Asked by: Mark Hendrick (Labour (Co-op) - Preston)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what plans her Department has to (a) expand and (b) improve autism services in (i) Lancashire and (ii) Preston for (A) adults and (B) children.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including services to support autistic people, in line with relevant National Institute for Health and Care Excellence guidelines.
Lancashire and South Cumbria ICB advises that it is currently reviewing its all-age autism pathway, and is in the initial stages of completing consultations with system partners and stakeholders. The ICB is aiming to complete the review, and proposals for a future pathway for 2025/26, by the end of this calendar year. In addition to this work, the ICB is reviewing the service specifications in place for the keyworker team, specialist autism team, and forensic autism team with the local provider, to ensure that the commissioned offer reflects the current needs of their population.
Nationally, we are taking steps to improve autism services. NHS England published a national framework and operational guidance for autism assessment services on 5 April 2023. These documents are intended to help the National Health Service improve autism assessment services, and improve the experience for adults and children who are going through an autism assessment. They also set out what support should be available before an assessment, and what support should follow a recent diagnosis of autism.
We are currently updating the Autism Act Statutory Guidance to support the NHS and local authorities to deliver improved outcomes for autistic people. This will include setting out what NHS organisations and local authorities must and should be doing to support autistic people.
Asked by: Alex Sobel (Labour (Co-op) - Leeds North West)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if she will make an assessment of the adequacy of the number of professionals able to offer pre-school autism assessments in Leeds.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
An assessment of the adequacy of the number of professionals able to offer pre-school autism assessments in Leeds is not currently planned. It is the responsibility of integrated care boards (ICBs) to make available appropriate provision to meet the health and care needs of their local population, including autism assessment services, in line with relevant clinical guidelines.
The West Yorkshire ICB advises that pre-school autism assessments in Leeds were temporarily stopped due to a shortage of professionals. The service remains suspended as it needs one full time equivalent clinical psychologist. The post has recently been recruited, and plans are in place for the service to reopen by the end of June 2024.
Nationally, we are taking steps to improve autism assessment services. NHS England published a national framework and operational guidance for autism assessment services on 5 April 2023. These documents are intended to help the National Health Service improve autism assessment services, and improve the experience for adults and children who are going through an autism assessment. They also set out what support should be available before an assessment, and what support should follow a recent diagnosis of autism.
Oral Evidence May. 01 2024
Inquiry: Disability employmentFound: When you look at the employment outcomes for people with a learning disability and autism, for example
May. 01 2024
Source Page: Scotland's Devolved Employment Services: Statistical Summary May 2024Found: of LTHC: Number of participants with a Learning difficulty Type of LTHC: Number of participants with Autism
May. 01 2024
Source Page: Scotland's Devolved Employment Services: Statistical Summary May 2024Found: term health conditionA Developmental disorder as a reported health condition includes for example, Autism
Mentions:
1: Baroness Tyler of Enfield (LD - Life peer) not rather miss the point that most young people claiming PIP are doing so because they have ADHD or autism - Speech Link
2: Baroness Browning (Con - Life peer) The brains of people with autism are wired differently. - Speech Link
3: Viscount Younger of Leckie (Con - Excepted Hereditary) I am aware of the huge challenges linked to assessing those who have autism. - Speech Link
Asked by: Caroline Nokes (Conservative - Romsey and Southampton North)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, how much her Department spent on autism assessments in each of the last five years; how much funding her Department has allocated to autism assessments in each of the next three years; and what recent assessment her Department has made of the adequacy of that funding in meeting the target waiting time for such an assessment.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
Information on the total spend on autism assessments is not held centrally. NHS England is responsible for funding allocations to integrated care boards (ICBs), which are responsible for commissioning services using these core allocations to meet the needs of their local populations, including autism assessment services. The following table shows the total baseline expenditure in ICBs for learning disability and autism services over the last five years, disaggregated for autism services where possible:
| Learning disability | Autism services | Unseparated learning disability and autism services | Total |
2019/20 | N/A | N/A | £1,809,200,000 | £1,809,200,000 |
2020/21 | N/A | N/A | £2,285,600,000 | £2,285,600,000 |
2021/22 | £85,800,000 | £3,700,000 | £2,268,300,000 | £2,357,900,000 |
2022/23 | £625,800,000 | £27,100,000 | £1,928,800,000 | £2,581,700,000 |
2023/24 | £926,000,000 | £47,100,000 | £1,928,800,000 | £2,904,600,000 |
In addition, specific funding has been allocated to ICBs in 2023/4 and 2024/25 from the Service Development Funding, to improve autism assessment waiting lists and pathways. The following table shows information on the additional national funding allocated to ICBs by NHS England, over each of the last five years, to improve autism assessment waiting lists and pathways:
| Service Development Funding via the NHS Long Term Plan Transformation Funding | Spending Review 2021 via the COVID-19 Recovery Fund | Total funding for autism assessment pathways |
2019/20 | N/A | N/A | N/A |
2020/21 | N/A | N/A | N/A |
2021/22 | £2,500,000 | £14,500,000 | £17,000,000 |
2022/23 | £5,000,000 | N/A | £5,000,000 |
2023/24 | £4,200,000 | N/A | £4,200,000 |
2024/25 | £4,300,000 | N/A | £4,300,000 |
Notes:
The NHS Operational and Planning Guidance 2024/25 asks local systems to improve autism assessment pathways, through implementation of the NHS England autism assessment national framework. Allocations from 2025/26 onwards are subject to future decisions on spending. Further information on the operational and planning guidance and national framework is available respectively at the following links:
https://www.england.nhs.uk/publication/autism-diagnosis-and-operational-guidance/
A specific assessment of the adequacy of funding in meeting the National Institute for Health and Care Excellence’s waiting time standard for autism assessments has not been made. However, autism waiting times statistics are published on a quarterly basis. The total number of people with an open referral, where the diagnosis not yet completed, for suspected autism has increased by 47%, from 117,032 in December 2022 to 172,022 in December 2023. In December 2023, it was estimated that only 5.9% of patients whose referrals have been open in the system for at least 13 weeks received their first contact appointment within 13 weeks.
Written Evidence Apr. 30 2024
Inquiry: Preterm BirthFound: I have diagnoses of ADHD (combined type) and autism (both of which are more prevalent in ex pre
Apr. 30 2024
Source Page: Cumbrian construction firm clinches £40m Sellafield contractFound: Stobbarts will continue to support community groups and charities including the Bee Unique Autism Charity
Oral Evidence Apr. 30 2024
Inquiry: Children’s social careFound: get a diagnosis and your child has got challenging behaviour, for instance, and has no diagnosis of autism