Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, what assessment he has made of the number of specialist Parkinson's Nurses required to meet the current needs of patients.

The Department does not hold data specifically on the number of people waiting for treatment for Parkinson’s disease in England. The Department does hold data on waiting times for neurology, but not broken down by specific conditions. The latest data for referral to treatment waiting times in England, from September 2024, shows there were over 234,000 patients waiting for a neurology appointment, and that 54% of patients were seen by a neurologist within 18 weeks.

There are a number of initiatives supporting service improvement and better care for patients with Parkinson’s disease in England, including the Getting It Right First Time (GIRFT) Programme for Neurology, the RightCare Progressive Neurological Conditions Toolkit, and the Neurology Transformation Programme (NTP).

The GIRFT National Specialty Report made recommendations designed to improve services nationally, and to support the National Health Service to deliver care more equitably across the country. The report highlighted differences in how services are delivered, and provided the opportunity to share successful initiatives between trusts to improve patient services nationally. In addition, the NTP has developed a model of integrated care for neurology services to support integrated care boards to deliver the right service, at the right time for all neurology patients, including providing care closer to home.

Once diagnosed, and with a management strategy in place, the majority of people with Parkinson’s can be cared for through routine access to primary and secondary care. NHS England commissions the specialised elements of Parkinson’s care that patients may receive from 27 neurology centres across England. Within specialised centres, neurological multidisciplinary teams ensure patients can access a range of health professionals, including Parkinson’s disease nurses, psychologists, and allied health professionals such as dieticians and speech and language therapists, and that they can receive specialised treatment and support according to their needs.

No specific assessment has been made of the number of specialist Parkinson’s nurses required to meet the current need of patients in England. While the Department does not hold data specifically on the number of Parkinson’s specialist staff in England, we do hold data on the numbers working in the wider speciality of neurology. As of July 2024, there were over 1,800 full-time equivalent (FTE) doctors working in the specialty of neurology in NHS trusts and other organisations in England. This includes over 900 FTE consultant neurologists. In 2023, the fill rate for recruitment into the specialty of neurology in England was 94%.

The NHS workforce has been overworked for years, leading to staff becoming burnt out and demoralised. We must be honest about the challenges we are facing. The NHS is broken but not beaten and together we will turn it around.

We have launched a 10-Year Health Plan to reform the NHS. The plan will set out a bold agenda to deliver on the three big shifts needed to move healthcare from hospital to the community, from analogue to digital, and from treatment to prevention.

A central and core part of the 10-Year Health Plan will be our workforce and how we ensure we train and provide the staff, technology, and infrastructure the NHS needs to care for patients across our communities.