Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking with the National Institute for Health and Care Excellence to establish full clinical guidelines for the (a) diagnosis and (b) treatment of people with Tourette's syndrome.

The National Institute for Health and Care Excellence (NICE) has established a prioritisation board that takes decisions on which topics should be prioritised for the development of a clinical guideline, in line with the routing criteria set out in the NICE’s published prioritisation framework, and through engagement with experts and other interested parties. The prioritisation board is currently considering Tourette’s and tic disorders as a possible topic for guideline development, however no final prioritisation decisions have been made yet.

The NICE has produced guidance on suspected neurological conditions, which includes recommendations on treatment for tics and involuntary movements in adults and children. The guidance can be found at the following link:

https://www.nice.org.uk/guidance/ng127/

The NICE is also developing an Early Value Assessment on digital therapy for chronic tic disorders and Tourette syndrome, and currently expects to publish final guidance in May 2025.