Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what steps his Department is taking to support individuals living with Cauda Equina Syndrome with access to (a) treatment, (b) rehabilitation and (c) financial assistance.

The Government is committed to improving the lives of those living with rare diseases, such as cauda equina syndrome. The UK Rare Diseases Framework sets out four priorities collaboratively developed with the rare disease community: these include improving access to specialist care, treatments, and drugs.  We remain committed to delivering under the Framework and published the annual England action plan in February 2025.

The Getting It Right First Time (GIRFT) programme is a national NHS England programme designed to improve the treatment and care of patients through in-depth review of services, benchmarking, and presenting a data-driven evidence base to support change.

GIRFT has worked collaboratively with a multidisciplinary group of more than 60 health professionals to develop an interactive pathway for those patients with suspected cauda equina syndrome, designed to support clinical teams to diagnose and treat the condition without delay and improve patient outcomes. The pathway offers best practice along all stages of the patient pathway, including post-operative care and best practice for surgical techniques, pain control and other post-operative support, which includes a section on finances. More information is available at the following link:

https://girft-interactivepathways.org.uk/cauda-equina-1/