Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.

No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the lives of those living with rare diseases by addressing shared challenges, and does not focus on specific rare conditions.