Question to the Department of Health and Social Care:

To ask His Majesty's Government how they will ensure guidance for the Down Syndrome Act 2022 is compliant with the Equality Act 2010 in respect of other genetic conditions similarly profound in their impact, such as 22q deletion and duplication syndromes.

The Down Syndrome Act does not remove the duties under the Equality Act 2010 for services to assess all the needs of people they provide support to, including those with genetic conditions such as 22q deletion and duplication syndromes. We are clear that prioritising funding or resources for people with Down syndrome above other groups without proper assessment of people’s needs would be unlawful.

We recognise that there are overlaps between the services that support people with Down syndrome and those that support people with other genetic conditions and/or a learning disability. The Down Syndrome Act guidance will focus on the unique support needs of people with Down syndrome. We will, however, highlight where best practice in service delivery would also be applicable to those with another genetic condition and/or a learning disability, including DiGeorge syndrome (22q11.2 deletion syndrome) and duplication syndromes.

An Equality Impact Assessment will be carried out on the draft guidance once produced to ensure it does not disadvantage certain groups relative to others. There will be a full public consultation on the draft guidance. The guidance will make clear the requirements on relevant authorities in respect of the Equality Act.