Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what plans his Department has to support MND Care Centres to participate in (a) research studies and (b) MND-SMART.

The Department is committed to funding health and care research via the National Institute for Health and Care Research (NIHR) across England, to ensure that the research we support is inclusive and representative of the populations we serve. Government responsibility for motor neurone disease (MND) research is shared between the Department for Health and Social Care, with research delivered by the NIHR, and the Department for Science, Innovation and Technology, with research delivered by UK Research and Innovation.

NIHR infrastructure has national coverage and is designed to build research capacity and capability across all settings, including MND care centres, to support participation in all eligible research studies. These mechanisms are well placed to support care centres’ participation in studies such as MND-SMART, ensuring centres have the guidance and practical support needed to take part in this trial.

This sits alongside wider Government investment to accelerate MND research. Examples include £12.5 million to support discovery science at the UK Dementia Research Institute, £6 million for the MND Translational Accelerator, and £8 million for the EXPERTS-ALS drug screening programme, which complements the charity-funded MND-SMART trial.