Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, if he will make a comparative assessment of the adequacy of levels of access to Procysbi for people with Cystinosis in England compared to other parts of the UK.

The Department of Health and Social Care has indicated that it will not be possible to answer this question within the usual time period. An answer is being prepared and will be provided as soon as it is available.