Sickle Cell Diseases

(asked on 7th December 2022) - View Source

Question to the Department of Health and Social Care:

To ask the Secretary of State for Health and Social Care, whether his Department has made a recent assessment of the potential merits of simplifying the administration of pain relief for sickle cell patients.


Answered by
Neil O'Brien Portrait
Neil O'Brien
This question was answered on 15th December 2022

No specific assessment has been made.

Specialist haemoglobinopathy teams (SHTs) and haemoglobinopathy co-ordinating centres (HCCs) are required to submit data via the Specialised Services Quality Dashboard on the percentage of patients given pain relief within 30 minutes of presentation with a sickle cell crisis, as per the National Institute for Health and Care Excellence guidelines. The data does not include patients attending non-specialist haemoglobinopathy providers and further work is required to improve the accuracy of the data submission before it can be used to assess compliance.

Reticulating Splines