National Carers Week

Wendy Chamberlain Excerpts

Thursday 8th June 2023 Commons Chamber

[Wendy Chamberlain (North East Fife) (LD)]

Thank you, Madam Deputy Speaker. I congratulate the hon. Member for Gosport (Dame Caroline Dinenage) on securing this debate and on the work she does as chair of the all-party group on carers. The debate is testament to the work done by her and by other Members in the Chamber who have direct experience or have been involved in this space for some time. I have been on a bit of journey since securing a slot in the private Members’ Bill ballot and taking forward my work on carer’s leave. I wish briefly to pay tribute to a number of groups I have met while doing that. In St Andrews, we have a group, supported by Fife carers, called the CRAP Carers—compassionate, responsible and patient carers. It is a remarkable group, mostly made up of women—the hon. Lady mentioned how many of our carers are women —and they do incredible work to support their loved ones. I also want to highlight Fife Young Carers, which sadly lost its chief executive officer, Kirstie Howell, last month. I pay tribute to her and the work she did.

It is estimated that Scotland has up to 800,000 carers. My husband is one of them, as he looks after his mother, although he continues to refuse to recognise himself as such. The hon. Lady referred to a number of the challenges they face and the statistics on that. According to Carers UK, 45% of carers are currently unable to afford their monthly expenses and 83% are worried or extremely worried about managing them in the future. One of the most distressing things for me is that a third of carers are spending more of their money on products that they use for care, such as incontinence pads. The money is not coming to them from elsewhere and they are having to use their own resources for those things. Three quarters of carers receiving carer’s allowance or the carer element of universal credit are worried about energy bills and other bills, and are concerned that they will be unable to heat their home to a safe level. We know, and have discussed in this House many times, that it costs even more money to be disabled, and a number of people care for those with disabilities. We need to be aware of that.

We must not forget our young carers. We are waiting for the census results in Scotland, but the census in England and Wales shows that about one in 21 of our 16 to 24-year-olds are carers. They face difficulties with finances and accessing education. During my work on my Carer’s Leave Bill, I became concerned that we could create conditions where young carers will never have the opportunity to enter the workplace, particularly given the cliff edge that carer’s allowance presents.

I wish to highlight the story of one constituent, who wishes to remain anonymous, as it demonstrates some of the challenges. She cares for her elderly mum, who has Alzheimer’s, mobility issues and long-standing mental health issues. There is live-in care, but she still spends hours on care and care-related administration. Another source of guilt for carers is that they are spending so much time on the admin associated with caring that they feel they are not getting the opportunity to do the caring. Nursing visits happen unannounced, so they do not have proper information and she does not have the time to arrange to be there sometimes. Telephone appointments with GPs and hospitals are not at definite times. She describes putting her camera and mute on during Teams meetings to answer calls, rather than miss an appointment; that is a difficult balance for carers who are working. She says:

“Personally, I have felt unable to commit to a full time workplace based job for a very long time because I feel I would end up letting my employer down as care stuff with mum takes up so much time or I would end up too ill to work myself. It’s not actually being present for Mum physically in our situation that takes the time now but the admin and domestic and financial matters and dealing with health professionals and issues arising with carers that takes time every day. To have enough flexibility at the moment I work several part time short contract jobs and so lack job security and have a lower income.”

We know that women in retirement face challenges because they have lower pension contributions to access, and these kinds of situation embed that. My constituent has described wanting to go back into full-time work and starting the process, but she has had to withdraw because of her mum’s health. That risk of leaving the workforce is high. I struggled to find constituents who would benefit from my Bill because many who were caring had already left employment. I am delighted to see my Bill become law, because for the first time unpaid carers have employment rights, but there is much still to do. I still think that carer’s leave should be paid, because carers need and are entitled to it.

We need to think about putting in place more carer-positive policies. I have been encouraged by my work with Carers UK and the positive employers it works with. The hon. Member for Motherwell and Wishaw (Marion Fellows), who is in her place, and I are Carer Positive-recognised businesses in Scotland; we went through that accreditation process. This would be a great thing for other parts of the UK to look at. I thought I was a good employer, but having to think about how I would approach certain circumstances made me consider how I can be more proactive.

On carer’s allowance, a quarter of carers receiving carer’s allowance or the UC element are using food banks to manage. Over the past 12 years, carer’s allowance has increased by only £15.20 per week, and there is also a limit on how much people can work. I met young carers earlier this week, and the limit while in education is 21 hours per week. The new T-levels, which the UK Government describe as a “gold standard” for young people, involve more than 21 hours a week. People doing T-levels who are caring will, therefore, be unable to claim carer’s allowance. The Scottish carer’s support payment is being rolled out in Scotland, and a number of the challenges I would raise in respect of carer’s allowance are being examined there, but, as always, we can do more.

Too many carers receive little or no wraparound support. We must not forget those who are full-time carers and unable to be in employment or education. In many ways, it feels like they have been forgotten. A statutory guarantee for respite breaks for unpaid carers is important: I have been contacted by several constituents who have highlighted the importance of respite, particularly for those who are sandwich carers. One said to me that, looking back on caring for her elderly mother over the course of her own retirement,

“it was the respite we missed and desperately needed more than anything at the time. We missed doing things together in our latter years, and nothing can bring those years back.”

I wish to highlight two places in my constituency. There is the Rings, near Chance Inn, where Moira and her team provide holidays for those who want to take breaks with their loved ones. The facilities and the efforts and care they provide are huge. Then there is Homelands in Lundin Links. What has been highlighted to me is that a number of our big hotel chains do not necessarily have all the disabled access and facilities that carers need to be able to take their loved ones on holiday, and to give them that degree of respite that a holiday would give. We should be requiring our hospitality services to do more. Again, I highlight the really good work of Euan’s Guide—basically, it is a Tripadvisor for disabled people—which I worked with in my previous job at Diageo. It provides an opportunity not just for disabled people to provide comments on facilities, but for businesses and organisations to talk about what they are doing.

To keep to your timescale, Madam Deputy Speaker, I will just mention briefly that my hon. Friend the Member for St Albans (Daisy Cooper) tabled an amendment to the Health and Care Bill that would have put a legal duty on the NHS to identify unpaid carers. Sadly, that did not receive Government support. I also highlight the previous private Member’s Bill of the hon. Member for Worsley and Eccles South (Barbara Keeley).

There is a huge gap between the number of people who are seen to be providing care, or who have provided care, and those who see themselves as having done so. As a result, Carers UK estimates that 19 million people are missing out on support. I hope that my Act will start some of those conversations, so that people recognise that they are caring. Another issue is ensuring that it is not just people doing the physical care on the ground who are seen as carers. I highlight the admin issue here.

Finally, I highlight the private Member’s Bill of my hon. Friend the Member for North Shropshire (Helen Morgan) on carers and care workers, which, as well as reforming social care, would require the Government to carry out an independent assessment of support available to unpaid carers, including financial support and employment rights. The Government may not support it, but, hopefully, with the work that they are doing on the cross-Government ministerial group, they will recognise that there are elements of it that they can take forward.

I thank everybody in the House who has helped me to bring my private Member’s Bill forward. I thank, too, all the organisations that have engaged with us. The Bill is very much a first step, and I am sure that all of us here are thinking about what we can do next.

--- Later in debate ---

[Marion Fellows (Motherwell and Wishaw) (SNP)]

I hugely congratulate the hon. Member for Gosport (Dame Caroline Dinenage) on securing this really important debate and on the work she does with the APPG.

Here we are again in National Carers Week, and things have not improved tremendously since the last time we had this debate in Westminster. Carers UK wants this week to be about communities across the UK coming together to recognise the huge contribution that unpaid carers make to society. Politicians—that’s us—employers, that’s us as well; health and social care services; businesses; education providers and members of the public all have a role to play in raising awareness of caring and making sure carers are able to access the information and support they need.

Like many others here in the Chamber, I went to the parliamentary reception yesterday, where I met Karen, among others. Karen told me her story and how she gave up a high-flying job with a really good salary, right at the start of the pandemic, to take care of her mother. She did so willingly, but it was a full-on job—in fact, so full-on that she did not have time to apply for any kind of carer’s allowance. Three years on, she finds herself almost bankrupt and in danger of losing her home. I think that shames us all. I pay tribute to Karen and folk like her, who are taken for granted. They save the economy billions of pounds and they do not always come out of it well enough, even though they have done the very best they can.

I also pay tribute to two organisations in my constituency, Lanarkshire Carers, which works in Motherwell and Wishaw—it has just been recognised as an exemplary Carer Positive employer in Scotland, which is fantastic news—and North Lanarkshire Carers Together, which attends the regular meetings of the poverty action network that I have set up locally. Both organisations do such immense and positive work to signpost carers, helping them to get money and respite, ensuring that they are included, providing short breaks—afternoon caring time—and even just allowing paid and unpaid carers to talk to others, which is a huge help.

[Wendy Chamberlain]

I, too, visited Lanarkshire Carers over the recess, in neighbouring Hamilton, and I heard about the exemplary award and the innovative ways in which they have approached things since the pandemic to ensure that they reach out to carers. They are a best-in-class organisation, and the hon. Lady is very lucky to have them.

[Marion Fellows]

Oh, I know. I thank the hon. Member for her intervention and for the Carer’s Leave Act 2023, which she piloted through Parliament—it will make a difference. I ask the Minister to please listen and give carers some money for the five days off to which they will now be entitled.

Last month, the chief executive officer of Carers Trust told the Work and Pensions Committee that, as Members have noted:

“Carer’s allowance is devolved in Scotland, so there has been a big focus on increasing the adequacy of the benefits. Part of that has been around focusing support on 16, 17 and 18 year olds who are unpaid carers. There have been financial payments, payments of £300”—

quite a lot of money for a young person—

“to allow them to access broader life opportunities, given so much is not open to them.”

They also get a Young Scot card, which gives them free transport, discounts and other things. It also looks as if the Scottish Government will remove the 21-hour rule for study, and I hope that the UK Government do not intervene against that, because it is important. A young carer needs the opportunity to enhance their education and better equip themselves for further work.

In Scotland, we really try to support and help carers. We know how much they contribute to our economy. It has been estimated that there are about 800,000 carers saving the economy £3.1 billion a year—that is an enormous amount of money. We also have to face the fact that most carers are women, and that leads to lower pensions. The gender pay gap already means that women do not get as good a pension as men, but the fact that more women than men take up caring responsibilities mean that they are being hammered twice.

The Scottish Government are very keen on stakeholder engagement. As with the national care strategy that they recently announced, nothing is done without talking to stakeholders. I am very proud that one of my former employees, Sophie Lawson, is working on a Scottish Government initiative on this topic—good luck to her. Sophie works for the Glasgow Disability Alliance, which has done a lot of good work with carers.

I have been the SNP’s Westminster disability spokes- person since 2020, but appallingly, it was only last year that it really dawned on me that there is a huge link between people with disabilities and carers, and how much we all owe to carers, who help the most undervalued groups in our society. Unpaid carers cover all parts of society, but they can often be marginalised. That is where local organisations are useful. I know that is happening all over the country.

One thing that I hope the Minister will recognise is that 29% of carers in the most deprived areas across the UK care for 35 hours a week. There is a real link between ill-health, poverty and the fact that so many people have to give up work to care for their loved ones. There is also real stigma, as has been mentioned. Many people who are cared for do not recognise that they are being cared for, and that can prevent their carers from accessing organisations and help from other people.

I am aware of the time that I have taken, so I will finish. I hope the Minister has listened very carefully to everyone in the Chamber, and will consider what is happening in Scotland. This is an important issue, and it needs to be addressed, especially now, during this cost of living crisis.