftly, Madam Deputy Speaker—let me point out that the association is based on retrospective data, and we all know that we have to be a little bit cautious with retrospective data. As for the question of research, I can assure the right hon. Member that we are committed to spending more of the £2 billion NIHR budget on rare cancer research, some of which is ringfenced.
The hon. Member for Sleaford and North Hykeham asked about rural areas. In the workforce plan, we are committed to ensuring—
Sarah Owen
May I take up the point about funding? I apologise for not having been here at the beginning of the debate, but I want to pay tribute to my two incredible constituents Khuram and Yasmin. Their daughter Amani was diagnosed with glioblastoma, and tragically passed away in February 2022 at just 23 years old. Amani’s parents devoted themselves to taking care of her 24/7 as the cancer progressed, but they had to fundraise £100,000. Does the Minister not agree that parents and others should be spending their time with their loved ones, not spending their time fundraising for experimental drugs?
Dr Ahmed
I thank my hon. Friend for all her advocacy on behalf of all her constituents, but particularly Amani’s family. This is a story with which I am very familiar, and I can reassure my hon. Friend that I am committed to ensuring that medical research is properly funded so that, indeed, it is not the duty of bereaved parents or parents to raise the money.
Dame Siobhain McDonagh
We all know that, while money is important, if the institutions that are given money do not spend it, we are all left frustrated and wondering what will happen. I have met cancer Ministers in both the last Conservative Government and this Government, all of whom have been well-intentioned and meaning to bring progress, but it requires intervention with those organisations to ensure that the money that is made available is spent.
Dr Ahmed
I am hearing my hon. Friend’s call to action loud and clear. I can report to her that—this is in addition to the other ongoing clinical trials in the area of brain tumour and glioma research—in October 2025, RECURRENT-GB opened for recruitment. This is a new UK multi-centre randomised controlled trial, supported by nearly £2 million of NIHR funding, which will explore, for instance, whether surgery can improve the quality of life for patients with glioblastoma when the glioblastoma comes back after treatment. I know that my hon. Friend will hold our feet to the fire when it comes to recruitment and the money being used appropriately, and I am delighted to continue working with her in that regard.
Since this Government took office, over 213,000 more people are getting a cancer diagnosis on time, over 36,000 more people are starting treatment on time, and rates of early diagnosis are hitting record highs. Despite these vital signs of recovery, we know that our NHS is still failing far too many cancer patients and their families, as Members from across the House have highlighted this evening. We know that brain tumours remain one of the hardest cancers to treat, and it remains a challenging and underserved area of research.
Last week, the Government published our national cancer plan. We now have a blueprint to shift the dial on rare and challenging cancers, underpinned by three key targets. First, we aim to save 330,000 more lives by 2035 by ensuring that three in every four people diagnosed in 2035 will be cancer-free or living well with cancer five years after diagnosis. Secondly, we will achieve the three cancer performance targets, which I mentioned earlier, by the end of March 2029. Finally, we will improve the quality of life for people living with cancer.
Rare and less common cancers are a priority for the Government, and this is the first ever cancer plan with a whole chapter dedicated to rare cancers. We aim to be in the top quartile of European countries for 14 rare cancers, including brain tumours, where we currently rank 22nd out of 24. We will pull every lever available to drive improvements for these cancer types. We know that one of the most effective ways to improve survival from cancer, including brain cancer, is to catch it and treat it early, so we have committed to reducing the number of rare cancers diagnosed in emergency settings, including brain tumours, which cannot be staged like other cancers and have therefore not been previously captured by early diagnosis measures.
Dr Arthur
This is about equality. There is a fantastic charity called The Eve Appeal, which is focused on gynaecological cancers. It makes the point that a disproportionate number of people with these cancers end up being diagnosed in A&E, by which time it is too late. Through a meeting I had with Blood Cancer UK, I know that ethnic minorities are much more likely to face a diagnosis in A&E than in a doctor’s surgery. This is something that we should do, not just because it is the right thing to do but because it is a matter of equality.
Dr Ahmed
I could not agree more with my hon. Friend, and that is why NIHR funding has been specifically allocated. One of the tests for a grant is the diversity of the population it will serve.
We recognise the challenges presented by brain tumours. By publishing regular performance data at a more granular level and adding diagnosis in emergency settings to our basket of early diagnosis metrics, we are committed to moving the dial on these issues. For all patients diagnosed with rare cancers, we will prioritise access to specialist treatment and multidisciplinary teams to ensure that they benefit from the best of evidence-based care. We will work with charities to support rare cancer patients, and to ensure that they have access to the right information to manage their cancer care. We wish to be held accountable on these commitments and to drive forward progress for rare cancer patients, and we will therefore appoint a national clinical lead for rare cancers, who will provide independent arbitration.
The actions I have listed make up just a small part of our plan. It will turn cancer, which is one of the country’s biggest killers, into a treatable chronic condition. We have developed our plans with patients, charities, families and clinicians, and have heard from many Members today. We are grateful for the continued campaigning on rare cancers and brain tumours.
Dame Siobhain McDonagh
The chapter on rare cancers says that a named individual at NIHR will be responsible for progress in rare cancers. If there is no progress, will they get the sack?
Dr Ahmed
Sacking people is above my pay grade, so I will revert to the Secretary of State’s opinion on that, but my hon. Friend can certainly be reassured that we will hold them accountable, just as she will hold me accountable. She might give me the sack at this rate, so I had better be careful.
We are grateful for the continued campaigning on rare cancers. We look forward to working further with partners to deliver improvements in outcomes for brain cancer patients, and we know that the improvements promised through this plan rely on good research.
That research has already begun, with over £25 million invested in the NIHR brain tumour research consortium, which aims to transform outcomes for adults and children —and their families—who are living with brain tumours, ultimately reducing the number of lives lost to cancer. Furthermore, we are partnering with Cancer Research UK to provide £3 million to co-fund the CRUK brain tumour centres of excellence. This will ensure that we accelerate the move from foundational research to delivering innovative treatments for patients. These investments have the potential to shift the dial and the UK’s position as a leading location for brain tumour treatment research.
As reaffirmed in the national cancer plan, this Government are proud to support the Rare Cancers Bill, introduced by my hon. Friend the Member for Edinburgh South West, which passed its Second Reading in the other place last month. I thank my hon. Friend the Member for Mitcham and Morden and other hon. Members for their support and their moving contributions to the debates on the Bill. This important legislation will make it easier for researchers to connect with patients living with rare cancers, including brain tumours; streamline recruitment into clinical trials; and ensure that our regulatory system delivers for patients. As set out in our 10-year health plan, we will ensure that the UK is a global leader in clinical research. This Bill will accelerate the clinical trials needed to deliver the most effective cutting-edge treatments and the highest-quality care for patients facing a rare cancer diagnosis. I look forward to seeing it progress towards Royal Assent.
I once again thank hon. Members for giving me the chance to set out our plans on rare cancers. I hope I have reassured them that we are determined to improve survival rates for patients, and ensuring that everyone has access to the highest-quality care and the highest-quality research. The national cancer plan embodies these ambitions and sets out how we will achieve them. Through our significant research investments and our support of the private Member’s Bill on rare cancers, in 2026 we will begin to shift the dial on outcomes for brain tumour patients.
Madam Deputy Speaker (Caroline Nokes)
I call Dame Siobhain McDonagh to wind up.