Paediatric Acute-onset Neuropsychiatric Syndrome: Children

(asked on 16th March 2023) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether he (a) has had and (b) plans to have discussions with NHS England on ensuring the (i) adequacy and (ii) consistency of treatment pathways for children living with (A) PANS and (B) PANDAS; and what steps he is taking to ensure that children living with (1) PANS and (2) PANDAS and their parents receive adequate (x) information and (y) support to take informed decisions on care pathway options.


Answered by
Maria Caulfield Portrait
Maria Caulfield
This question was answered on 24th March 2023

No such discussions with NHS England have taken place or are planned at present. Should the evidence base develop further, clinical policy may be updated by relevant organisations such as the National Institute for Health and Care Excellence. NHS England would then consider the development of care pathways for those living with PANS and PANDAS. In the meantime, integrated care systems are responsible for planning care for their populations.

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