Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make an assessment of the potential merits of implementing the Parkinson's UK Parky Charter.

We acknowledge the challenges that neurology services have been facing, particularly regarding the workforce, delays to treatment and care, and the lack of information and support that some patients have experienced.

However, whilst no assessment has been made on the potential merits of the Parkinson’s UK Parky Charter, I am pleased that there are a number of initiatives supporting service improvement and better care for patients with Parkinson’s disease.

These national initiatives include the RightCare Progressive Neurological Conditions Toolkit, the Getting It Right First Time Programme for Neurology, and the Neurology Transformation Programme, a multi-year, clinically led programme to develop a new model of integrated care for neurology services.

Furthermore, we have delivered an additional two million appointments between July and November 2024 compared to the same period in 2023, seven months ahead of schedule, as a first step in our commitment to ensuring patients can expect to be treated within 18 weeks. These additional appointments have taken place across a number of specialities, including neurology.

This summer, we will publish a refreshed Long Term Workforce Plan to deliver the transformed health service we will build over the next decade and treat patients, including those with Parkinson’s, on time again. We will ensure the National Health Service has the right people, in the right places, with the right skills to deliver the care patients need when they need it.

Approximately 89% of prescription items are currently dispensed free of charge, and there are a wide range of exemptions from prescription charges already in place. People with Parkinson’s who are 60 years old or over are entitled to free prescriptions. For those that have to pay for prescriptions, the cost can be capped by purchasing a pre-payment certificate. Additionally, the NHS Low Income Scheme can provide help with health costs on an income-related basis.

The Government spent £79.06 million on research into Parkinson’s between 2019/20 and 2023/24, with research delivered via UK Research and Innovation and the National Institute for Health and Care Research, and is continuing to invest in Parkinson’s disease research.