Phenylketonuria APPG
First Registered: 26/04/2018 • Last updated on: 05/11/2019
Note: This APPG was last registered on 5th November 2019. The APPG was not registered in the latest release of the 9th October 2024 and may be defunct.
To raise awareness of Phenylketonuria (PKU); to improve access to the drug 'Kuran', which is widely available in the majority of European countries.
Note: All-Party Parliamentary Groups (APPGs) are informal, cross-party groups formed by MPs and Members of the House of Lords who share a common interest in a particular policy area, region or country. APPGs have no official status within Parliament.
Former Members
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Contact Details
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Benefits in Kind
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Financial Benefits
Reticulating Splines
Former APPG Members
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Liz Twist
Chair & Registered Contact
Labour - Blaydon and Consett
Joined: 26th April 2018Departed: 5th November 2019
1 APPG Membership
Suicide and Self-Harm Prevention
Suicide and Self-Harm Prevention
Paul Masterton
Vice Chair
Conservative - Former Member for East Renfrewshire
Joined: 8th May 2019Departed: 5th November 2019
No other APPG Memberships
Christina Rees
Vice Chair
Labour (Co-op) - Former Member for Neath
Joined: 26th April 2018Departed: 5th November 2019
No other APPG Memberships
No other APPG Memberships
Neil Gray
Vice Chair
Scottish National Party - Former Member for Airdrie and Shotts
Joined: 26th April 2018Departed: 5th November 2019
No other APPG Memberships
Kwasi Kwarteng
Vice Chair
Conservative - Former Member for Spelthorne
Joined: 26th April 2018Departed: 27th March 2019
No other APPG Memberships
No benefits in kind are on record for the Phenylketonuria APPG
No direct financial benefits are on record for the Phenylketonuria APPG