Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps he is taking to support parents whose child is diagnosed with a serious or life-limiting illness.

As per Section 97 (3b) of the Children’s and Families Act 2014, parent carers have the right to request an assessment of their need for support from the local authority. Having been assessed, Section 17 (10b) of the Children’s Acts 1989 makes provision for a child whose physical or mental health is impaired, as well as his or her family, to receive the appropriate support services from the local authority.

Local authorities have a statutory duty to assess the social care needs of children and young people with serious or life-limiting illness, and to provide respite care where necessary. Local authorities and integrated care boards regularly liaise to plan and commission the most appropriate package of short breaks for the children and young people with a life-limiting or life-threatening condition in their area.

The statutory guidance on palliative and end of life care produced by NHS England states that the core responsibility for commissioners is to commission high-quality, safe services that are tailored to the needs of the individual. The duty is intended to ensure that those of all ages with palliative and end of life care needs, with progressive illness or those nearing the end of their lives, as well as their loved ones and carers, receive the care and support they need to live and to die well.

I am pleased to confirm the continuation of children’s hospice funding for the next three financial years, 2026/27 to 2028/29 inclusive. This funding will see circa £26 million, adjusted for inflation, allocated to children’s hospices in England each year, via their local integrated care boards on behalf of NHS England, as happened in 2024/25 and 2025/26. This amounts to approximately £80 million over the next three years.