Question to the Department of Health and Social Care:
To ask the Secretary of State for Health and Social Care, what estimate his Department has made of the number of complaints received by NHS Trusts relating to end of life care priorities in hospitals; and what assessment he has made of the adequacy of (a) compliance by hospitals with established end of life care priorities and (b) communication with family members and next of kin regarding end of life care decisions.
The Department does not hold central estimates of the number of complaints National Health Service trusts receive specifically relating to end‑of‑life care priorities in hospitals. Complaints are managed locally by NHS organisations in line with the Local Authority Social Services and National Health Service Complaints (England) Regulations 2009, NHS Complaint Standards (2022), and Health and Care Act 2022, which set out the requirements for handling complaints in all NHS bodies. Anyone can raise concerns about NHS care, and trusts must investigate these in accordance with the regulations.
NHS England sets out clear expectations for high‑quality end‑of‑life care through statutory guidance and service specifications for integrated care boards (ICBs) on commissioning palliative care and end‑of‑life care services. Compliance with established end‑of‑life care priorities is monitored through existing assurance mechanisms. The Care Quality Commission assesses whether trusts have effective systems in place to recognise deterioration, safeguard vulnerable adults, and provide safe, compassionate care at the end of life. NHS England also annually assesses ICBs on how well they discharge their statutory functions, including commissioning high‑quality palliative care and end‑of‑life care.
We recognise that high-quality palliative care and end-of-life care should include the opportunity for individuals to discuss their wishes and preferences so that these can be taken fully into account in the provision of their future care, also known as advance care planning (ACP).
NHS England has published Universal Principles for Advance Care Planning. These principles facilitate a consistent national approach to ACP in England. The principles focus on the importance of providing opportunities for a person and their family or carers to engage in meaningful discussions, led by the person concerned, which consider that person’s priorities and preferences, including place of care, when they are nearing the end of life.