Congenital Disorder of Glycosylation
(asked on 18th July 2024) - View Source
Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what assessment he has made of the potential merits of including a dedicated Congenital Disorders of Glycosylation section in the UK Strategy for Rare Diseases.
This question was answered on 25th July 2024
No assessment has been made of the potential merits of including a dedicated section on congenital disorders of glycosylation in the UK Rare Diseases Framework. The framework was published in 2021, and provides a national vision for how to improve the lives of those living with rare diseases by addressing shared challenges, and does not focus on specific rare conditions.