Asked by: Ellie Reeves (Labour - Lewisham West and Penge)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to ensure that NHS integrated care boards commission (a) end-of-life and (b) other palliative care for people in all age groups.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
While the National Health Service has always been required to commission appropriate palliative and end of life care services to meet the reasonable needs of their population, in 2022, palliative care services were added to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach and supporting commissioners in prioritising palliative and end of life care in all settings. To support ICBs in this duty, NHS England has published statutory guidance and service specifications for both adults and children.
From April 2024, NHS England will include palliative and end of life care in the list of topics for its regular performance discussions between national and regional leads. Additionally, NHS England has commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of both adults and children in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
NHS England has also funded seven Palliative and End of Life Care Strategic Clinical Networks, each with a dedicated Children and Young People Lead. These networks support commissioners in the delivery of outstanding clinical and personalised care for people in the last year of life and reduce local variation.
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps her Department is taking to help support (a) hospice and (b) other end-of-life services.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
As part of the Health and Care Act 2022, the Government added palliative care services to the list of services an integrated care board (ICB) must commission, promoting a more consistent national approach, and supporting commissioners in prioritising palliative and end of life care.
The majority of palliative and end of life care is provided by National Health Service staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services. The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the ICB footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide, and consequently, the funding arrangements reflect this.
To support ICBs, NHS England has published statutory guidance and service specifications for both adults and children. NHS England has also commissioned the development of a palliative and end of life care dashboard, which brings together relevant, all age local data in one place. The dashboard helps commissioners understand the palliative and end of life care needs of both adults and children in their local population, enabling ICBs to put plans in place to address and track the improvement of health inequalities.
NHS England has also funded seven strategic clinical networks for palliative and end of life care. These networks support commissioners in the delivery of outstanding clinical and personalised care for people in the last years of life, and reduce local variation.
At a national level, NHS England has confirmed it will renew the Children and Young People’s hospice funding for 2024/25, again allocating £25 million of grant funding for children’s hospices, using the same prevalence-based allocation approach as in 2022/23 and 2023/24. The Government has provided £60 million of additional funding to help deliver the one-off payments to over 27,000 eligible staff employed on dynamically linked Agenda for Change contracts by non-NHS organisations, including some hospices.
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what funding support her Department is providing to Integrated Care Boards on the operation of (a) hospices, (b) palliative care and (c) end-of-life services.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
The majority of palliative and end of life care is provided by core National Health Service staff and services. However, we also recognise the vital part that voluntary sector organisations, including hospices, play in providing support to people at end of life, and their families. Most hospices are charitable, independent organisations which receive some statutory funding for providing NHS services.
The amount of funding hospices receive is dependent on many factors, including what other statutory services are available within the integrated care board (ICB) footprint. Charitable hospices provide a range of services which go beyond that which statutory services are legally required to provide, and consequently, the funding arrangements reflect this.
However, since 2020, NHS England has provided hospices with over £350 million to secure and increase NHS capacity, and to support hospital discharge, as part of the COVID-19 response. In addition, since 2021/22, nearly £63 million has been provided to children’s hospices as part of the Children and Young People’s Hospice Grant. Furthermore, additional investment in children and young people’s palliative and end of life care, including hospices, has also been made through the NHS Long Term Plan’s commitment to match-fund clinical commissioning groups, and subsequently ICBs, totalling over £23 million.
As set out in the Health and Care Act 2022, ICBs are responsible for determining the level of NHS-funded palliative and end of life care locally, including hospice care, and are responsible for ensuring that the services they commission meet the needs of their local population.
Written Evidence Apr. 24 2024
Inquiry: Preterm BirthFound: I sit on the executive for the Association of Paediatric Palliative Medicine (APPM) as perinatal palliative
Oral Evidence Apr. 23 2024
Committee: Health and Social Care Committee (Department: Department of Health and Social Care)Found: We have ambitions for palliative and end of life care.
Asked by: Stephen Timms (Labour - East Ham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, if NHS England will (a) fund and (b) publish a data dashboard to help integrated care boards commission children and young people’s palliative and end of life care.
Answered by Helen Whately - Minister of State (Department of Health and Social Care)
NHS England has developed an all-age palliative and end of life care dashboard, which brings together all relevant local data in one place in an easily accessible format. The dashboard is accessible to integrated care boards (ICBs) and their commissioners and helps them understand the palliative and end of life care needs of their local population, including children and young people. This supports commissioners in their statutory duty for palliative and end of life care, enabling ICBs to put plans in place to address and track the improvement of health inequalities, and ensure that funding is distributed fairly based on prevalence.
Funding has been confirmed to ensure continued maintenance of the dashboard for 2024/25, with discussions ongoing regarding further development and use. There is, however, existing publicly available data, such as the Office for Health Improvement and Disparities ‘Fingertips’ data on palliative and end of life care.
Apr. 22 2024
Source Page: Quality Prescribing Strategy for Respiratory A Guide for Improvement 2024-2027Found: for treatment optimisation In children with asthma This guidance is not for children, therefore prescribers
Apr. 22 2024
Source Page: I. List of ministerial responsibilities. 88p. II. List of non-ministerial departments and executive agencies. 22p. III. Letter dated 19/04/2024 from Alex Burghart MP to the Public Administration and Constitutional Affairs Committee regarding documents for deposit, and copying them for deposit in the House libraries. 1p.Found: Making sure that local services protect and support children.
Mentions:
1: Sally-Ann Hart (Con - Hastings and Rye) Hastings and Rye, and Demelza House, which offers palliative care for children—largely through outreach - Speech Link
2: Barry Gardiner (Lab - Brent North) I wish to highlight the importance of palliative care for children and the amazing support that some - Speech Link
3: Jim Shannon (DUP - Strangford) Ireland Hospice provides specialist palliative care for more than 4,000 infants, children and adults - Speech Link
4: James Sunderland (Con - Bracknell) care for children aged between zero and 18 and supports their families. - Speech Link
Asked by: Bell Ribeiro-Addy (Labour - Streatham)
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps she is taking to ensure that seriously ill children and their families can access information on how to access emotional and psychological support.
Answered by Maria Caulfield - Parliamentary Under Secretary of State (Department for Business and Trade) (Minister for Women)
The clinical team responsible for a seriously ill child’s physical healthcare should discuss and review their emotional and psychological status regularly with them, or their family, and support them with access to information and services for their mental health if needed. Commissioners are encouraged to ensure local pathways include assessment and ongoing support of patients’ mental and psychological wellbeing and cognitive status.
The Health and Care Act 2022 placed a legal duty on integrated care boards (ICBs) to commission palliative and end of life care services, which meet the needs of their whole population. To support ICBs in this, NHS England has published statutory guidance, along with service specifications for children and young people, which make reference to including a holistic approach to care. This includes links to social prescribing, assessing, and addressing the needs of children, young people and families, and clear referral pathways to other services such as children and young people’s mental health services. The statutory guidance and the service specifications for children and young people are available respectively at the following links:
Patients’ family members who feel they need emotional and psychological support should speak to their general practice, or can self-refer to NHS Talking Therapies online. Details are available on the NHS website.