Rare Diseases: Drugs

(asked on 25th March 2024) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, how many appraisals for medicines to treat very rare diseases were started through the National Institute for Health and Care Excellence highly specialised technology programme in each financial year since 2018-19.


Answered by
Andrew Stephenson Portrait
Andrew Stephenson
This question was answered on 15th April 2024

The following table from the National Institute for Health and Care Excellence (NICE) shows the number of highly specialised technology evaluations that started in each year since 2018/2019:

Year

Invitations To Participate

2018/19

4

2019/20

2

2020/21

3

2021/22

7

2022/23

8

2023/24

4

Total

28

Note: The term started has been defined as when the NICE sent the invitation to participate.

Reticulating Splines