Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what steps is he taking to improve NHS access for people with postural tachycardia syndrome requiring specialist care.
It is the responsibility of local integrated care boards to work with clinicians, service users, and patient groups to develop services and care pathways that are convenient and meet the needs of patients with postural orthostatic tachycardia syndrome (PoTS).
The National Institute for Care Excellence (NICE) has published a clinical knowledge summary on the clinical management of blackouts and syncope, that provides advice for clinicians in the United Kingdom on best practice in the assessment and diagnosis of PoTS. This was last updated in November 2023, and is available at the following link:
https://cks.nice.org.uk/topics/blackouts-syncope/diagnosis/assessment/
General practitioners (GPs) have been asked to investigate symptoms to ensure that it is not misdiagnosed. Following referral, patients are treated within National Health Service cardiology and neurology services. Where more specialist advice is required, a referral will be made to an appropriate clinician.
To improve awareness of PoTS amongst healthcare professionals, and specifically GPs, the Royal College of General Practitioners provides training on PoTS as part of its Syncope toolkit, which is available at the following link: