Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether personal data submitted under the Patient Knows Best scheme is sold on to companies for (a) research, (b) insurance and (c) other purposes.

Personal data submitted cannot be sold on. Patients Know Best have entered into Information Sharing Agreement and Information Processing Agreements with local providers with clear provisions regulating the use of patient records compliant with the General Data Protection Regulation.

The Innovation and Technology Payment (ITP) programme runs an annual competition to provide support for the adoption of new innovations in the National Health Service. The ITP Evidence Generation Fund (EGF) is focused on developing the evidence base to support the wider adoption of Personal Health Records (PHRs) across the health and care system. Patients Know Best, one supplier of PHRs, has been funded through the EGF from April 2019 to September 2020. £946,071 (including VAT) has been allocated to Patients Know Best to date.