Congenital Disorder of Glycosylation
(asked on 18th July 2024) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of establishing a national patient register for Congenital Disorders of Glycosylation.
This question was answered on 25th July 2024
No assessment has been made of the potential merits of establishing a national patient register for congenital disorders of glycosylation. There are no plans in England for a specific registry for this condition. Metabolic patients are included in the National Disease Registration Service, which is now part of NHS England.